Hi Bridget
I am pleased to hear you have finaly got the pain under control. Did I read somewhere that you are going to start Bendamustine? not up to date after my long break. Home tommorow and back to reality.
Hope all goes well for you
Luv Min
Hi Eve
Why dont you start up a support group? if there is nothing available this web site may be able to help you to organise one!
It will give you something posative to achieve that everyone who needs it will apreciate. Just a thought
Min
Dear Gill and Stephen
I am so so sorry to hear about Stephens prognosis, I know how desperate you must feel and how much you will be pinning your hopes on Revlamid. Rightly so, no one knows what will and what will not work with this bast*** disease.
Peter was on it for a 6 months and in the 1st 4 months the results were briliant we went on our 40th anniversary holiday due to Revlamid. But by the time we returned home it had stopped working.
Truth is his strain of mm was just too virulent for any medication and the more medication he too the weaker he got. Which is or was such a shame as when he was not on medication he felt so much better.
I cant give you the advise you need as only you can decide what happens from here, other than enjoy and savour each moment as if its your last then there can be no regrets. Sod the dont drink motto if it makes you happy have it.
Make happy memories that will be relived and if the Revlamid works your in a win win situation.
I would like to respond with a private message gill but you profile does not allow it!
I am sitting in bed having had the 1st night of seven hours sleep in months while I listen to a gaggle of canada geese that have been roosting on the migration path outside my daughters home in the middle of Warks the peace and tranquility together with two active granchildren have mended my spirits somewhat and feel almost normal!
Luv
Min
ps Gill Revlamid is a tablet so you can flee to france for a while and not worry.
Time to get back to the subject matter of I love…… you all.
Dai,
You made me cry, mind you so does everything at the moment.
I thought I was prepared for all this.
How wrong, the reality is far worse than anything I imagined. Cannot motivate myslelf. Cannot sleep, cannot do much of anything and slowly going round the bend as cant remember much of anything.
Given that this darned cancer is incurable, why is there no help on here for those suffering from the grief that will inevitably occur?
Its almost like we all hope against hope its not going to happen and we prop one another up with hope which is admirable and needed depending where you are on the journer.
But there is no heading or subheading for the people who lose the final battle.
I feel that in returning now I should not be here as this is a site for hope and dreams of a future but when your world ends and life goes on for those still battling on, or left behind.
I loved being part of your world but but its just not good for morale to hear from people who have lost the fight.
I posted off the funeral collection and made over £800 thank you to the kind people who made that possible.
I think in the past two years I have had more than value for money out of belonging to the family of MM ers.
Battle on my friends but dont forget to enjoy and savour each day in case the next day is stolen from you suddenly and without warning
Min
Hi Gill
Hope Stephens op goes without a hitch and he recovers quickly good luck to him, and you of course as no doubt you will be a jibbering wreck whilst its happening.
I have had a dreadful dose of flu/cold no doubt due to getting no sleep for so long and my niece brought me some amazing pills that cut it off very quickly. EchinaCold. dried juice of Echinacea purpurea manufactured by Schwabe Pharma.
I had never heard of them before but my did they work quick so I will be keeping a supply available as now I am no longer eligible for flu jabs!
Min
I love the discovery I made in the loft yesterday. I found in my sons boarding school trunk, my husbands uniform neatly folded with his hat and white parade gloves. Underneath it was a white thick folder with a large number of official looking documents, all of them commendations that I had never seen before.
In the same folder was a wallet I gave him many years ago inside of it was a poem I had written to him before we found out I was pregnant with our first child.
It was folded into a small square and was so dog eared and fragile I realised he must have taken it out and read many many times.
It was in a little plastic package which also contained a black St Christopher medal. I gave it to him when we were married, Then it was shiny bright and silver. I love that he kept all these things without telling me. I am sad that he put the St Christopher in the loft obviouslsy because the chain broke…. I love to think that if he had kept wearing it he would still be safe with me.
I love the note he wrote in his spriral note book which was his reminder book' inside of which was a letter to me to say sorry for upsetting me.
I loved finding a bag full of 'blueees ' letters he had written to me over the years whenever he was posted abroad and before computers all neatly in datal order,
I loved that man and the way he provided for me to the end. Without my knowledge even though I was the book keeper.
I am discovering a hidden side to my husband almost every day, and I thought I knew him. After 40years he is still springing surprises on me and I love him for that too.
Im So sorry Sarah,
I imagine you must be numb with all that is being thrown at you at the moment.
Im sure you are shock but unable to feel it due to the shock of losing Gordon.
Think its time to slow down and take a deep breath. Relax and just sob. life is so bludy unfair.
Dont we know it.
Private message me if you want to talk I can listen if you need to let off steam.
All my love
Min
I had another rant with a credit card company today…. speaking to an unintelagble man in India…. well you can imagine my reaction to him not understanding my Geordie accent. when I asked to speak to someone in England he said they had no office in England…mmmm the blank statement came from UK so he got the other two barrels and needless to say in no time at all I was speaking to a well spoken English woman 'down south'
She got the next set of bile and acerbic anger… For heavens sake why would anyone lie about there husband dying?
It is an amazing way to let go of anger… Whilst I feel sorry for the poor sod on the end of the phone just got to get mad at someone. Made me feel a whole lot better. Handled like a true head-case. Cant wait for the next one…. bring it on I am ready to kill, metaphorically speaking.
Dai this to me is cathartic
Min
I am very happy for you Helen, 😉 Have a good life. Pleased to have met you for a short while, you have been in my thoughts lately wondering how you were doing, keep up the good work too and make sure they FRH get the feedback we discussed about the day unit and sick people please.
Love
Min
Welcome back from your holiday Dai, and now you can have many many more.
Wonderful Wonderful news, I am so very pleased to hear you can get back to living a 'normal' life again.
Now get that book written and make sure Minnie features loud and often !!!! no excuses for not getting on with it.
Before that give your good lady wife a big hug and follow it up with a bunch of flowers as she has got you this far and no doubt been terrified all the way…
Love
Min
Whatever it takes Bridget, take it.
You know as well as I do that pain is not good for you or for the people who love you and care about you they dont want to see you in pain. If Dex does the business then dex it is… Just go and find a tent to wear!! hee hee cos you know your worth it. Bite your tongue when the alter ego appears from side and just pray the pain stays away.
Glad you have found something that works and more imprtantly it doesnt make you stupid and want to sleep.
With all the energy its going to give you you can come and give me a hand to paint the walls….
Nope havent done a thing today had an old friend round to reminisc so thats my excuse and i am sticking to it
Love Min
They can supply it but its vile cheap ice pops. There is an Asda fairly near to the hospital in Gosforth if you have a sat nav go there 1st. Buy Ice lollies more interesting than plain old ice.
There is a shop downstairs in the lobby but not much choice but the prices are crazy. Do a google map of asda in wallsend or Gosforth. Each of them is about 2 miles away.
All the best
Min
I love cussing…. I love life, I love lying in bed on a weekday and weekend. I love the life I had before MM got to us. I love our children, our grandchildren and my home.
Peter made all that possible even the cussing though he never cussed at me.
I love the people who have become firm friends on here who I would never have known if the goddamn illness had not affected us all.
I love the thought that one day someone will find a cure for all cancers including this one.
Finaly I love my computer….without which I would be lost. Most of all I love my husband and the way he put up with me … because I am not easy to live with but he adored me and fought to stay as long as he could.
MIn
Decided on some retail therapy instead and visited building society to close his account down, what a palaver.
Next its the premium bonds to cash in. how ironic is that he won £25 quid and the cheque had not been paid in.
The car (his disability one) just got me home before the petrol light came on so they can come and get it now.
Had to go to the job centre to get certified copies of his death certificate and our wedding certificate….
So they really think I wold make it up??????
Had a brilliant row with British Gas who keep ringing up to speak to him..Even though we are not there customers boy did I let rip…. all the 4 letter words you can think of .. Following which a bouquet of flowers from them British gas that is. to apologies
I would think my call and screaming at them will become a training session for future idiots.
My desk is covered in paperwork of all kinds that needs to be done but cant seem to motiviate myself .
Soes any one know the answer to this one
We had a joint bank account and I want it to stay that way. Do I have to tell them too? I dont want to be just Mrs C
I think Debs in banking someone let me know as I paid in his cheque feeling like a thief knowing its his but ours if you know what I mean.
