Gill replied to the topic Niggle, Niggle in the forum Side-effects 14 years, 7 months ago
Get on your way for that holiday quickly Dai Bon Voyage Gill xx
Gill replied to the topic HOME AGAIN then back in to stay in the forum Treatment 14 years, 7 months ago
I am so sorry that Peter is so poorly. When Stephen was at his worst in hospital I took him in some tenna pants He only used them once or twice but it gave him the confidence to relax a little. His greatest fear was soiling the bed and watching a nurse having to change it.
Telling him that they were used to such things happening was no comfort…[Read more]
eve started the topic Appointments in Dairy. in the forum General 14 years, 7 months ago
Hi Everyone
I thought i would share with you,all the appointments for next Week.
5th sept—bloods 11am
5th sept—cat scann 6.15pm
6th sept—bloods 9am
6th sept—treatment—1pm
7th sept—zometa 4pm
9th sept—blood 9am
9th sept—treatment 1pm
11 sept—mri scan 11.40am
Each trip 30 miles round trip,the 1 clock…[Read more]
eve replied to the topic Secondary Cancer in the forum Related conditions 14 years, 7 months ago
Hi Gill
I do feel for you,at least you now know,and the battle begins,we are still waiting on MRI scann date for this Sunday,then hospital appointment for everyday except Thursday,have just worked out the mileage and we will be doing 210 miles to and fro that week.
I do not know which is worst knowing or waiting,Slim seem to take it in his…[Read more]
Gill replied to the topic Levels back up… 🙁 in the forum Treatment 14 years, 7 months ago
Figers crossed for you and your husband that it is indeed a blip xx
Gill replied to the topic Velcade induced Neuropathy in the forum Side-effects 14 years, 7 months ago
Hi Debs
I think I have said before that Stephen does not visit this site but is always interested in whatever is posted. He has always sufferred from PN and the when on Velcade it became unbearable
He aked me to tell you that his PN reduceed significantly once he started taking the food supplement Coenzyme Q 10 (obtained from Healthspan…[Read more]
eve replied to the topic Niggle, Niggle in the forum Side-effects 14 years, 7 months ago
HI Dai
I take it the kept you in?????Eve
eve replied to the topic Velcade induced Neuropathy in the forum Side-effects 14 years, 7 months ago
Sorry Deb,Slims on Velcade but does not suffer neuropathy I do give his legs a good massage,but i suppose you legs are to painful to touch ,I think Dai has a lot of knowledge and scott you could try e mailing one of them
love Eve
eve replied to the topic Trip Down Memory Lane in the forum Off topic 14 years, 7 months ago
here is my memory for today
My mum use to buy every week something for Christmas,tinned fruit and things and put them at the bottom of the wardrobe,we were not allowed to touch them.
I can remember thinking if i made a little whole in the tin,I could drink the juice,and my mum would never know i got the old fashioned can opener and put a tiny…[Read more]
Gill started the topic Secondary Cancer. in the forum Related conditions 14 years, 7 months ago
Well Stephen's specialist had good news and bad. The mm is not measurable in his blood any more. Unfortunately he has quite a few other bits plasmasytomas seem to be popping up everywhere, and after me pushing for an explanation Dr. S said "yes the easiest way to explain it is secondaries"
But hey partial remmission is more than we hoped for…[Read more]
Gill replied to the topic The Under 50s Group in the forum Under 50s 14 years, 7 months ago
Hi I hope in the nicest possible way that Russell and Andy end up not joining us as you do not have mm just a slight blip in perfect health. Good luck Gill
Gill replied to the topic Trip Down Memory Lane in the forum Off topic 14 years, 7 months ago
What a fantastic thread. Memories? Too many to know where to begin. The smell of roasting peanuts being cooked in Woolies (woolworths to you young uns). Players number 6 cigarette vouchers (stopped smoking years ago but back then when old enough we smoked ourselves to death to get enough vouchers for a genuine teak coffee table for our first…[Read more]
eve replied to the topic Trip Down Memory Lane in the forum Off topic 14 years, 7 months ago
Any one remember green shield stamps,i know we saved books of them,cannot remember were we got them from??? or what they bought.
As you know i come from Liverpool,known as scousers,but did you know there is a stew that they call scouse you had it on Mondays made from left over meat from Sunday,and on Tuesday you had blind scouse which was the…[Read more]
eve replied to the topic No more Velcade in the forum Treatment 14 years, 7 months ago
Hi Gina
Your mum must be feeling low just being anaemic ,a blood transfusion should make her feel much better,until they decide treatment.When will you know what comes next Gina.
May be if you do some research to see what other drugs they use for Myeloma it might help,Hope your mum gets some blood as nothing worst than feeling washed out,and let…[Read more]
eve replied to the topic Side effects of chemotherapy in the forum Side-effects 14 years, 7 months ago
Hi Angela
What i am saying is you cannot second guess without more information,May be the nurse on Ellane on this site might be better at explaining it than I am.
I would hate you to think your father died because he was not well cared for.
I can only tell you after every cycle bloods are checked and any problems show up and your meds are…[Read more]
eve replied to the topic Side effects of chemotherapy in the forum Side-effects 14 years, 7 months ago
Hi Angela
So very sorry to hear about your father.
It would be very hard to comment on people who are having chemo unless you know what type of chemo your father was on.was he on any special trials.
To be on the intensive chemo he must have been deemed to be fit,as your are boarder line at 65.How many cycles of chemo were given .
DVT are a…[Read more]
eve replied to the topic HOME AGAIN then back in to stay in the forum Treatment 14 years, 7 months ago
Min
Be positive,IT took sometime for Slims infection to be controlled,and Yes it might not have got to this stage if he had listened to you.This just might be the wakeup call Peter needs,Slim does not believe me when i tell him half the things he did( has no memory) so he says 😛
Had to take him to hospital yesterday,local,took skin off…[Read more]
eve replied to the topic Trip Down Memory Lane in the forum Off topic 14 years, 7 months ago
Hi Min
I am the youngest of 7 as I have grown older I realise why we were all sent to Sunday school.We lived in a 3 bedroom house with just a tap in the kitchen and outside loo.even if you were dying you were sent to Sunday school,I thought it was for our mortal soul,not for my parents.
Believe it or not Min our tea came from the ships,My dad…[Read more]
Gill replied to the topic itchy legs in the forum Side-effects 14 years, 7 months ago
Hi David
Are you sure your itchy legs are not caused by the "no see ums" :-/ I only popped out to the garden briefly towards dusk and the little blighters got my legs, back (under baggy t shirt) and the tops of both feet.
Why Oh why did we ever put in an 8 foot diameter fish pond in our garden the no see ums thrive around it at this time of…[Read more]
Gill replied to the topic Latest Newsfrom the Madhouse! in the forum Off topic 14 years, 7 months ago
Dear Bridget, and the rest of you all
Let's get this straight. In my view (and I can be very self opinionated!) this site has many facets, and uses. It is full of information, it puts us all in contact whether mm people or their husbands, wives, children, parents, friends, secret lovers?? (that would be fun:-) with others that this wretched…[Read more]