Hi Gaye

so sorry to read that you are still suffering from such wearing bone pain, I hope that eventually the Rt will kick in as Min has said
Gordon takes tramadol 2 x daily 50mg mainly because he needs a new hip due to osteo arthritis not mm and he does not seem too spaced out!! he drives, works sort of, but tramadol does not suit…[Read more]

Hi Nigel

We tend to go to France for about 3-4 weeks at a time. We go to the Creuse (a very long journey) and feel that it is not practical to go while Stephen is on Velcade. I realise that it is probably different for you as you live in France I believe.

Regards Gill

PS to Bridget we no longer have a "puppy" she is known as the poo-pee…[Read more]

Hi Tracy

My partner Slim is on 21 day of ctd.He was on B12 vitamins for awhile.I cannot help with gluten intolerance.Slim was very healthy before all this.I think when you are first told about myeloma apart from the shock you start looking for reasons.Everbody will tell you this no one seems to know why or where it comes from,we are all…[Read more]

Thanks Dai, beautiful music and lyrics just what i need.

sarah

my word David I hope they dont come to sussex, my poor dog would have a heart attack he hates squirrels!

Sarah

Hi Min

I also watch a lot of late night telly, it is rubbish!! Except for the now and again good films, or the very old soaps, I ended up watching the soap set in the solent with lots of very beautiful yachts more interresting than the dialogue.
I still think i am on holiday!! not sure when that feeling will go, if ever.
I help my son and…[Read more]

Hi All

Gordon had velcaide last year at Kings and because we live in sussex he had treatment once a week with a week off and seemed to sail through the treatment ( except for the dex grrr:-( ), he went into remission after the 3rd cycle, but had 6 al told prior to sct. maybe the americans have done more recerch and i x weekly is better for side…[Read more]

hi Nigel

I agree with you it should be easy to arrange medication between Europe,we know from friends in Holland If they need treatment and it is easier to go to Belgium its no problem.We tried it when Slim needed a hip replacement,2 years wait here,we offered to go to Abbyville in France would have cost NHS 5thousand was refused,they paid 11…[Read more]

Hi Min

I am free too:-D it feels very weird at the moment, having a …up with ex work mates tomorrrow night. I have a huge form to fill in for a pension, so will do that with the cesus, hope i dont muddle them!!

Good luck with our new freedom, no more problems on having time off for appointments, getting gordon to hospital etc. Woopee!

sarah x

hi Gill

Thanks for information,will look it up.We travel in a motorhome to France,Spain Portugel,have done all of Europe plus Morocco.This mm has put a stop on are travels for now.We are hoping once Slim gets use to his chemo to travel to France although on treatment,will have to come back every month because of Myeloma Trials.

It is just as…[Read more]

I'm so sorry to hear that you have lost your friend and companion. We have 2 Westies 1 is 2 and one 3 months but the thought of parting from either of them is horrid.

Dogs are not children nor human but yes they are part of your family and take a space in our lives and what a big dog sized hole there must be in your home at the…[Read more]

Hi Thanks kwilson for the advice on insurance I will look for that.

Hope everybody is enjoying this lovely weather or is it just south of the thames that has it?

I am so pleased our crossed fingers worked Good for You !!!

Hi Min

thank you, what a hoot and to think we put our faith in Doctors!!

Sarah xx

Hi Andy

My husband has mm and was diagnosed in 2008 aged 53. He had an SCT in the summer of 2009 after chemo had got his mm down to "hardly showing" He relapsed after 18 months and is going for a second SCT later this year. After seeing his consultant today we are aware that he will probably not get as long in remission as last time but he has…[Read more]

Hi Ruth

My partner is on his 10 day of chemo,I can only tell you he should not be in any pain,if you do not ring the hospital to find out why,go to your own doctor,My partner is on very strong pain medication and is in pain when he does to much.

Normal exrays show up lesions on large bones mri scan for small bones eg spine;,no matter what…[Read more]

When I Am Old is one of the many poems sayings etc that I have on my office cork board.

I think it scares my grown up kids to think I might get like that>:-)

Gill

Oops maybe I am

It is Stephen who is ill but probably me that needs the ambulance laughed so much I got a coughing fit and nearly choked!!! Makes my "wart on left thumb please remove" (yes junior surgeon removed thumb abolutely true) look pretty tame

Thanks for great fun gill xx

HERE'S ONE I MADE EARLIER 🙂 To add to the suggestions you have already had

My husband was in Kings College Hospital London in the summer of 2009 for his first SCT. We made a list of suggestions at the time of things that were quite handy to have but obviously it was geared for Kings and I am sure that other hospitals are different. We were…[Read more]