Hi Min

Stephen's "hump" is not his spine but a mound of fatty tissue at the base of his neck. I googled "Buffalo Hump" and I think it is the nickname for cushings. He has been told it should go when the steroids stop.

He does have tummy slide He never actually had a beer belly but was way off having a 6 pack the tum he had round his middle…[Read more]

Dear Incredible Hulk AKA Bridget,

I am sorry you feel so wretched. Stephen is on Dex at the moment. He looks like a chipmunk, has lost his taste and has swapped his personality for that of Atilla the Hun.

It got so bad over the weekend that I lost it and shouted "I don't care if it is the Dex talking, you talking or the evil one from the…[Read more]

Hi Sharon

Sorry to hear your news, hope all goes well with your treatment. I am so shock that you had to quote NICE guidelines to get an MRI scan, it is a scandle, not many people including me know about this. Good to know that NICE has some positives it usually seem a total negative organisation!!!

(wish this site had spell check!)

All…[Read more]

Hi Keith

Try contacting the web team they helped me when I could not get on the new site

Gill

PS talking of eye candy where's your photo8-)

Hi All

We live in Orpington Kent. It is my husband Stephen who has mm, diagnosed November 2008 after the doctors first thought he had a trapped nerve. He had CDT and then a SCT in June/July 2009 in King's College London but sadly after @ 18 months remission Stephen has relapsed and is now on Velcade and the dreaded dex. We are hoping he will…[Read more]

Hi all

My husband gordon has mm fraid he is not a toy boy!! Big mistake. He was diagnosed 9 years ago and had a sct in 2002 which lasted 6 lovley years with gordon taking thalidnomide with few side effects, he then had a trial of revlamid, which kept him well for approx 2years ( b.. dex) then lapsed had 6 i think cycles of velcaid then sct in…[Read more]

Thanks Nettie!!

I have always loved tommy cooper,:-D i can never remember any jokes, my father in law used to rent a field off him ( tommy)on pevensey marsh, in fact i think my brother in law still rents it from the cooper family. I dont think father i l ever met him though, shame.:-(

sarah xx

I tried to say the law is an a… but was not allowed to!!

Ho Hum

sarah

thank you for making my horrid day end with me laughing!! It does make me wonder how clever some of these people are.
I did jury service once on a case which should never have come to court, 7 youngsters having a punch up on a hot saturday night in Brighton, they were all on legal aid and each one had a barrister, on the friday afternoon the…[Read more]

Stephen also has a PICC line in the crook of his elbow. It has not caused any problems and it means that blood can be taken and medication given through it without having to put a further needle into a vein

Gill

Thanks David!!!:-D 😀

Hi Bridget an Gaye

I love the danish Wallender i did enjoy K Branagh's version as well, but i can understand what you are saying gaye, and losing the will to live!! one reason i like the danish version apart from the great acting and story lines is that i have the telly to myself the rest of the family are to lazy to read the…[Read more]

Hya

ai have also never heard of a myeloma diary, sounds good for us with increasing forgetful disease.

Good luck min with your redunancy, hope the itching stops soon. Before Gordon had his last sct my teeth went black and the whole inside of my mouth was very sore and i had some difficulty in eating good way to loose weight.

all the best sarah

Hi All

Looks like humans have been reinventing the wheel since at least AD66!!

Thanks david

all the best sarah

I too have this on our office wall. At the bottom it states Caius Petronius AD66.

I have no idea who Caius Petrnius was but agree that nothing much changes

Gill

Well done you. Hope it all goes well xxx gill

I am so pleased that the biopsy fairy was there for you. Fingers crossed that your results are good Gill xx

Hi Min

I resigned from my job on thursday, the liberation i now feel is amazing why did i not do it sooner! I am not old enough to a pension yet, but i dont care we will cope!! I can reclaim my garden and fix the greenhouse and play with my grandchildren, yippee!!!

Sarah

Hi Brdget
So glad all was nearly pain free yesterday, hope the result is positive as well!!

Nurses are so awful!! There you were having a lovley sleep and they woke you up!! Typical!!

Love sarah