Just to say fingers crossed that he turns the corner soon adn thinking of you both Gill xx

Hi Bridget
I can see were you are coming from,and I can understand you superstitions, do not worry you will know when the time is right for you.
It has taken you a few days to tell us,and I do not understand why you posted in this part of the site.
You are worth alot more than this,if you had posted on treatment people would know,what is…[Read more]

Hope you are back home and on your way to your holiday very soon. Good Luck Dai Gill xx

Hi Ted

Sorry I am late in saying welcome and sorry you have to be here. Do keep dropping in everybody on this site is very friendly and you will get information and support when you need it.

all the best Gill

PS I cannot be the only one that thought Michael Caine had added his picture can I?

I think Stephen has got used to my bullying tactics since he has been ill. I must admit he has the patience of Job. Although it is accompanied by a huge dose of sarcasm. When we go to the hospital and Dr S asks How are you at the moment? Stephen says very pointedly " Let's ask Gill"

Fortunately the Doctors and Nurses at the small hospital…[Read more]

Hi Bridget

Good luck with your radiotherapy. Stephen can't wait for his hit as he is hoping, like you, that it will be like last time and ease the pain.

I would not dream of giving advice to what treatment you should choose, but I have read that Bendomustine is the new lifeline for mm. They have used it a great deal in the States and before…[Read more]

KITCHENS? KITCHENS? Don't get me started. Isn't there an old saying that the cobler's childrens' feet went bare? How about the most respected building contactor in the area never finishes a job at home?

Yup when Stephen was working and employing a small team. A great deal of their work was to gut out and fit new kitchens This was done within a…[Read more]

Hi Min

I do hope you are having a more peaceful Day and that Peter is doing well.

What is it with men? A few weeks ago Stephen was due to phone one of his nurses to make an appointment to have his Hickman line flushed later in the week. He woke that morning with a temperature and rigors.

He said he would tell Sarah that he was not well…[Read more]

Hi Bridget
I have to say it Bridget your a brave lady,very brave,were an earth do you find all this strength,and courage.It,s not just the illness it is the courage,as you go through each treatment,you manage to find a smile and help other people on this site,all though you are in a great deal of pain yourself.
In you own way you are a…[Read more]

No Tom have never been told that,I would hit them with my handbag if they
did:-P ,
Tom its just my personality,my sister says " I just tell it the way it is",as I have got older I do try to curb it because the last thing I would do is offend someone.It is also the fact that I am a scouser and they tend to be a bit abrasive.
So now you back i…[Read more]

Hi Susannah
I do not know any thing about Bendamustine trials only MX1 trials,I can only go on information I have.This is were Gaya would be very helpful,she fought hard for frontline drugs.
It is postcode lottery,you would think having roughly 3000 patients diagnosed with mm per year they would be trying to sign them all up for trials,because…[Read more]

Hi Min,
You are making me laugh,I know it is not nice,but you know I have been there before,I made up my mind next time it happens I will refuse to take him home.I liked the grassing up bit:-)wicked
I have told Slim I refuse to go though all that again,I felt so guilty I blamed myself for not calling an ambulance sooner.He does not remember much…[Read more]

A little light relief for the weekend Gill xx

I?m Fine Thank You

There is nothing the matter with me,
I?m as healthy as I can be.
I have arthritis in both my knees
And when I talk, I talk with a wheeze.
Sleep is denied me night after night.
But every morning I find I?m all right.
My memory is failing, my head?s in a spin.
But I?m…[Read more]

Hi Min
As you know Slims on clinical trials,and must admit some good some bad has come out of it.I do not think it is wholly for are well being.
First you have to ask yourself does the consultant feel so strongly that this medication is the best he can give: the answer should be yes
Second Is the consultant just interested in advancing his own…[Read more]

Hi All
We find are senile moments very funny at times,were does the day go,looking foe keys can take up time,My husband refuses to go in my handbag,he claims he could loose his hand in there,the more we try to be more methodical,the worse it gets how many pairs of reading glasses get lost!!!.then add this Myeloma to the mixture with all these…[Read more]

Hi Gina
I was just thinking the same as Jill how are things going with your mum
love Eve

On a more serious note do we not all get a little more confused as we get older? As far as I am aware I do not have an "end of life" illness but I am hopeless when it comes to what day? what time? etc Gillxxx

aged 35 NO? OK 45 NO? 55? NO

61 retired live and adore an mm person

2 shillings and sixpence

Was it not known as half a crown Dai OOPS just shown my age

Hi Dai

Left Liverpool 40 years ago,no regrets,when I first came down here,everyone thought I was Irish LOL now I have a plum in my mouth they think I am Welsh.
I know the Isle of Sheppey,few years since I have been there,Deal name fame is they lost 11 bands men to IRA bomb,they were all musicians no threat to anyone,most 18–21 years old.
I…[Read more]

Hi Jean
He is not to bad in himself considering the ctd has not done the job for him,and now started Velcade,another learning curve, 2weeks on 1 week off just started the week off.
he is not looking forward to having bone marrow taken at end of every cycle, but that is now the only way they can tell what is going on.One minute we are looking at…[Read more]