Hi Pauline and Jean,
Jean and I have had this conversation before,you will find Pauline there are a few others on this site with partners they feel like strangling some times,even with out the illness,that,s part of them,
I think jean and I came to terms with ,what was going on instead of getting angry we took the view( their body there life )it…[Read more]

Good bye Gaye, a very sad farewell to lovley lady, at least like gordon, she is no longer in pain.

my sympathy to all her friends and family.

sarah xx

Hi Russell
Bone Marrow is the only way to confirm Myeloma 100% it does show in bloods sometimes and sometimes it only shows in Urine there is about 5 different types of Myeloma,and there are related conditions.see related topics!!!
As I said you are young,looks if they have found it early if you look at home page and go into video,s there is a…[Read more]

Hi Dai
Thought i would let you know Dai Slim did not have Picc line,but solved his problem after last week looking like a pin cushion,bought a cheap hot water bottle fill it and wrapped it up in pillow case,applied to arm while waiting to be called in,works a treat,and no time wasting looking for veins:-)been to hospital this morning,have to go…[Read more]

Hi Tom
Have we missed you yes,yes yes,we thought you got lost in your jungle of cucumbers.We are in need of some cheer on this Forum,as ever one has been having hiccups,and the people who are doing well are reluctant to post ,

Kitchens do keep you busy though,mine is still not quite finished little things like light and blinds,but we will get…[Read more]

Hi Pauline
In life we seem to find this energy to cope with what ever comes our way,my husband has the same view as you,why worry about it,if you cannot do anything about it!!:-S I how ever try to jump there hurdle first,so i can make it easier for everyone else to get over.
He is the Myeloma sufferer I am the carer,but this diseases has taken…[Read more]

Good luck to all of you that can still do some excercise Stephen is hoping that after another visit for radiotherapy , he will be able to once more walk the dogs, even if it is just round the block rather than the 4 or so miles he did after his first transplant.

He has been most unwell since the second SCT. I am hoping it is just taking longer…[Read more]

I did not post when I first heard that Gaye had died because I did not know what to say. I still don't. Everybody on this site has become so important to me and it is heartbreaking to know that somebody has gone.

What a lovely woman. Goodbye Gaye

Gill

Hi Carol
You are allowed a copy of all results,you do have to ask for them,I have most of Slims results,but some take a couple of weeks to get back as test are done in London,Leeds and Birmingham.
Any department in hospital can only give you result they deal with,computer does not allow them into anything not connected with there dept.
What…[Read more]

It is sad news,but not unexpected it was so nice of Gaye to think about us,and to make sure we new that she has passed away.
That is consideration beyond the grave,such a thoughtful woman,putting her house in order,she will be remembered with big smiles on this site:-)Eve

Hi Ivan
I can understand you not wanting to spend time off work,but at least you are being looked at,have you got a good boss?.
Do not let it get you down,You will find in time,that you become more accustomed to these little hiccups,best that it is dealt with early,
MRI scann will show any bone damage on spine,if you look at some of the other…[Read more]

Hi Russell
Welcome to a club nobody wants to be in!! but we are and it is not only informative,but some times funny,but you will have more fun,in the under fifties ,they are allowed to swear when you get angry ,older ones swear in spaces h-e-l-l.!!:-P
I see it was 4 am when you posted,we have all been there at that time,its when the demons come…[Read more]

Hi Min

What a hoot, are big macs classed as part of a neutropenic diet?!!

Hope all is still bleeding wonderful with the kitchen

Sleep well

Sarah xxx

Hi All

The harvest is all in, it rained the next day, i am sure gordon had something to do with it! I do not remember ever finishing this eary before, only 1976 and then we had nothing to cut because everything had dried up!

Still keep thinking gordon is in hospital, dreading reality, i will keep taking the little white pills at…[Read more]

Hi Dai
I do see were you are coming from,but we do need a spokesman or woman,who can explain the way we see things.Have you e mailed him.
If you are coming to the end of treatment,may be they can give you extra dex and have a dexy day LOL
Glad to see you being positive remember you are living with cancer not dying with it,living in Deal in…[Read more]

Hi Ivan
The service for cancer patients seem so different through out Uk'
I have at least 3 telephone numbers and 1 is 24 hr even holidays someone is on call.
When i have used it,I was told to go straight to A&E second time to call ambulance but both times a nurse from the unit met us,and i have been told in future to ring in,the reason for…[Read more]

Hi Cathy
I have to ask do you know what CDT is!!!! Eve

Hi Ivan
Have you been on the booze ,!!! gout only joking, never heard of it myself,
The pain must be bad for you to come on here and mention it!!!!

You must remember Ivan,that most gp do not know much about mm!!!
Have you not been given numbers to ring for any symptoms !!!!,If you feel so unsure please ring the number,??
Ring tomorrow!!!!…[Read more]

Hi Sarah
How are you holding up,I hope the family are keeping you busy,but still finding time for your quiet moments,The harvest must be gathered by now,Hoping you are drawing strength from every thing around you.
best Wishers Eve