Good for you Dai you have my vote love Eve

Hi Craig
Can I suggest you look under Treatment (up date on cycle 5 of Velcade )!!!
It might give you some in site to the problems,we have it is mainly the last 6 postings.
I was trying to find someone who,has Bence Jones kappa Light Chain,who like My husband had 6cycles of CTD who was considered to be going into remission.bloods good kappa…[Read more]

Hi Min
Have you ever considered the pay per hour.24×7=168 hours divide by that into 73 pound.answer peanuts and I am not a monkey
Min I am surprised you do not take something to help you,I will be honest with you,I would ring up and book an emergency appointment,do not take no for an answer,The reason I say this,is when your crying or shouting…[Read more]

Hi Cathy
My names Eve and I am a carer,6 months ago i was standing were you are now!!
I can only tell you this site is full of nice people,who will try to help and keep you positive as much as they can,they will be there for you in good times and bad.
Some people sail through this treatment go in to remission,and we all cheer
Some people do…[Read more]

Min
You are right,Slim made me Laugh the other day,he now worries something will happen to me,he said to me "you do realise if you get ill i will not be able to look after you" I found that very sweet. I promised him I would not get run over by a bus. LOL
Eve

Hi Bridget and Min
Just what i need,informed fact with a bit of humour,thought i might be upsetting Dai before his holiday and i would hate to do that,have been sitting thinking consultants just do not have the time to explain,we should all get these results without having to ask for them,and as you say Min an idiots guide to help us.
I do get a…[Read more]

Hi Dai
I am not being stupid am I???
If Kappa light chains results are correct!!! bloods are correct!!! why is there 80% Myeloma in marrow!!!
If I new the answer!!!

After the last results in may we had a telephone call to say bence jones kappa light chains were down,but Slim did not ask how far,since then I have been waiting on results,when…[Read more]

Hi Dai
This is getting interesting!!!! I know that the results come from birmingham university.I have some results.i was told that Kappa/lambda was the important one and they read as followed

22/2/11— 258.458
15/3/11— 239.611
05/4/11—- 121.425
31/5/11— 14.672
I have not yet been given June /July/August results I have asked…[Read more]

Hi Dai and Min
Slims on Meloma X1 trials,he has Kappa Light chain MM.After the first Stage of treatment,24 hr urine bottle and bloods every cycle,they did another bone marrow biopsy and to there surprise found his mm had increased in bone marrow.
I think what they normally assume is urine kappa light chains down,then you are in remission,not so…[Read more]

Hi Dai
if you can,i would like to ask you a few questions or if anybody looking at this post who could answer them,
Its about the Velcade,Slims on 2.3 at the moment 2 shots one Tuesday and one Friday, 9 oclock bloods then although told to come back at 1 oclock did not get jab till 3.30 .left home at 8 got back at 4.30. (screaminggggg) poor dog…[Read more]

Min
Why an earth are you running yourself down,i know how tired and shattered you must feel and how worried you are,but to think you are not a good carer against the professionals!!!!!!,
You are for getting you are married to an ex service man who,s form of defence is to attack ,and the sad thing about this in a few months he will not remember a…[Read more]

Hi Min

Gordon and I would often end up at loggerheads, this mean mean disease. I too would walk out, i think it helped, try talking to the macs, it sounds as though you have a good rapport with them, someone needs to listen to you both, poor Peter, just wants his normal life back.

with love sarah xx

Hello one and all

Wish i had dreams like you briget, what fun all those bras blooming away happily!!

Dia, the weather here is also good for the weekend, hopefully we will finish our last field of wheat, down here in the south farmers are almost protect there are so few. I wish, we normally end up with road rage!

love to all

sarah

Hi Meera

My husband has plasmacytoma in more than one area but his mm was diagnosed before this was found. The fact that your medical team are aware that you may develop mm is a plus as they will be able to jump on the tiniest symptom should it show up.

Good luck Gill

I am sure that you can shout very politely so think that maybe the time is right to shout. I am sure as Bridget says you are exhausted but know that a fight can give one an extra spurt when needed.

Best of luck Gillxx

Hi Sarah

It must have been so hard for all of you to do the things that were already planned before Gordon died. The fact that your close family raised so much money is fantastic and Gordon's red tractor will be remembered by all on this site for a very long time:-)

Please stay in touch, at least for a while to let us know how you are…[Read more]

Hi Eve

Keep laughing!!! Honestly some people the things they say!!

Sarah xx

Hi Min
There is no way Peter should be going back and forward to hospiyal the district nurses should be able to do daily bloods, as Dai says things always go wrong on a friday afternoon, I know this as a DN and a carer, so shout loud. I hate to say this but macmillian nurses seem to work 9-5pm monday to friday, hopefully you have accsess to the…[Read more]

Good for your Dai
Life is for the living and its your duty to live it to the best of your ability,,even with one leg bigger than the other.:-P
Janet must be a very brave lady letting you drive,Slims on the Dex and once more has been band!!:-)I love driving LOL don,t tell Slim any excuse to get behind the wheel.
Tomorrow is another day.Eve