Hi Gaye
It must a relief to know what is causing the pain, hopefully the rt will help and you dont have to wait long.

All the best sarah

Hi David

Gordons pp went to nil after his 1st sct quite quickly i think then rose again 6 years later, spent two years on rivlamid and 'friend' dex, then rose again, 6 or 7 cycles of velcaid the another sct, we went to kings two weeks ago but dont know what the pp was as it takes quite a time for the result, as i am sure you know!

Have no…[Read more]

Dear Bridget

Hope you are having a wonderful, pain free birthday, I will raise a glass of rose to you, before watching silent witness!.

much love

sarah:-D 😀

Hi All

I will also be watching, i was so shocked when it looked as though Harry was gone, then shocked all over again when he turned up alive!!!

I will raise a glass to us all sados watching it, there is nothing else on the box.

love to all

sarah

Stephen has not been too well, he's now on velcade IV with dex as a side line !! It is all taking its toll but we collected the puppy yesterday

It was a good move in our life to get the puppy but very tiring. Our 2 year old westie, Echo (short for Ecosse) has always adored visiting dogs. Well what went wrong here??? She is now waiting for Anya…[Read more]

Hi Bridget

My mum left me a fur coat!!!

Love Sarah

Oh you rotten lot! I have only just picked up on this thread and am so moved by everybody's thoughts that it is hard to see the keyboard through the tears.

I too would like to say thank you to everybody on here for support, encouragement and some smiles.

Love from Gill xx

H Bridget

Lovley vision of you wearing your beautiful red shoes!!

Red shoes no k…

Or is red hat no k….

never can remember!!

best wishes Sarah

Hi All

As only a carer of a husband with mm, who has not had to suffer anything like you all have, spine ops etc, I am stunned amazed and privalidged that i communicate with you and you with me.

My very best wishes to you all and hope and pray that somewhere there is a miracle around the next corner for you all, and gordon!!

with love

sarah

I am really sorry Ron I am guilty as charged it was me that started the "made up" word of dexatude to describe the horrible attitude my mild mannered kind and caring husband gets when he is on the dexamethasone. I am truly sorry if I misled you. I do know that when I asked one of Stephen's chemo nurses about the mood swings he gets she told me…[Read more]

Hi Bridget

Hope you are feeling better bit by bit. I remember Stephen being told that the RT would not help the pain much to start with and did take a while for it to diminish.
love gill xxx

Dear Min

Thoughts and hugs, not too sure about the lolling tongue! Keep taking the meds.:-(

luv sarah

Hi David

Thank you for your reply, although gordons family is in denail and not at all helpful, we do have 2 sons and a daughter + 2 grandbabies who are just there, and are wonderful, always a silver lining somewhere!

best wishes

sarah

Hi Briget

Has the rt helped the your pain? As you are posting late at night I wonder if you have pain, i do hope it is improving. Seems as though you are having good care from your team.

with love from sarah

Dear Jean

How wonderful to have a family who ask how Frank is and care!! Gordon's parents seem think that he should pull homself together and it will go away,they are both in thier 80's and have never been ill. When Gordon had his 1st sct my farther in law agreed to check his(gordon) cattle, on the evening gordon got home from kings father…[Read more]

Good luck to Peter with the revlamid hope he does very well on it and good luck to you with Peter taking the dex. Stephen is on a rest week (no bloody dex thank goodness!!!)

Gill xx

PS like the new hair colour on your photo but not sure about the lolling tongue:-)

Hi Min

gordon did really well on rivlamid ( b….dex) for two years, very little in the way of side effects (b…..dex)!

we have a packet here at home i agree very cheap packaging i dread to think how much it is worth.

best wishes sarah xx

Hi Gaye

thank you for sharing such an amazing thought for the day. Like min I am a carer and have lived with this monster cancer for 9 years. I work as a district nurse so talking about cancer at work is second nature but still sometimes think why us but then again think why not!!

Even with my medical background i still feel i am in denial…[Read more]