Hi Keith

I can understand why you are feeling down and the whole thing must be so tiring ,ask you self how you would feel this time of the year without having MM.most people feel a bit washed out,cold weather rain,and with you the added trips to the hospital,
I would try to look on it as just a blip,we all know how even a cold can effect…[Read more]

Hi Heather

One more tip take a pad and pen when you visit the consultant. Even with 2 of you listening carfully it is easy to not remember it all

Godd Luck Gill

Hi David

You would have been first to put your hand up.David,we all want the same thing,a cure,David Ian sure before your time is done,new trials will be coming along,and I believe passionately this is the way to a cure,saying that it,s Slim who takes the Drugs

My admiration goes out to all myeloma patients,even the ones who decide no…[Read more]

Hi Peter,

Just to wish you good look with SCT,not very nice at the time,but if you achieve extra time it,s well worth it.

A few tips for you,take your own mug in,as hospital vessels not big enough,take old clothiers that can be dumped,I can assure you if you do have any accident s your wife will not want to take your clothes home,physo…[Read more]

Hi Babs

my husband had his SCT,on X1 trials,then was randomised for no treatment,at first,with the knowledge of no treatment follow up,it felt very strange,but now we are looking at it as a bonus after 2 years of constant treatment,he attends hospital once every 2 months for Zometa,and at the moment consultant once every 2 months,this gives us…[Read more]

Hi Maureen

I would not base your knowledge of one department on were you should have treatment,your husband ,s treatment for spinal work,might be different from the cancer unit,some have just designated wards and some are better than others.
My husband had a choice of 3 local hospitals for treatment,we chose the one first attended as he had…[Read more]

Hi Peggy

Sounds if you have had a bit of a do,do not rush getting out if you are not right you will only find yourself back in,in no time.

As for the comb over have a word with a nurse,see if they can find scissors ,must have them in a hospital,they did in my day.

Best of luck hope things start picking up for you.Eve

hi Heather

it is a bit mind blowing when you join this club,lots of information to take in,it,s a learning curve,try not to worry ,you will in time learn all the jargon,and will become an expert on your husbands condition.

my advise is get in touch with Ellen she can put you in touch with someone who you can talk on the phone so you do not…[Read more]

I suffered from cramp when I started on beta blockers . My cardiologist recommended I take Co Enzyme Q10 200mg at night
When Stephen started getting cramp because of his mm we checked with his oncologist and Stephen was told it was OK to use them.

They are a natural food supplement not a drug and take a couple of days to kick in. Min…[Read more]

Hi. Chris

Just read you. Post with great interest,my husband is not in your position concerning SCT second time round so unable to comment,just storing info for future ,as we all know MM will find you.

I can say I think Velcade is a not as harsh as CTD,but y ou do spend more time at the hospital ,I would like to see Velcade given as a…[Read more]

Hi Sue
I just cannot believe this is happening to you.i do not think it is different we're every you live.

You should have a package sought end by now it can be different depending on your needs.were is you local surgery,in this get in touch with the district nurse,she should be able to sit down with both of you,and decide what you…[Read more]

Dear Sue

Has anybody suggested that Michael go in to your local hospice for some respite care? It can be a chance for you to re-charge your batteries and catch up with some much needed sleep, knowing that Michael is being looked after 24/7.

Our local hospice was marvelous. They had Stephen's pain under control straight away and they are very…[Read more]

Hi Sue

I would agree with |Tin,I know you feel how an earth are you going to cope,but you will find that inner strength.

I have 2 friends who have both lost there husbands last year,one to Myeloma and one to lung Cancer,both stayed at home and both had different deaths.
Both the wives coped and have no regrets,I wish I could say I was there…[Read more]

Hi Trish

Yes it is wonderful that first holiday,after SCT,as you say you just could not believe this would be possible after Myeloma,so just go out there and grab a slice of life.

we are just back from NZ,blood test Zometa then consultant,and with a little bit of luck off to France in our motor home,then home for 1 st march as my daughter…[Read more]

Hello Dai

It is nice to hear you are doing well,with this new treatment,I just want to wish you well and to let you know although Slim has moved to remission,you are never very far away from our thoughts,I know the last few months have been hard for you, I wish you a good 2013with not many hiccups. Love Eve and Slim

Hi Tom,

With baited breath and anticipation,now I know why you drink vodka,you cannot smell it,( only joking ),it is the reflection time that hurts,that,s why it is so nice that Tina can reflect and enjoy the memory.

This is what is good about this site,people understand what you are going through plus the feelings which do come to the…[Read more]

Hi Tina and Tom,
Happy New year to you both,this New Year seemed very strange to me,as We were going backwards in time on our journey home from NZ,and a;ways at new year your mind goes back to the last year,and you cannot help but ponder and reflect about the good and bad of the year,and wonder what the future year will hold.

the year 2011…[Read more]

Hi Gill

I am in NZ,one daughter in Turk and Caicos island,Ruth lost Matty is this Christmas is hard for all are family but we might not be allot get her,but Matty is never far away,so no matter were you spend Christmas,there will always be that feeling of absence .

Gill you have your grandchildren to keep you going,so promise yourself,you…[Read more]

Hi jean

Symptoms are palpertations,but have to be very low,drugs are awful to take,so stuff him with bananas plus apricots,make sure he eats at least two a day,that a potassium aby way.if he starts to feel unwell it's a bit like starting a heart attack,it is important that it is corrected,why not go and collect physcription.

Have a good…[Read more]