Hi

As has already been posted, sorry you have had to join us but welcome!!!

My husband has mm and has just had a 2nd stem cell transplant in dec, the 1st transplant lasted 6 years of more or less a normal life. I think i often bury my head in the sand as i am sure that really gordon will get better really!! Idiot!
His parents don't really…[Read more]

Dear Bridget AKA Thunderthighs

I have found your will power, well at least I caught sight of it. It was running down my garden with mine. Your will power was covered in roast potatoes, bacon and bread and mine was dripping with chocolate and red wine.

I did give chase but because of the weight I have put on over Christmas the little…[Read more]

I have not read all the postings for a couple of days as we were away so I missed this one from you Min. I am so sorry that Peter's news has been not particularly good.

MM is so hard to track. Stephen was really well and feeling fine apart from a bit of back ache when we were told he had relapsed. What a shock

Gill xx

Good luck with the pomalidomide Gaye. It is so nice to hear that hthere are new drugs coming on line

Gill

Hi

Sorry you had to join us. As other people have said you will get loads of support and friendship here and sometimes a bit of a laugh about other things besides mm.

It is my husband who has mm. He had a Stem Cell transplant in the summer of 2009 He is now on a bucket load of drugs to prepare him for the next one.

He was Ok having the…[Read more]

Hi David

Great news so glad went so well at the hospital, Gordons app. post sct is next week not sure he is doing so well as yourself as he is still on GCSF every 5 days, but as you say onwards and upwards:-D

best wishes

sarah

Hi Sean

McMillan advisors are usually very well informed and know exactly how to fill in the forms. There are grants available and they will let you know if you are eligible. If you have a Maggie centre close to you they usually have an advisor on financial matters also. Let us know how you get on. Love from Marion

hi keith

Good luck with the velcaide, gordon had velcaide last april prior to him having a 2nd sct. velcaide work very quickly and he went almost straight into remission, no problems apart from the dex!!!:-/ he also has no probs with kidney function ect.

best wishes sarah

Thank you David!!:-)

What a great song we haven't laughed so much for ages:-D

We all have a great deal to lool forward to:-)

best wishes

sarah

Good luck Min I hope that you get your redundancy and enjoy more time doing the things that you want to do with Peter

Gill xx

Hi Roz

Thanks for letting us know how Michael's service went. I suppose it is now one day at a time for you. I think it is a lovely idea to take Michael's ashes to Teignmouth, but don't rush it. You'll know when the time is right.

When my dad died the funeral director had a tick list and automatically went to tick off "ashes = garden of…[Read more]

hi gill

good luck with your new addition. there must be something in mm drugs, gordon was very dissapointed that there was not a collie pup in his stocking!! our working collie is showing his age now, until he sees a flock of sheep, then he looks 2 again!

i will buy him (skip) some flexijoint min sounds good.

all the best

sarah

hi min

hope you get accepted fingers crossed. i wrote my resignation in june still on the computer! i relly think i need also to give up so many other things to do plus working plus soupporting plus time off for hospital apps is getting me down, not helpful for my nearest and dearest.

i wonder if i am being selfish to carry on working and…[Read more]

hi shirley

great to hear your great news, amazing what can be done with drugs and willpower! Gordons hair grew back thicker and not so grey still had his bald patch, waiting to what happens this time, still very bald wears his hat all the time.

Were you given the option of a wig? some wigs i saw at kings were lovley grat for keeping the head…[Read more]

hi keith

sorry to hear about round two. gordon is on round two and responding slowly but he is getting there. there seems to new treatments coming on line all time for mm.

good luck

sarah

I do hope erverything went well today Roz
Love from Gillxx

Hi Jenny

I am pleased that your dad feels a little better. I do agree that a care package would help a great deal when your dad goes home but I can understand how fearful your step-mum is.

When Stephen was due to come home after his SCT I wanted to beg the hospital to keep him in. I was terrified that he might get an infection or I would…[Read more]

Thanks everybody for your good wishes. It's another West Highland White Terrier Min They grow to be about 12 inches high and think they are 12 feet. Like Peter our Westie is what gets Stephen out of bed He walks about 2 or 3 miles with her every morning come rain, shine, snow or hurricane.

Roz I know that Michael was confused towards the end…[Read more]

No ofeence Sharon just a scracthing of head (hair!) and wondering what colour would be under there. Even at my age I am still too vain to find out 🙂

Gillxx