Hi Helen
It does seem worrying at first,but as soon as you mum starts the injections she will improve.
Slim had a mass of blood clots in lungs,no one realised as he did not get out of breath,plus holes from damage with pneumonia.He has been injecting himself for over 6 months now and we expect this to continue for some time.

If you put a word…[Read more]

Hi Eve
Due to some amazing friends, who did so much to contribute to the coffee morning we made £432 in 2 hours, the event was held in our beautiful wedding barn with little children up one end on tractors having a wonderful time inbetween eating cake and fighting!
Dai your 1st christmas and new year with Janet sounded magical, bet you have…[Read more]

Hi Sarah
I live about 40 min from you,and Deal is frost free,on are way to Canterbury this morning you could see frost in the small villages low down of the road,but otherwise this little corner of England tends to have French weather.

I am glad you are going to have all the family,its so important the first year,if your worried about the out…[Read more]

Hi Eve
The last few christmas's have seemed strange due to my parents and thier problems rather than meyloma! I have started shopping mainly fot the grangchildren (i just love them) three less presents to buy this year which will feel very odd.Gordon was always very unreliable with his shopping last year I had a little chopper to cut up the…[Read more]

Hi Only me
Just to try and give you a little bit of support,i cannot help you as Slim has not had SCT,but am posting to say people who have been in your mums position,say it,s worth it in the end so hang in there,this post should take it back to top and more people might see it and reply to you.
Good Luck Eve

Hi Everyone
Well last night I did it, could not look at the moth eaten man any longer,so decided to get my scissors out,he moaned all the way through it,told him he was lucky I did not get the dog clippers out:-P
Have cut Slims hair very short to give it more body,he tells me,when he was a marine he never had it so short,think he is telling…[Read more]

Hi Carol
That,s wonderful news about your family,very hard on your daughter to make that trip,but she is so far away and the worry must be awful.:-S
My daughter could not get over how Slim looked so ill!!! but saying that has now put on 1st 8lb and looks so much better has his bad days when he tries to do to much,:-( but is OKish.
When Slim had…[Read more]

Hi Jean
It sounds if you are going to have a wonderful long Christmas,make the most of it,as the family get bigger they start to scatter,so make sure you have a wonderful Christmas.

The weather here is beautiful,as long as the sun is shining ,we go for at least 2 walks a day having the dog,and for the end of November it is wonderful.

I have…[Read more]

Hi Everyone
Plasmacytoma is treated with chemo unless it causing damage to spinal cord,Slim has tumour on spine plus lesions on shoulder blades and skull,when I asked about how long he had,had it,and what stage it was at,I was told,the do not do stages any more and they considered when it became painful was the start of it!!!!!

I can see why…[Read more]

Hi Everyone

DETRIMENTAL leaving TAL

Eve

Hi Everyone
You do make me laugh Tom,Slims hair looks a bit moth eaten and he has not had SCT,just 11 cycles of different chemo,but cannot complain it is starting to do the trick.

Helen it is so nice to hear you so cheerful,I thought I would mention a few products that might help eg: Polytar from boots, it help with itchy skin,.Aqua cream you…[Read more]

Hi Jo
You must be so pleased,I am so pleased for you,you have been my beacon,for some time now,because of not having SCT,so I am so glad you are still in remission.
You have been doing so well,have a lovely Christmas Jo,and forget about the sword of Damocles. love Eve

Thanks for starting this post Tom, forgot to say that I was born in 1953, Gordon in 1952. he made it to 59 years old and was diagnosed in 2002, his treatment was at Eastbourne and Kings college london.
All the best
sarah
ps I am trying to find a new picture,but i hate having my photo taken so may take some time!!

Hi Sarah
Did not know you lived so close,Slim and I live in Deal in Kent.
I am a young 63 years going on 21 and a bit,Came from Liverpool to Kent 40 years ago.Love the south but miss the northern sense of humour. Eve

Hi All
I farm in east sussex with my son, we have land on the pevensey marshes which are lonley and beautiful we scatered gordons ahes there as he loved the peace and the seagulls.
sarah

Hi Paul
Have a wonderful festive season, enjoy every minute!! And next year do the same, with a sct so early in the new year you will be up for partying next christmas!

best wishes sarah

Good afternoon Bridget,

Have had some pretty devastating news this afternoon. David's consultant told us that the myeloma has increased by 25% and his kidney function has also worsened. Not quite reached the dialysis stage yet but getting ever closer. Because of the kidney impairment they can only use very low doses of Lenalidomide as it,…[Read more]

Good evening Tom, and thank you for taking the time to give me such encouragement. I have learned to hide my worry (David always used to say if I had nothing to worry about. it would worry me!!) but it never goes away.

Like you, David is a fighter and has remained so positive throughout this nightmare, it has amazed me. But after two failed…[Read more]