Hi Everyone
Yes Dai it is a postcode lottery for treatment ,and from what I am hearing Nottingham does seem to come out tops.
East Kent is lacking lots of things,some patients with other forms of Cancer have to travel as far as Maidstone for specialised treatment around 65 miles one way,A friend of mine had to do it every day for a week,
The…[Read more]

Dear Julie
May I add my condolences to you and your dad.
Thank you for letting us know as so many people just go off site and we never know what has happened to them.
So glad you mum had the passing she wanted in her own home with her family with her,it must be a comfort to you both that your mum passed peacefully.
Kind Regards Eve

Hi Julie
So sorry to hear the sad news about your mum,I am so glad she was at home with all of her family near, a great comfort for all of you, as I know only to well.
Best wishes sarah

Hi Gina
Nice to hear from you,sorry it is not better news with your mum,how are her lungs,are they any better after the treatment.
It does seem to be one thing after the other,hope she begins to feel better now she has had some blood ,do not know much about revimide except in trials as the other side of CTD.
Hope it works and you can keep your…[Read more]

Hi Everyone
Once more in to the breach,and hoping to clarify and expand this discussion.

The hospital i go to has a specialised haematology dept that is taking part in Myeloma Trials which Slim is on.
When on trials you have to follow the pathway,but you can come off trials any time,and you can be removed of trials if they think you are no…[Read more]

Oh Min and Roz wish you both lived near cyber hugs to both. xx

Hi
Good to know you are ok,hope everything goes well on the last cycle.Let us know how you get on 🙂
My beautiful white carpet did not enjoy Slim being sick on it,have used bleach but still looks iffy,helped make my mind up,so hall and lounge will be replaced with laminated looking like oak.
Could do without this,but when you are stuck in…[Read more]

You are not a burden Mari I am so sorry that Steve did not have better news but hold on in there the figures might change. When do you see the consultant again?

I am sure that we all have our cyber fingers crossed for you both.

Do keep in touch Good luck and love from Gill

Hi Girls
Had a lovley today judging cookery at a ploughing match ( know nothing about judging, went on the flavour!) I came home to a silent house I could not tell anyone about my day, who i had met, the local farmers who asked how i was and how sorry they were. Roz, Min and al the others, it is the lonliness that gets me.Onwards and upwards…[Read more]

Dear Gill
Thank you, I have just make a beautiful, lumb free white sauce! I was so angry reading you post I took it out on the sauce, how dare the banks play fast and loose with OUR money, they are so arrogant, uncaring, taking OUR money and doing as they see fit wasting it in dodey deals then whining because thier bonus is so small 1/2 a million…[Read more]

Dear Ellen
I think another post is needed, I have had such suppourt from this site and to leave now will give me another hurdle to overcome with Gordon and my father dying within 6 weeks of each other any help is gratefully recieved, plus hopefully we can help each other, it is great to know that i am not the only one going mad, becoming very…[Read more]

Hi Gill

Daily mail Wednesday Money Mail you look for Page 55
E mail asktony@dailymail.co.uk
daytime phone number postal address and separate not addressed to the .offending organisation:-)
Hope this helps. Eve

Hi Dai
Have done it again haven,t I,Dai i am not talking about your ignorance far from it i look to you for advice support and anything else you can throw my way to help me understand this dreadful MM,and what is available, so very very sorry,its my ignorance of every thing,that,s in front of us.
So accept my apology .Eve

Hi Gill

Just found the post were you ignored me!!!!,how dare you 😛 LOL, some one forgot to tell you scousers are thick skinned but are softies in side 🙂
Seem to be missing post these days,but what I have noticed is that you are taking Stephen,s results very calmly.
Gill you must be worried,I have noticed those early morning post when you…[Read more]

HI Sharon
You have not been on site for a while is ever thing ok i know you do not post much,but you must have finished Velcade now.How are things going:-S?

Slim on 3 cycle and a bit in Limbo as,no results coming through as decided bone marrow to be taken after 4 cycle.

Slim has not got the pain in his chest any more,and except for the odd…[Read more]

Yuck Roz I hate kedgeree 🙁 But what a great word for the game

ERRONEOUS was my first try but, thinking it might be a bit too racy, I thought of ERSTWHILE.

I leave it to others to choose whether to be racy or not 🙂

I too believe that treatment is cost led to a point. Our health insurance would only fund Stephen on 3 lots of Zometa this time round as they had already paid for Velcade during the past year. Gill xxx

I am So Pleased to hear your news Dai. Long may it continue. Yes do make some plans that's what people do when the sword of Damacles (sp) has moved away for a while.

much love Gill xxx

PS you owe it to all of us on here to go and have some fun 🙂 xxx

PPS I think the Ether Elves are still about I have lost this thread (or the plot) twice now

Congratulations Nettie. What a brave lady you are. Well done xxx