Hi again Eve,

Thanks for your help and good advice. I plan to address the subject of AL with the appropriate department tomorrow and will let you know how I get on. My daughter-in-law in London is constantly asking me if there is anything she/they can do to help but, frankly, with them living so far away I don't see how they can. I have a…[Read more]

Hi All

I thought I would post an update on how Stephen is faring on the RCD regime. He seems to be coping with this combo quite well. His pp levels have dropped and the "dexatude" is nowhere near the level it was when he was on a higher dose. It was such a shock to come accross "dexatude" as you could not ever ever meet a more laid back and…[Read more]

Hi Chrissie
Concerning the AL,you have to help you husband to get up in the middle of the night,and at his age needs to go more frequently ,you do not have much choice because he cannot afford to fall,if he brakes his hip you will not be able to manage him at home,if you do not get the full amount appeal.it will be back dated and his position…[Read more]

I'm so hooked on this silly game I end up like "billy no mates" and play by myself

I did think of putting ave and ave nots:-) but that is silly (even for me so I will go with

VOLATILE

ILE

Thank you Sue! I am feeling a lot more positive since joining Myeloma UK.
I find the posts most encouraging and uplifting. People are so kind. To be honest, seeing David as he is now I was beginning to think he would never improve. Now I am full of hope. Once again, thank you, to everyone.

Good morning Bridget. I hope you are feeling well today? You certainly have been through a lot. I am most unfamiliar with all the medical terms.
What is induction chemo? I have worked out that BMB is to do with bone marrow samples! David was in an isolation ward for his last hospital stay as the doctors could not get to grips with the chest…[Read more]

Good morning Eve,
Thank you for all your advice. We do get AL but it certainly isn't anywhere near £73, more like £50. I will look into that. We have a toilet adaptor and a special mattress for the bed. We are also in the process of getting a stair lift installed and we have a Blue Badge. I know exactly what you mean regarding 'decorating t…[Read more]

Hi Chrissie
just to let you know you are entitled to Attendance Allowance plus Blue badge,you should get about £73 a week,this will help,get a care agency in or pay a friend to just come round and take some of the strain off you,this is so important,have a word with your children tell them you are not coping,may be one of them can just come up…[Read more]

Hi Tom
When you manage to put the picture on,let me know how you do it,because I havn,t a clue!!!,and I thought you might like like to see my magic draws lol.

In the kitchen of course I have a very small kitchen,so space is important,did a silly thing when Slim was ill and had builder round did not finish jobs completely,just finishing off…[Read more]

Hello Min,

I have just read your reply to me and also your post regarding Peter's funeral. I have lain in bed many nights worrying about that same thing.
Your story and the many replies you received have been a great source of comfort to me. I saw a quotation somewhere which goes 'I know God won't give me more than I can handle, I just wish…[Read more]

Thank you Eve, it is comforting to know there is some hope. David,too, ended up in ITU after having both hips nailed due to the damage done by this horrible disease. He was unable to have a GA because of his chest problems so had it done under an epidural. He had an embolus that travelled to his lung. Very scary but his recovery from that was…[Read more]

Hi Chrissie
My name is Eve and I have watched my husband go from a very health man to someone who lost 4 st and lost 5inches in height,and yes I thought I was going to lose him.CTD did not work,Velcade is working for him.so I do have some idea how you feel.

You have to take it one day at a time,and when the good days are there enjoy them.his…[Read more]

Hello Bridget,
Thank you for your words of encouragement. May I please ask how long it took for you to feel better again? David seems to have been going nowhere forward after eight months of treatments which have had no impact on his condition. He is in and out of hospital, which he hates, his potassium levels rise and he is given treatment to…[Read more]

Hi Gina Sister and Mum
How are things going,have been thinking of you,did you have a good wedding???
How are you holding up,it must be hard for the family,just to let you know you are not forgotten .Love Eve:-)

Second from the right????

I have heard of the supplement you mention Min I wish I had remembered it before I got this heavy cold. Stephen (MM person) sniffed twice sneezed once gave whatever it was to me and I got the horrrid horrid cold (so pleased it wasn't him that got it)

I digress think of a word ??

ARCHITRAVE

for the next leaves

AVE

OK I am not an mm person, but married to one. He got a "bit of a cold" I was petrified that it would turn in to all the dreaded stuff that goes with mm.

Result ?? He's fine (thank goodness) I have the mother of all colds.

Sometimes life gives one the ablity to moan and moan and moan (gues what I'm doing) HEY I have MAN FLUE and I am…[Read more]

Hi David
Yes euphemism is another word for die if I am correct(don,t quote me),never went to school in my misspent youth.:-P and never been hot on grammar in Liverpool.LOL
It,s just the scouse sense of humour.Eve

Are we late birds or insomniacs

I am not sure if places are allowed (told you all I had no idea of any rules)

But I will go for an island that for years I thought was in the Channel (my family settled on Jersey years ago and I STILL have no idea of the geographical layout.

OK I now know that this island is somewehere north:-) (OK very…[Read more]