Roz you must be psychic!! My daughter plus husband 2 children and new puppy came over for the day on Saturday (hectic but fun) I managed to get a few quiet moments with my daughter and we spoke about Stephen, obviously, mm and this site.

I mentioned you and Michael and asked Donna whether she thought you would like to hear from me or whether…[Read more]

Hi Roz

good to hear from you, i was wondering how you are. we are going away for a few days tomorrow after seeing the consultant, like you so rightly say live for today.

best wishes

sarah x

hi everbody

I have decided to come out in the open;I have kept my partner low key because of family circumstances.

I am eve aged 62 originally from Liverpool ,have lived in Deal KENT FOR 40 Years.My partner who is 66 was diagnosed February the 11 this year.He is known as Slim only his mother called him by his birth name.

We have been so…[Read more]

HI jo

Interested about going on holiday,how do you manage insurance wise? We have been told once my partner gets use to drugs we can go off in motorhome,but he is on morphine ,and only 10 days supplied at a time,so France looks out although for us France is nearer than most counties,and I am happy to drive in France.The customs might have…[Read more]

hello tom

It is a bit complicated with his daughter,in February she knew he fractures in his back,Then he was told he has mm and decided he would tell her h/term when she said she would travel up.She did not come,and no phone calls since,

My own daughters know and are there for both of us.I feel she should be told but will not go against my…[Read more]

Hi only me

My husband has mm he had a cousin one the maternal side who died of leuchemia (spelling) at a young age and two 2nd cousins on the paternal side who also died of blood cancers, so who knows!

sarah

Hi H
So sorry you have joined this site, but there are some anazing people here.My husband has mm and was diagnosed 49 years old in 2002, i think he had had it for several years. He has had two stem cell transplants the last one in november last year, and seems to be coping well. cannot comment on the treatment you are having everyone seems to be…[Read more]

Hi jon
You are going to have down days;I do and its my partner who has mm.He has just finished dexa starts again Friday.Iknow he is a bit down right now but being a man keeps it all in.It would be lovely to have a magic wand and turn the clock back,Try to keep chin up regards eve

PS Min

Puppy (Anya) still gorgeous but sooo proud of mistakes!! Still squatting in front of us and being very pleased with herself.

We do shout "bad girl" and move her to her pee mat but neither Stephen nor I sound cross enough methinks. It is getting better though and she is a complete lovebug.

Luckily her "honoury aunty" (our 2 year…[Read more]

Hi All

Isn't it great that on a site that caters for a very unpleasent illness there can still be some fun.

I had forgotten all about liberty bodices. Mine had ribbons and I seem to remember that I had a "prettier one" for birthday parties etc (never seen but you knew it was your best one)

Gill xx
PS No wonder the under 50s got their…[Read more]

Hi Ruth

What a horrid time you are going through. I am no expert but I will tell you about my husband. Stephen has mm, and had a Stem Cell Transplant in the summer of 2009. He may have a second one later this year.

I can only tell you what happened to Stephen when he had his Stem Cell Harvest and Transplant. Others may have a different…[Read more]

hi hmason

Lot older than you but based in Deal Kent,Try 50 age group a lot out there,My partner is in 6 th day of treatment on myeloma X1 trials he got ctd side.He comes under the same consultant but not seen the big man'Worth trawling site as I found it very helpful and reassuring there are people out there who have been on this journey a long…[Read more]

Ooh Min

I remember the liberty bodice, nice and toasty!!! Why was it called a liberty bodice? I seem to recall that mine had ribbons on it rather than hooks. I am sure once i wore a bra i did not wear a bodice as well. At least we do not bra made for us with canterlevers like poor Jane Russel, what a cleavage, imagine the back ache:-(

All…[Read more]

My husband has had the sweats and the cold times but after reading everyone else's experiences. he has had nothing! He just got very mild symptoms where he felt hot but no tempreture and then got cold. First of all I used to wait for a cold or flu to start but now we know it is the drugs

Gill

I took early retirement soon after Stephen got ill. I was a support worker for homeless people so did not have to "be suited and booted" for work but always dressed in skirts, blouses, sweaters,tailored trousers etc.

Since being home all day I have only worn a bra when I go out or we have visitors. I exist in very comfortable joggers, T shirts,…[Read more]

hi everbody

I would just like to tell you all how helpful I find this site,I never mention my partners name because his daughter does not know!! long story.

It is very hard sometimes I understand his feelings but as a very open person it is hard,he is just the opposite of me.If your can not do anything about it why worry about it!!!!

I…[Read more]

It i;-) s a good job i don,t fly a plane! my geography is terrible!

sarah

It certainly is addictive and I did not realise before just how bad my geography is!

Gill xx

hi min

gordon had sct in november, and he is only on acliovar (spelling!) when he remembers to take it, plus mouth washes which he point blank refuses to use, hates the taste!

hope thats helpful.

sarah8-)

hi jonny

Its my partner who has mm,I have found this site very helpful it has certainly calmed my fears.my partner is in his 5th day on myeloma x1 trials he got ctd branch.I can only say he is better than he has been for many months; Jets story is so similar to my partners.

I can only advise you to get things in place in advance,eg blue…[Read more]