Hi Gail

Sorry to hear henry is having a hard time,may be a little time in a hospice is what he needs.They will be able to get his symptoms under control and help with his anxiety this is what they do and a very fine job.

You said your self Henry,was behaving so out of character,I think we look on hospices as a place to die but they do so…[Read more]

Hi Terry
I would agree with all your thoughts and what a beautiful picture of Scotland.
You have to keep positive,and enjoy every day.Eve

Hi Chris
A belated welcome to the site,one minute you have everyday living and in the next minute you have joined the club as a carer.

In my mind Myeloma is a dreadful thing,your life does get taken over by it,we do hear of some people who sail through treatment,and go on to live as normal as possible,but we all have the knowledge that one day…[Read more]

Hi Andy
I know how hard it is to remain positive,but it has started to go down,very slowly but it is in the right direction.When Slim was on Velcade it was awful waiting,he had to have 4 cycles before they would take a BMB,as bloods and light chains were considered un reliable as they were not showing a true reading,and on top of that the…[Read more]

Hi Everyone

Well he is home.Frail and bald with a good weight loss.so the time has come to build him up again,other wise buy a new set of cloths:-P

The journey down took 4 hours with a stop on the way,have to go back up on Thursday,and also have to go to Canterbury Hospital on Sunday and Wednesday.
He is busy writing his board out for all…[Read more]

Hi Deborah
Welcome to the site,I think Dai has summed Velcade up.
My husband had 6 cycles and found it better than having CTD but he had a few problems with the first line treatment.It does depend on your mothers age how many injection she has in one week,the older patients (80) seem to have one injection.My husband is 67 and he had 2 injections…[Read more]

Dear Carol
I am so sorry for your loss,you do not mention if you have children,if you have they will give you the strength you need at this time.

I think you have to ask yourself would you wish him back in such pain,do not grieve for him,but grieve for yourself,he is at peace and now you have to find your own peace.You have not had much time…[Read more]

Hi Dai
you can lead a horse to water but you cannot make it drink!!!!you name it I have tried it,he understands how important it is,the least mention of a drink,and I am badgering the kitchen or off to the shop.he said he feels like knocking back a pint,but cannot do it,small cold sips is his limit.
All the thing he is lacking are on drips,plus…[Read more]

Hi Eva and Sue

As you know slim is in the middle of his SCT.
He went in on a Sunday, only 50% of chemo given on Monday,the next day was a rest day,them harvest fed back.he is not recovering very quickly a bit at a time,he has had his own platelets plus some more plus injections of growth factor.His platelets stood at 7.5 last time I…[Read more]

Hi Tom

You have not walked down to Tesco,s and watched all these men standing there unable to decide on the washing powder to buy!!! Lol .I have a confession to make Tom I have not ironed for over thirty years and very seldom use the washing machine,Slim thinks I do not do it good enough!!!!,so that's the secret never be good at doing it.…[Read more]

Hi Teresa

I cannot think of better goals to aim for than the birth of a child and as we are. Both twitchers in a small way,it's lovely to see the birds in there mating colour,s not that we have any exotic birds around us,it's just nice to watch there behaviour.

At least they are keeping the Myeloma from rampaging which will buy you time,plus…[Read more]

Hi Sue

I understand were you are coming from but it will do you good to have a bit of me time,feeling guilty about it is natural.

I am very much the same I spend a lot of time in the hospital with slim,it takes me 1hr to get there,buy the time I get back my day is finished,buti am aware I will have to pace myself as I will not be. Much good…[Read more]

Hi Eliza

How an earth do you manage with a husband who cannot use a washing machine,!!!!

Teresa how are things going with you, I hope you and you husband are finding some quality of life,try to hold on to the thought the experts are not always right,some times you must have goals and dreams to hang in there.Slims goal is New Zealand,we have…[Read more]

Hi Paul

Sorry to hear Velcade did not work,I think Andy G had the same treatment,may be it is an age thing as you produce more cels the younger you are ???

You must be feeling a bit down,it,s easy to tell you there is something round the corner but your options are getting reduced,I know some people have had SCT with a higher count might be…[Read more]

Hi everyone

Well Dai Slims mind set is never again,told him it,s a bit like having a baby will forget the bad bits,(no sympathy).

In Kings they keep them in for a month no matter what,so he has been warned as to drips,I can count three at this present moment plus pump,they do not do ice and do not encourage any food other than hospital food…[Read more]

Dear Bridget
I have not been on this site for many months, I am so sorry you are having such a dreadful time, I can only repeat what Gillyhas said in her post, I too still have the hats you so kindly knitted for Gotdon. Hang in there.
With love
Sarah xx

Hi Eve
Just read your post, I so hope slims sct is still going well. Gordon went to kings for both his sct, the second time round I thought the staff much improved, and the care so much better, his cell also has several cleans. Not so keen on some of the aragant young drs though.
Good luck and I hope slims continues to do well.I won't ask you to…[Read more]

Hi jacque

My husband is in Kings having hit SCT at this moment,just getting his platelets, dong fine but is having problems eating,has come out with a rash on his legs but it does not seem as bad as I expected.

I think he has his low points in the morning,build up of throat over night plus feeling sick and rushing to toilet,expects to be…[Read more]

Hi Sarah and Henry
Well done to both of you,Henry is doing very well it only seems like the other day you joined the site,and there you are SCT over thinking of going back to work and doing the race for life.

Well done keep the good work up,Eve

Hi Helen

A beautiful place and its nearly winter there,I enjoyed the peace you do not have the flight paths or the motorways.

Slim and I next year,hoping to do Christmas but will have to see.
Have a lovely time. love Eve