Hi Gaye

I must download another photo!! but maybe if it causes a laugh i should leave well alone!
It was taken the end of a very long boozy wedding!!!

All the best

Sarah:-)

Hi Laura

I am so sorry your mum has been diagnosed with mm. What a shock for both of you. It is my husband with mm (diagnosed 2008 aged 53)

There is an under 50s site on here that may be of some help to you and your mum (I don't think they are that fussy about a year here or there around the 50 mark:-) . Can you talk to whoever is…[Read more]

Hi Gaye

I have not been able to post for a while (must have been gremlins in my computer) so am catching up. I do hope you are getting on better with your round of drugs.

As for your NIMBYs I am nowhere nearly as charitable as you are. I hope these NIMBYs DO need a hospice at some stage and there is not one for them as some other ar**h**e…[Read more]

Hi Kay

Sorry to hear such a bad time with the biopsy, Gordon has had sevral and each time the experiance is different, some pain free some like you experienced.

hope the results are okay

Sarah

Hi scott

A warm welcome to the site everyone would rather not know about but is such a help, I have no advice every mm seems to be so different! I do find the American sites scary so dont bother with them.

Sarah

That is very clever

Hi MIn

I am sorry that the Co-Enzyme Q 10 did not work for Peter. What strength was he taking? Stephen started out on 120mg which is what I was taking because of cramp due to taking beta blockers. It worked for a while but started coming back. He now takes 200mg and is much better.

Touch wood he does not get cramp in his calf muscles any…[Read more]

Sorry david!

I knew that conkers did something!!

Maybe quinine is the answer. Does tonic water have quinine in it? Maybe a few gin and tonic at bedtime may help until a script is available.

Sarah

Hi Min

I think i did read something about conkers in the bed!! Could have dreamt it or read in my witches hand book.>:-)

sarah

Hi Bridget

i do hope that you soon get relief from the rt, there is nothing worse than nasty nagging pain, hope you are taking some good pain killers, boney pain so difficult to treat though.

best wishes sarah

my mother made elderflower champagne once all the bottles blew up one night in the kitchen it was a revolting mess, my mother was teetotal, never did understand what she was up too!!

Bridget please could i ask you to cut the red ribbon on my shed opening? I promise proper champage + Harveys + hopefully fantastic acoustic music, i promise not…[Read more]

I have quite a new garden shed could i have a an acoustic opening as well? Not to good on the home made wine, local harveys beer is excellent! Cucumbers next door in the greenhouse ,could try to ferment them have a feeling they could be pretty awful!! Could make potingine (spelling) lots of potateos in the garden:-D

Sarah

Good Luck Gaye, Phil,Kieth and Min with all the new treatments, Gordon is recovering from his 2nd sct and vows never again, so i am finding it very helpful to read of the trail blazing treatments, though gordon had revlamid which kept the mm dormant for 2 years with no side effects except for the dreaded dex!!

Best wishes

sarah:-D

Hi Jean

Many congratulations, grandchildren are the best tonic in the world, your granddaughter is beautiful.

best wishes

sarah

Congratulations. Of course you are biased but you are right she is beautiful. Gill xx

Welcome back I do hope you are feeling well and getting back to normal Love from Gillxxx

Dear All

Thank you for the images!!! I have had such a giggle!!! Can't sleep so reading your postings has helped pass the night away!! Too dark to see my will, bet he is lurking under a choclate bush.

Sarah

Hi Bridget

So glad you are starting rx so quickly hope all goes well and you get rid of the pain!

best wishes

Sarah
ps hats still keeping us warm!

Hi Kieth

Good luck with the the pomalidomide, gordon was on a revlamid trail which gave him two good years without mm ( apart from the the b dex). He also had velcaid + dex prior to the last transplant and reponded well though his platlets dropped after each treatment.

Keep us posted and Gaye please let us know how things go it is great…[Read more]