Thank you everyone for your good wishers.
had last Velcade today,so BMB next blood test and Zometa all before Christmas,and one tooth to be removed along the way,sounds a lot but it,s less than we have been doing.
No marathons yet Dai,sleeping for England in the day awake all night,normality will be a bonus,what,s normal:-P I think I have…[Read more]

Hi mari
So sorry to hear Steve, back on the roller coaster it is funny when you hit it again when Slim had his CTD and we went to see consultant,and he told us it had not worked in fact got worse we were both very calm,strange feeling,may be you get past the tears and anger first time you are told.

Velcade!!! its worked for Slim from 80% in…[Read more]

Hi Christine
My name is Eve and i am a carer for my husband,first let me welcome you to your journey,and to answer your question,yes there are lots of people ahead of you on this journey.
As you must know by now people react different to different chemo and also people have different damage to bones.

my husband had 2 vertebra cracked plus…[Read more]

Hi Everyone
It is lovely news at the moment my glass is half full!!!.
Slims been on zometa since February,the last six months every three weeks instead of four,he has not had many side effects from either CTD or Velcade.

This Christmas has to be better than the last,and this is the ,wonderful news he might just be able to sleep that is the…[Read more]

Hi Eve
What a lovley christmas present! I am so pleased for you and Slim.
Sarah

Hi Jenny
Good luck for today,I will not tell you not to worry,because we all do.
Hope you received the e-mail.!!!!!
Eve

Hi Min

So sorry you are down, I am too and i dont have the excuse of gordons birthday, i guess the anniversarys are going to be very difficult. i do not think i will send many cards this year cannot cope with one name at the bottom, but grandchildren do help so much.i hope tomorrow is not to difficult will be thinking of you.

sarah xx

Hi All

Just wrote a huge post and the whole lot dissapeared! Cant do it again! I am glad all went well David all funeral are very personal, I want to go under the tree in the back field, a very special tree.
Eve I do hope slim is feeling better.
love Sarah

Hi Min
How are things going with you,walking your dogs helps i do a lot of my thinking walking my dog,in Deal there is a great bunch of dog walkers there is always someone enjoying the sea air even if it is freezing cold.:-P

When Slim came out of hospital,I was the same as you,having to tell them what equipment I required,an OT told me I would…[Read more]

Hi Gina and Linda
I know it must be hard,but as a mum,I know the last thing you mum would want is for you both to be upset,celebrate all the lovely things about your mum,The goodness and kindness that gave her two lovely daughters,I bet she never told you but she was very proud of you both,mums the word, give your mum a good send off,all my love…[Read more]

Hi Jenny
I received your e-mail but have no contact to be able to contact you,I know were you live,I do not want to put on an open e mail address on line.so may I suggest if you have the time,we meet for a coffee in town,I do walk my dog a lot on the sea front if you would like to meet up this is a good way,but if you just want to keep it to…[Read more]

Hi Jenny
I would agree with most of your comment concerning team approach,from what I can gather they have a meeting on Fridays were individual cases may or may not be decided on and then you have to fight your corner.
If you go in to my profile,you can e-mail me personally as I feel when you are dealing with individual consultants its better to…[Read more]

Hi Bridget
It did not seem a trauma at the time,more unbelievable,Slim was ready to let the whole thing go,but looking back he was already in a great deal of pain because he was wrongly diagnosed.
As I was not married to Slim at the time there was only so much I could do,his mum was a very difficult woman,she seemed to upset anybody in here…[Read more]

Hi Everyone
I like the thought of bringing loved ones home,as a child I remember my nan in the parlour,it seemed very natural as a child.

A year September Slims mum died,we had taken a funeral plan out in case we were in nz,as he is an only child we wanted all the arrangements done in case we were away costing £3000.
She was in care and a…[Read more]

Hi Mavis
Thank you for your reply,must admit did not realise were the money went concerning,the burial fee.
I hope your not offended with any of my comments,it is just a general observation,I seem to be hitting funerals a lot lately,at an age were you go to more funerals than weddings:-S
I do envy people who have a faith,as it must be a great…[Read more]

Hi Everyone
We have snow some were,according to the weather forecast,it,s not in my little corner.
I think it,s time to find the Christmas decorations!!!!
Tom I think you have survived two dish washers,because there is so much more to you,that your young bride,over looks the little hiccups.:-)LOL

I love Christmas,but it does bring home,how…[Read more]

not been on for a while as in the deepest of France but how wonderful to log on and hear good newa Well done Carol xxx

I will catch up with all posts when I can Here we are stuck in the last centuary lovely people but nobody is surprised when the water or electricity goes off.

And no we didn't buy in this area because it is quaint the…[Read more]

Hi Claudette
I am so glad you posted to Chrissie,and I am so glad I read your post,one because I hope your post gives Chrissie some strength,and two you have made me realise once Slims not on the trials any more we will be able to travel again in our campervan,go back to are way of life.I know I should just be grateful that he is still here ,but…[Read more]

Hi Bridget
Glad the treatment is not to harsh on you,how many cycles will you do before you have test to see if its working????
I agree with you about the blood test,the only thing that convincers us now is BMB,Slims blood results have always been good,and kappa lightchains do not show true readings. Slim does not mind BMB just finds it a little…[Read more]