Hi Jean

Well you know about Slims bloods plus kappa light chains!!!,the bloods only give an indication of the cells,If you ask for a copy of the bloods every time you go,its states the results if they are out of the band they should be in it will show you.This way you can keep your own watch on them.

Eg haemoglobin 9.2 g/dl (13 to 18 )…[Read more]

Hi Stephen
Like you style,how about staying alive by the Bee |Gees for you next bit of music.
Its good to see that staff are quick on the ball to relieve any side effects, sweet corn last a few days,must admit its not the nicest of smells.
Carry on with the music.Eve

Well its the early hours of Friday morning,and Slim is wide awake,so I am up,with a nice cup of tea.:-)
NO Platelets this week8-)Monday bloods,Thursday a hospital visit we did not expect,Slim could hardly walk,had to be checked out for DVT,went through GP who sent us to a different hospital.All was ok,
Today it,s bloods nice and early so with a…[Read more]

Hi Its only me,

What can I say,You new it was coming and I hope you were ready to let go.
It still comes with lots of emotions,relief you mum is no longer suffering but you have lost you mum,who was an important person in your life.

My condolences to your Dad sister and yourself,I wish you all well on the next stage of your journey,Love Eve

Hi Sarah

It is a different ball game when its your choice,if chemo is refused then palliative care is next step,then it comes to hospice which has a certain policy concerning care.
IT sounds if Howard has chosen his path.
It must be awful for Gail,I can look at both sides and see merit in both.Eve

Dia LOL still laughing,oops got to go the loo.Eve

Hi All
Can i put my two pence worth in!!!
I can not comment on the treatment because Slim has not had it, but and its a big whopping but.Slim had an anti sickness tablet that caused constipation.So much so .I ended up walking out of the hospital with the biggest carry bag of bowel stuff i have ever seen.
Movicol twice a day Lactulose three 5ml…[Read more]

What lovely posts

I agree with Dai Bridget will not be resting on her laurels but making friends and welcoming everybody. She will probably make people some very angel like brocho hats.

Thank you so much Bridget for your support, words of wisdom advice and, sometimes, just some silly fun.

With much love and sadness from Gill xxxx

Hi Andy

Well good luck for Friday,either way I think it will be a great relief.You will know what you are fighting so you should be able to take part,and do some research towards that treatment,you have jumped so far ahead with different treatments in so little time.
All treatments need time to work Velcade they say 6 cycles and like to know…[Read more]

Dai
I would do it now,but my dead mother in law use to tell people i started the G&T at 10am,but you have no excuse enjoy one then have a snooze,Bridget would be laughing at that, Eve

Hi Dai
Bridget amazed me,as I know from the amount of pain relieve she was on and still in pain,how hard it must have been for her,they gave her another hurdle to jump and she put her self forward.
She had the will to live,thinking always about her daughters and her mum,always there for them,Grandchildren as well,she has left her own goodness…[Read more]

Hi Everybody
Just got in,I have been down to the sea front walking and thinking about Bridget.
I hope she is there with her family looking on,I hope her daughters are strong.
They say things happen for a reason,and this is one of the times you think life is so unfair,Bridget is no longer in pain and to me this must be the blessing in her…[Read more]

Well Andy what can I say its almost if I have started a ball rolling,did not mean to just found it strange so many treatment with out real progress or time for progress.

If I was you I would ring up your consultant and ask to see him!!! he should be able to give you time away from the clinic!!!!! don,t go on chance.

Have your list of…[Read more]

Hi Cinzia
Hello and welcome,
i think like me a lot of people have missed you joining the forum,because unless you have a related condition you tend not to go in to that subject.

My post now is just to say welcome and hope you have a good response.Eve

Hi Helen
Hope you are feeling better,not nice at the best of times,but must be an added worry with Myeloma even when in remission.

I can understand you wanting to get back to normal,and go back to work,there is a nurse on the chemo unit,who has had treatment,her words were[ i just want to be normal],I did not ask much just talked about her…[Read more]

Hi to you all
Tina I can only tell it from Slims side,had a few problems with his bladder side,it was an infection,antbiotics given.another side effect way down the list.
I must admit I gave in with Slim at one point tried commode plus bottle,to him it was a no no,I kept telling him be ok once he was feeling better,he was not having any of…[Read more]

Hi Gail
I am so sorry Gail,you must be beside yourself with worry.
Some times people choose there own fate and it must be awful for you to watch,it does happen some people choose,not to fight.
I can only imagine what it must be like for you as the carer.Howard is a very brave man,his decision must have been hard to not fight and leave his loved…[Read more]

Hi Gail
Howard can fight back but he needs all the help you can give him.
You do not say if he is on a ward or in ITU.!!
If he is on a ward get the dietician on board,and be there at meal times and feed him,even if it is only a few mouthfuls plus stay by his side and make him drink,its hard I did it for 22 days.Take anything in he will eat.the…[Read more]

I have my fingers crossed for you both, and hope Howard picks up soon. Have the hosital offered him any build up drinks? You can buy them from the pharmacy as a food substitute.

Kind regards Gill

Lovely to hear good news Good luck Gill