Hello Roisin,

My big problem is that so many things were left unsaid between David and me because he never contemplated losing the fight. It was always "we'll do that when I am better" – so much optimism. I know for certain that had the positions been reversed I would not have coped so uncomplainingly. I think I have now entered the 'anger'…[Read more]

here in Orpington we woke up to a tiny dusting on cars, roofs etc but it had gone by about 9 it's bloomin cold though Gill

PS Orpington is Kent but not that far from London

Hi Cinzia
Every person's experience of SCT seems different My husband was diagnosed in 2008 He sailed through his first SCT and felt quite guilty as yes some people do seem to go through the mill. Unfortunately his second SCT did not take but he is on revlimid and doing well.

I do hope everything goes well for youu Good luck and keep us all…[Read more]

Hi Marion

The reason I mentioned cc club,is lots of there places have lodges now,so no roughing it.We have a motor home and there sites are good.Follow you own needs,do not worry about your drugs,I am sure any place will help you.

Have a good holiday Eve.

Hi Marion

Just to answer your query ,I use to have a B&B,and have had all sought from guest in my fridge and freezer,most will help you out just ask on booking,if they say no,you would not stay anyway.
What is Aranesp EPO!!!!!!

If you like the Camping,have you thought about,booking through the Camping and Caravan Club,I would look at there…[Read more]

Hi Cinzia from Australia

I found you post in the middle of old post,so people might miss it.If I was you I would post on related illnesses more people will see it,start your own posting:-)

Any way welcome to the site,every one on here will help you all they can,there are people from different countries,so do not feel like an outsider.

I…[Read more]

Hi Everyone
I know what your talking about Bridget with computers,hated them when I was at work now I could not survive with out one.my daughters use to give me there old ones,bit slow but worked last year got my own lap top,this year I Pad,Slim uses that more because it,s not heavy and good for games.

I am decorating the bedroom at the…[Read more]

Whow Min
I wish I had your energy! Sounds amazing what you are doing and planning I keep looking at my bedroom and that is far as I get! Go for the cruise what a good idea we all need good things to look forward to.
Best wishes Sarah

Dear Dai,

I lost David on 7th January and I am bereft but I do find your sentiments commendable. How wonderful to be able to discuss things with Janet. I didn't get that chance because David never gave up hope, he was determined to beat the illness.
My son read these words at David's funeral and I think they reflect your feelings:-

"Do…[Read more]

Dear Alexis,

Thank you for your comforting words. I am bereft – can't sleep, can't eat and I have had my daughter-in-law here since the day after David passed away, we go to bed and then after lying there crying I get up and roam about the house. David was given a prognosis of 2-4 years and everyone told me that chemo. made one feel much worse…[Read more]

This is a big thank you to all the kind, very special people who have replied and offered me comfort. David's funeral was beautiful and I was overwhelmed at the number who came to say farewell – boyhood friends, golf buddies, former colleagues,
close friends and, of course, my wonderfully supportive family.

In the days before the funeral I…[Read more]

Hi Gill
Such good news you both must be very pleased,Stephen should be a little bit better on the lower dose of Dex,and this might be the time to have those conversations :-)I believe the kidneys can regenerate,so any damage can repair.One day at a time Gill and you will soon be in France again.8-)

Slim was trying to reduce his dose of pain…[Read more]

Check the policie s you already have We used MIA the first time we went away after my husband's diagnosis and then discovered he was covered on our health policy

Gill

Hi Jo

Good to see you have got over your food poisoning,and back to your old self.
I get up to London occasionally ,last time to see Mama Mia with my daughters,unfortunately Slims has no interest in the theatre .

One of my Christmas presents are tickets to see Calender Girls locally in Canterbury in February,So a nice evening out for…[Read more]

Thanks Dai
The penny has dropped.
Slims tried to come off his pain tablets a few times plus since not being on chemo he has forgotten to take his tablets going to bed a few times,specially when he was on ant-biotics ,because he had to take them on an empty stomach and his other tablets with food,he is the one that controls his tablets,as he…[Read more]

Hi Phil
Thanks for the good wishers,cannot book a cruise yet,even though we were hoping for a last minute short cruise from Dover.Slim has not heard from Kings and we have a number of hospital appointments in line,if I could get some dates,we might be able to get away.we do need this break.

I am finding this remission is Like a new ball…[Read more]

Hi Dai
From the sounds of it i would agree with Janet,except Lee Marvin was tone deaf.
Think your self lucky you can sing,at family events after a few drinks,if I made any attempt to head for the stage to sing,it use to be a race to stop me getting to the mike,even singing in the bath is banned:-(
I think singing is an expression of happiness.…[Read more]

Hi Mandy

Welcome to the site,it must be worrying for you being so far away.One of my own daughters is in NZ,so have some knowledge of how helpless she felt although my husband,has me and our other 2 daughters.

I do not think anyone going through Chemo treatment has a good quality of life and many of the side effects,can bring you down to a…[Read more]