Hi Shirley
Glad to hear you are managing to get out,have they given you a portable one,it makes all the difference being able to move about,out of the 4 walls.I have seen people on planes with the portable tanks,so there will be no stopping you soon.8-)

You sounded if you enjoyed your Christmas outing,turkey and all the trimmings?????.We do…[Read more]

Thank you so much Sue. I really find this site a help.

Chrissie

Good evening Claudette,
Thank you so much for your encouragement. Am I right in my assumption that sufferers who have had stem cell transplants do better than those who, for whatever reason, cannot have this procedure?

The other question is, when you travelled to France was your husband's treatment on-going? I do not see how we could…[Read more]

Thank you very much for your kind wishes. I do not fully understand this horrible disease but David has so many myeloma related conditions that his quality of life is, dare I say, almost non-existent at the moment. He has had both hips nailed to strengthen them against possible fractures, chronic
kidney failure (moving towards dialysis)…[Read more]

Hi Eve,

We do have skype and speak to my son most evenings, it is just that David is desperate to see where they have settled. They send us loads of photographs but it isn't the same as seeing for oneself is it? We both know it would be foolhardy to travel against doctors' advice and are not sure if we would even be able to get David insured,…[Read more]

Tom
What a lovely photo,that,s what it,s all about kids,must admit I enjoy it more with the grand children,I think when it,s your own children you so busy running yourself ragged,you get tired before Christmas comes.
Have started shopping for Christmas so getting in the mood the sun is still shining on our little part of Kent8-)Love Eve

Dear Gina and Sister
So sorry,even when it comes and you have prepared yourself for the worst it still comes as a blow,you have a lot of good memories to treasure,and i am so glad you got your mum home to die,that in it,s self must be a great comfort to you both.All my love Eve

So pleased for you Carol it must be like father christmas delivering a present early,:-)
Take it easy and look after yourself and enjoy this moment love Eve

Hi Chrissie
I stand by what I said last time involve your daughter-in law,she just might turn out to be the daughter you never had,you will not know unless you give it a try,no one can manage on there own,take my word for it,I am very much an independent b—-r,but my son-in-laws came up trumps.
Get SKYPE I talk to my daughter in nz all the…[Read more]

Hello Nettie,

Thank you for joining the rest of the wonderful people on this site who offer such warmth and encouragement.

I read your profile before replying and noticed that one of your correspondents was going on holiday. That is my dearest wish – to be able to take David to Canada. Our son emigrated in June (with our full blessing)and…[Read more]

Ah Tom

What a lovley photo! A real chip off the old block.

Sarah

Hi Gina

Very sorry to hear of the passing of your mum. I am sure you have many memories of her and i am so glad she was able to share your special day.
Take care
Sarah

Hi Bridget,

As you will see from the note I have posted to Tom, I have been feeling pretty down for a few days now. Actually, I am worn out. The MacMillan nurse has offered day care at the local hospice but, I get several hours free time whilst David is at the cancer unit, so this is not necessary. She has also offered counselling but I…[Read more]

Good afternoon Tom,

I have been in a pretty dark place for a few days. The chest specialist has now told us that they have reached the end of the line as regards treatment for his bronchiectasis and this, coupled with the kidney problems, is making life a struggle for David. I feel so impotent. Thanks for your kind words though.

Hi Min
The nurses are very good and never seem to stop,I asked about the strike today and the answer was no we cannot strike!!!!!!
I also asked how long they would have to work for there pensions all of them said to 68 years old!!!!!!
I think at the age of 68 working in a job like that they would not survive it without making many errors.

My…[Read more]

Well Min this is the time to find out!!!!you do not know what you can do until you try.!!!!
Dishwasher!!!! for a present,who was that for,any thing to get out of standing at the sink!!! my my Tom hang your head in shame,It,s nearly as bad as my hair removal gadget,its taken him years to live that one down LOL Eve

Hi Dai
The cost for Slim is topping £3000 as now in 8th month,but if you compare that he was in ITU for 10 days at a cost of £2000 per day its a no brainer.
Slims history is grandmother plus mother died of pulmonary embolism,his mother a year September age 85.
I have had some response to my complaint,went for start of 6 cycle today and H…[Read more]

Hi Everyone

Poor Slim,that,s what I hear all the time Tom,i always seem to come out the baddy,I just reckon he does not know how lucky he is being married to me!!!!!
but there again he can not remember it!!!! LOL.
the other day he asked to see the photo,s so my daughter showed him,and for some reason he thought he was standing up(we got…[Read more]

Hi Helen

Slims is a long story,so will keep it short he was on CTD myeloma trials, and three months on,after going to A&E on Easter Saturday and sent home,Emergency admission on Easter Monday 10 ITU with Septic Pneumonia and 22 over all in hospital.
he stared the trials again 2 weeks after leaving hospital,did 6 cycles only to find Myeloma had…[Read more]

Hi Chelle
We all have days like that,because you get desperate for something to work, I must admit to being a pill popper ,mainly to keep my emotions under control,It cannot help your husband to see you so upset,so my advice is go and see your doctor,get some help,because you have to be the strong one at this point in time.
I am sure other…[Read more]