eve replied to the topic Proper fed up… in the forum Side-effects 13 years, 8 months ago
Hi Dai
Well one time I would have just done as I have been told,I have had Slim in to hospital twice since he came out on the first on June,both times raised temp,plus visit to DVT clinic,his nuets and plates are still below normal ,so I think best save than be sorry.:-P
I was told if he is ever sick bring him in:-S ,well if i took him in every…[Read more]
eve replied to the topic Revlimid in the forum Treatment 13 years, 9 months ago
hi Pennie
You do not say how old your are,your husband is entitled to Attendance Allowance ,it is not subject to how much money you have,plus you might be entitled to carers allowance!!!.Worth seeing about .
I cannot help with the REV.but you have coped with other treatments,my husband is retired,but I do get concerned about him driving,so I…[Read more]
eve replied to the topic Smouldering myeloma in the forum Newcomers 13 years, 9 months ago
Hi Beverley
This is just a welcome to the site,and hope you keep on smouldering for many moons.
By being diagnosed early,it means they will keep a careful eye on you,learn as Much as you can ask Ellen for books on it.
My husband went full in to MM with a lot of damage,and we do not know how long he had it.
So my advice is learn as much…[Read more]
eve replied to the topic Colin the sequel SCT in the forum Treatment 13 years, 9 months ago
Hi Mari
Amazing we are 70 miles down the road,and had nothing but sunshine all day,a bit windy,I watched my daughter sitting in Wimbledon with just one quick shower,It came down at my other daughters nr.Dover in sheets,but did not rain much 9 miles up the road.:-S
I think they do have different polices on different wards,as Slim was in Davidson…[Read more]
eve replied to the topic Colin the sequel SCT in the forum Treatment 13 years, 9 months ago
Hi Everyone
The procedure working up to a sct differ from hospital to hospital.
Slim was like Steve,s we travelled up from Deal that day and got back at 8pm.
Slim did his own injections,we did stay up in Kemsing for the harvest as it took 2 days,Slim found it tiring he was dosed up with Calcium through a driver,because of feeling sick.
At…[Read more]
eve replied to the topic New Need to talk in the forum Carers 13 years, 9 months ago
Hi Teresa
I know this is a hard time for you and your family,I hope you have a palliative care team,coming in to help you.
I can only send you my best wishes,and hope you achieve those small goals,that you talked about.Peter has a goal with the grandchild on the way.
Love Eve
eve replied to the topic Proper fed up… in the forum Side-effects 13 years, 9 months ago
Hi Dai
Well in truth you have been here before,and you know the routine,but you know you will get over this little hurdle,you both sound if you need a bit of a break and some pampering!!!!,can you do anything about that, I know as a carer how much it takes out of me,some times I just want me time.years ago i use to cook for England,I realised…[Read more]
eve replied to the topic Tickets for Wimblendom in the forum Off topic 13 years, 9 months ago
She did Dai
They had excellent seats and said it was well worth going.
She phoned tonight to tell me she has won a holiday for 2 for I week to the Bahamas,adults only with a choice of 3 islands,Her husband did not believe her,thought she was joking as she never thought to tell him she had entered .
Someone up there is looking after her.
eve replied to the topic Post SCT Sickness in the forum Side-effects 13 years, 9 months ago
Hi Gary
Slim had his SCT on 13 may and came out Ist of june
He still takes ante sickness pills used to take Ondansetron but known to make you constipated,so now on Domperidone he was given 2 months supply by Kings,he takes them 30 min before meals,but does eat in between mealtimes.
If your sister is having all this and is still being…[Read more]
eve replied to the topic Tickets for Wimblendom in the forum Off topic 13 years, 9 months ago
Hi Jo
Nice to hear from you:-)
I feel much better now,as not going to the hospital so much with Slim,and that by itself is great,as i can get food and drink more regulated at home.
Not needed any platelets so that is a bonus,he is looking a lot better,although he still try,s to over do it,next will be BMB to see if it has worked,then plan…[Read more]
eve replied to the topic Hickman Line in the forum Treatment 13 years, 9 months ago
Hi Ali
Good to hear things are going ok with your mum,
You make sure you take it easy as when this is over ,I think it,s when the hard work begins for the person who is doing the caring,it can be a very emotional thing as well as being aware that it takes so much energy away from your mum.
I kept the Grandchildren away for the first month,and…[Read more]
eve replied to the topic The Answers in the forum General 13 years, 9 months ago
Hi Andy and Steph
How do you feel about it all!!!! has it answered some questions.!!! Do you feel that everyone is trying there best for you!!!.I think over all you must be pleased even if you are unique.
Well you might not see it at this moment,but you have made the big boys sit up and take notice,
You have your answers and you know were you…[Read more]
eve replied to the topic Starting Padimac trial in the forum Treatment 13 years, 9 months ago
Hi Judd
How are things going,I see you did not get many reply,s I know Andy G went on them,plus another person.
I have bumped this up to the top.so if more people see it you might get some reply,s let us know how you get on .Eve
eve replied to the topic Kyphoplasty in the forum General 13 years, 9 months ago
Hello Myra
Welcome to the site,
You have listened to the doctor,s what do they say!!!!!
My husband is the person with Myeloma,and he has damage to his bones but no compression on the spinal cord which is a good thing.If he was in danger of compression he would not have much choice.As for pain yes he is in pain,and has strong pain relieve,his…[Read more]
eve replied to the topic Tickets for Wimblendom in the forum Off topic 13 years, 9 months ago
Hi Jean
Lets hope so,some one on the net said blackmarket asking £45,000 for tickets,but you would have to use a forged passports as they check ticket belongs to person who enters.
2 0f my daughters always put in for tickets and have done well each year.
This is the best though.Eve
eve started the topic Tickets for Wimblendom. in the forum Off topic 13 years, 9 months ago
Hi Everyone
This is off topic,
My daughter has tickets for the men,s final at Wimbledon, 7 rows from the front,not up in the gods,she is so excited,and its so nice to see a smile on her face with all the sadness that she has had. Eve
eve replied to the topic Some good news in the forum General 13 years, 9 months ago
Hi Ladies
Great to hear all the good news,but as per usual were are all the men!!!!!
eve replied to the topic 50th wedding anniversary in the forum Off topic 13 years, 9 months ago
Hi David
How about renewing your Vows,I should imagine as you got marries 50 years ago,things were hard,Do it in style,a lovely day to remember.Eve
eve replied to the topic PLATELETS in the forum Treatment 13 years, 9 months ago
Hi Helen and Tom
Well he is holding his own,went down to 61.4 now 62.2 so not to bad.
As you can guess from his name ,he has always been Slim,he looks very healthy at 12st 8lb.But 9st 8Lb gives no room for any extra that might come his way.
My thanks to you both,for your support,it does look if he has turned the corner,had bloods taken…[Read more]
eve replied to the topic Myeloma changed in the forum General 13 years, 9 months ago
Hi jean
Just a quick reply.
There should be a notice some were that tells you ,you have every right to see results of test,and bloods are test.Next time get 20 pence out of your purse and give it to them and shame them,how dare they not give you a print out!!!!!!
At the moment I know the results by phone but every week or so I ask for a print out,Eve