nicki
I have only just joined this site,and to hear there is light at the end of the tunnel is good news.We are just starting are journey ,one we did not expect to be on.It gives me hope for the future,one thing I have learned from this site is to be positive,I thank you all for that regards eve

Blow you under 50s lot If there is any any anarchy going I want to take part and I am 60 🙂 🙂

Hi Jon

Sorry that you have been diagnosed but welcome to a site that nobody wants to join but is sooo supportive. It is my husband that has mm but although he is really interested in everything that is posted on here he is a moron when it comes to computers (brilliant carpenter but technically challenged)

Good luck with your treatment (and…[Read more]

Hi Annie

From one just about to retire district nurse to another!! I have always loved my job and am so upset that on wednesday, i will no longer be a DN.I have tried to be there for my husband, an mm suffer, and everything and everyone else, with the changes in the NHS, i can no longer work as i would wish. I started my training in '71 we were…[Read more]

So pleased that you are doing well. I remember letting Stephen come to Tescos with me when he first ventured out after his first SCT. I insisted that we go very late at night to avoid people, and he was as excited as a child being given a special outing to do something "normal" (didn't last long we have gone back to sqabbling (sp?) over who pops…[Read more]

hy everbody

When does this kick in my partner is only 3 days into dex,this morning he went off in a mood,because i did not want him changing bedroom round,complaining I should have had fitted wardrobes by now,

Aa well as coping with illness,I have had kitchen fitted,next bathroom ,double glazing planning consent to sought out,and when i told…[Read more]

my partners the same,stabbing pain right side,On oramorph 10mg a day plus paracetamolbetween oramorph.As he feels better he is doing more.

He has only just started first round of chemo,and have been told there will be no pain!!!!!!! he is a lot better than he has been for months.the pain at the moment seems under control. it is early days,we…[Read more]

I can only tell you when my partner had his problems it showed up on ordinary x-rays.the skull and shoulder blades,the reason they do mri scann on spine is because there are so many little bones its hard to see on ordinary x rays.

my partner was admitted within 10 min of first appointment.48 hours later he was like a new man,all test were…[Read more]

Hi David

Great news! Gordon having another check up in two weeks dont know what is pp is as Kings did not have the result when we went 6 weeks ago. Gordon only taking anti virals when he remebers! I have just has the most horrid cough and cold, gordon shows no signs of catching it,( he realyy is terrible nurse) even though his neutophills are…[Read more]

To gill and also dave.

Thanks for info on publishers calender I will try that.
The pills are something 10 cyclo 1st 8th 15 day 20 dex run for 4dayd thalid 2 everday,plus sickness pills.that is just from hospital the rest comes from doctor.We have been told that they have put him on the intensive pathway.This is from a man that never took a…[Read more]

Goodness

I don't look for a couple of days and everyone seems to be under the weather. C'mon you lot all get better. Stephen has also had a health scare displayed all the symptoms of a heart attack. Would not go to A&E and mentioned it "in passing" to the chemo nurse when he went for his velcade infusion the following day.

Had all the tests…[Read more]

Hi Eve

I do hope your husband's treatment goes well. When my husband was on his first cycle of CDT I designed a chart based on "publisher's" calendar. Changed to weeks and days rather than months

I have tried to attach an example and a template here but the system keeps telling me that they have an "invalid extension"

I managed to email…[Read more]

hi david

Have two boxes for pills,My partner insist on doing his own pills,but there are so many,some days its 45 pills other days as little as25.Plus pills from our own doctor.We have agreed that I check them as sometimes he can be confused becuase of condition.there has to be an easy way of doing this.

I hope someone can tell me of an…[Read more]

Hi Marion My partner started on trials today he was allocated to ctd group.Have found the last couple of weeks mind blowing.So much to take in and so many visits to hospital.Then coming to terms with illness and how it will effect future life.It is early days for us,the amount of tablets is mind blowing.CTD drugs then pain releave plus tablets…[Read more]

PS site would not let me type the poo poo word hence the stars

Hi Norman

Stephen (husband with mm) had his SCT at Kings College in south London. They were great he has to go back in for a further SCT and this time he wants to try and organise a daily newspaper as he really missed it.

The food was the usual c**p and the big mistake was that he wasn't offered a neutropenic diet. Mind you he did not want…[Read more]

Glad you are doing well Shirley. Word of warning re puppy our 10 week old is only JUST learning to poo and pee in the correct place. She looks so proud as she squats on the middle of the kitchen floor!! Her KC registered name is Courageous Cutey. Well she certainly lives up to that but we call her Anya.

I hope your GVH is very mild and you…[Read more]

Hi Gaye

You have every right to rant and rave it usually helps no end!!.Hope the drug arrives quickly, so sorry you are in pain there is nothing worse.

with love

sarah xx

Dear Bridget

I am so sorry, Dex really does needs locking up and never letting out till he/she learns how to behave!!:-(

Keep going keep, raising h…l amd hopefully you and yours will come out the other side.:-D

much love

sarah xx