Goodness Dai 10 months makes Stephen's 16 months a lifetime:-)

It is heartbreaking to find that things aren't holding back the mm. I love your positivity Dai a lesson we can all learn from

Stephen has learnt to never ever talk about "when I'm gone" I am not in denial but can cope with "well if I go first" any others out there as silly as…[Read more]

HI Dai

I look in on the myeloma group now and then, thank you for still thinking of me. I wish I could say I am moving on but it really does not get easier, living and loving another person for 36 tears + is not easily got over!
We are lambing at the moment and I am shattered and too emotional, but we are getting though it with loads of…[Read more]

I don't know how I missed your post at the start a belated welcome from me
Gill x

I am so pleased that everything went well and you all had a chance to celebrate Derek's life as well as mourning his death

Kindest thoughts Gill xx

DEX!!!!!!! How I hate it and am grateful to it at the same time. Stephen should be on it now as it will be used as part of his maintenance regime. It has been held back for the moment because of his shingles.

When Stephen was first prescribed it the dose was huge and Stephen was horrid but for ages did not recognise that it was him and not me.…[Read more]

Dai I am sure that Janet will back you to the hilt. GO you only get one chance in life and you should grab the opportunities

I want to wrap Stephen in cotton wool and keep him close to me to take care of him, but I know that whatever life any of us have should be lived. Stephen is not a stupid person. If he ever fancied bungie jumping he is…[Read more]

Like everyone else Welcome and wish you were not here

Please ask away My husband (Stephen) was diagnosed at 53 and that was considered young then (2008)

Everybody on here will be only too pleased to chat, answer questions when they can and give you support. Do try the under 50s group too. I keep trying to convince them I am 16 (I'm 62 but…[Read more]

Cough relief

If it says balsam on the label and it is thick and brown Oh Boy does it relieve a cough.

Cures bugger all BUT taken in a little drop of very hot water it soothes no end.

Some of us oldies still have helpful ideas My mum would be 98 now and shoved Owbridges balsam down my throught every time I coughed. I don't think you can…[Read more]

I am not sure what Dai meant but I know it was good wishes and hey Tom I never forget any of you I don't post as often as usual but only because the Internet connection in the middle of the French wilderness is very hit and miss (more miss than hit) I can read you all most times but answering is a nightmare. Very frustrating when you are as…[Read more]

I am sure that you can all imagine the joy that I felt this morning phoning the b and b we use when we go to France (the days of doing the 16 hour trip in one go are long over for both of us) deux personnes deux petits chiens chiens d'une nuit svp.

With the receptionist's little bit of Engl;ish and my little bit of french. We are on our way…[Read more]

YIPPEE

It seems to be Bugger All

All your crossed fingers have worked:-) 🙂

Thank you all

France Here We Come

Hi Teresa
It never ceases to amaze me how many carers cope for years,on there own,not just people who are away from their family,people who just seem to manage on there own.

I am not one of them,I found this forum last year and must admit if I have any doubt or do not feel things are going the way they should,I tend to come on here and gets…[Read more]

Hi Everyone
Well Tom it,s good to know I am not a deaf grey haired old lady and Slims not got a Complete chemo ,brain.my daughter came for the first meeting for a SCT and she confirmed to me its not panning out as explained.
Explained to us as 2 consecutive day of test,then decisions ,then cyclo and injections then harvest then SCT.

After the…[Read more]

Merci tout le monde de vos bons souhaits

Thanks all for your good wishes (I hope I got that right. It is quite easy to say something very rude in a language that is not easy for you hence the true story of the guy in France that asked for penis flavoured jam (wanted pine flavoured honey, and NEVER say I am hot as it means your feeling sexy8-) I…[Read more]

Dear Janet

It is a setback to find you have relapsed. My husband was diagnosed at 53 and had 16 month remission before he relapsed. He had a second SCT which did not take and has just had a course of revlimid. His pps are not too bad but there is other damage showing that the drugs are not working.

He too suffers from chest infections and…[Read more]

Thanks for crossed fingers Eve.

I hope you get to France soon. Funny thing is Stephen's heart is very much in France but, try ashe may, The language defies him.

Love from Gill xx

Hi Bridget

Thanks for that tip,It has always been the case they are not obliged to tell you about all the help you can get,some things are very wrong with our society.

All this media attention,has increased attacks on disabled people,a couple of months ago,Slim was verbally attacked at the bank,he was on sticks and sat down,a man next to…[Read more]

Hi Gill
My fingers are crossed for you:-)
Why do men never tell you what,s going on ? Slim says it because I make a fuss and would cart him off to hospital!!!!,I call it caring !!

Lets hope its just a blip Gill,and you will get that holiday. I envy you,being able to get away,it is now 17 months since we came back from…[Read more]

Hi Jean

So sorry to hear your news,even if it is expected,you still feel the blow.
Do people take comfort that people they love are no longer suffering,or feel there is no justice that some ones life has been cut short,and they will miss so much of loved ones future lives.
You have your faith Jean,this must give you some comfort,I hope the…[Read more]