HI Keith

Well,you answered your own questions,so does that mean it was not so much of a shock or is it a combination of relieve plus your ready for the next hurdle,??? I am amazed that I could not find a lot of trials for people in your position in the uk. To put it bluntly you must feel any new trial offers some hope. I looked at cancer…[Read more]

Hi Ali

Must admit I felt cheated for Slim,I had done a lot of research and 33% chance of no treatment and 66% of treatment,Slim got no treatment,to be truthful felt deprived,and I am just a carer lol.

Saying that have got my head around it,now looking forward to 6 weeks free,then 2 weeks of test and consultant,so there are some good points…[Read more]

Tom I have to say it,you are as bad as Slim,

Slim was being sick and I went out to the desk and spoke to the doctor who said he could go home,as long as he was not sick, mhhhhhhhhhhhh.He had told her he was not being sick earlier,I told her," he tells lies",who did she believe,An ex marine who could look you in the face and lie.

I rest my…[Read more]

Hello Stewart

Well a very bonny welcome,and congratulations on your new baby:-)

Well MM is the last thing anyone needs or wants,but saying that on here you are going to see and hear lots of people who live with it for many years,so you will learn to cope with it.

First may I say forget that diet,you will need all your body to sustain the…[Read more]

Hi Keith

You sound very down,and who can blame you,I would agree they know the results,the meeting will be to decide the next treatment,in some ways they are trying not to leave you in a state of not knowing,but they forget,you become an expert on yourself.My advice is look on here at all the trials taking place in you area or not,and go armed…[Read more]

Hi Chris
Sounds if things are going well,they have taken your tube out,well well they must think you will not need any extra,s to help you improve like platelets.So that must be good,when you start feeling better you tend to want it to constant,well everybody is going to tell you it will take time,its something you cannot rush,if you stop and…[Read more]

Hi Carol
I am so sorry Carol,cannot help with PAD,Andy is the one to help you as he had PAD but it did not work for him:-(

Your right,you do not have to put on a brave face here,we do understand,although Slims in remission,the brain says when do we have to start going through this again,never said at home but the thought is there,then I give…[Read more]

HI Eric
Hello and welcome.You must be wondering why you have not had any reply,s???

Well if i may explain,because you went into an old thread,although it shows a posting it has come on screen in the middle of an old posting.The best thing to do is ,log in go to the first section,which you did,then scroll down to start discussion ,then you can…[Read more]

Hi Sue
May be the answers lie in what you did not hear!!!!!

When Slim was being taken to ITU a doctor in front of me said to him,you are being taken to ITU "I cannot promise you,you won,t die",he did nor ask and he cannot remember:-P.

Sue you need to speak to someone may be a consultant or your own doctor,you need to ask for a second…[Read more]

Thank you all for your kind messages and thoughts.

I am learning to start getting into my own routine and not "our routine". I walk the dogs, clean the house (lazily :-)and shop daily so I have human contact I even go out for lunch once a week. I am trying to find out about part time courses one to brush up my French and one to make my stick…[Read more]

Hi Phil

This disease has no normality,so one persons story,has no baring on your,s,my husbands neuts and platelets took a long time to become stable.The thing they look for is,although the neuts dip,they look for a little gain each time,my husbands went down to o.3 when he was taken back in,he is now 6 months on and plates are 84 should be…[Read more]

Hi Sue
If it is any help Sue,Slim had panic attacks when in ITU,and of course I was not there,and I was there 20hrs out of 24.made me feel awful,but he did say to me they were bad dreams,and we did talk about them after he came home.

So glad to hear he is coming home,make time just for you and Michael,you will need all your strength in the…[Read more]

Hi Emma
Glad to hear your mum is feeling better,there is so much to learn when starting treatment,so it is a big learning curve.:-)

When your mum starts treatment everything will be explained,about tablets when to take them and the best times,there are a lot of tablets so go out and buy a pill box,and make a chart makes life easier.

Kidneys…[Read more]

Sorry Debbie
Must have had one of my moments Dad became Mum:-/ :-S 😛 Eve

Hi Jo

I have only just read you post and realised you have started treatment again,So sorry Jo,lets hope by starting early it gets you into remmision early.

Velcade worked for Slim the worse part was going and waiting so long for an injection that lasted seconds.
Good Luck with the treatment Jo,Love Eve

Hi Mavis
I am so pleased for you,lets hope you mobility gets better as you get stronger.Love Eve

Hi Debbie

No one says you cannot drive,to me it just seems reasonably not to drive whilst taking heavy drugs,your mums treatment might only go 4 to 6 cycles,so no reason why she cannot drive the rest of the time.
As for insurance you are supposed to inform them of any changers:-/ but if you cancel your insurance and after a year take it up…[Read more]

Hi Sue
As with Myeloma every person is different when in your situation,and also react differently,You have to do what is best for you.

I have a friend who use to be in the same position,she used to be worried how she would cope with the practical side of nursing,her husband chose to stay at home,he did go to respite,to give her a break,but…[Read more]

Hi Vicky
It will soon be over and Colin will start to recover so fast,it is heavy going,for both of you,I went in to the hospital every day except once when I went to a funeral,the funeral seemed light relieve compared to going in every day,

When Colin comes out the hard work begins,so you must try and rest now.
You soon forget,they do…[Read more]

Hi Trish
That is lovely news,worry always there in the back ground,but say to mm and worry(s-d It),this is your time so enjoy.None of us know what the future brings8-)

We are off to NZ on the 25th of Nov.return New Years Eve,it is exactly 34 months since we have seen one of our grandchildren,the other one flew home with are daughter last…[Read more]