PaulCreek

Forum Replies Created

Viewing 15 posts - 46 through 60 (of 107 total)
  • Author
    Posts
  • #92474

    OutdoorsPaul
    Participant

    Hi Helen
    The "right of the ostrich" love it….!:-D I may use that right at some stage myself.
    keep us up dated
    cheers Paul

    #92466

    OutdoorsPaul
    Participant

    Hi Helen
    I think i maybe able to help,i have had 2 occupational health interviews.Now i had the choice either to attend at their offices or have a "over the phone interview".I had the over the phone version which saved me a 24 mile round trip.
    After the "interview" you will/should receive a written report of the meeting,below are the headings on my report.
    [b]Currents health issues[/b]-You give them info about your condition,treatment,how you feel while on and off medication.let them know about your medical certificate (if you have one)and just tell them how you feel you would like to return to work.My advisor has stated that I would have a disability relevant to the Equality act 2010 and is clearly defined in the act.
    [b]Current capacity for employment[/b]
    My advisor stated in this section about my ability to return to work at this stage,also included about any change of hours that may have been requested when returning to work.

    My employers (local authority) have been very very supportive,and I have not found this a problem area.You should be able to take union representation in should you need.
    You maybe asked to share the report with your line management,but this needs your agreement.
    I have been off work now for 9 months and had 3 home visits from my manager and 2 Occupational health interviews all have been very supportive,with thoughts towards my return to work when ready after SCT and allo graph.
    I asked the question-"will i be made redundant at the 12 month point?" answer was absolutely not!
    The only thing to watch for I think.. is early retirement due to medical condition.
    Hope the above helps
    cheers Paul

    #99100

    OutdoorsPaul
    Participant

    Hi Sarah
    Always good to hear great news like that…Henry well done that man!!:-)
    Cheers paul

    #99076

    OutdoorsPaul
    Participant

    Hi Andy
    I asked my consultant about alcohol and she says 2 small glasses of red wine is allowed on a weekend.(or equivalent)
    Personally i think your body will tell you whats right, and going out every so often is a good thing.
    I am currently on valcade,Dex,Doxorubicin and on 1 week take all three and my sense taste goes completely out of the window!including alcohol.So on my week off meds I have a treat Fri/Sat.
    Something will work
    cheers Paul8-)

    #99059

    OutdoorsPaul
    Participant

    Hi Mavis
    My consultant told me last week after my PET scan that my left ribs and sternum were were weaker(lesions).My consultant is great and she knows that I ride a mountain bike (when meds allow me!) which inst often enough.She now tells me "stay off the bike till after SCT"
    All these things can come out of the blue abit and change things,but we are all getting used to change i suspect.Listen to me me!! probably one of the youngest on site rattling on!!
    My first treatment(RCD) failed but now on valcade and dates set for cyclo-priming and SCT harvest at Jimmy's in Leeds .
    Love Paul

    #85716

    OutdoorsPaul
    Participant

    Hello Steph and Andy
    Glad you finding the site both informative and supportive,your right its a whole new ball game but there's lots of people on here who can give good advice.:-D

    #92389

    OutdoorsPaul
    Participant

    Hi Kirsty
    I was diagnosed last Aug at 39 and it was abit of a bomb shell as well,but the people on this site a great and always happy to support where can.I turned 40 in December and currently on valcade injections and awaiting stem cell transplant.You will come across medical jargon….if unsure just ask we are all on a learning curve.But stick with this site for sound advice and support.And as Bridget would rightly say listen to your body and and when you need to rest "rest" and when you got the energy "go for it".
    cheers Paul

    #110206

    OutdoorsPaul
    Participant

    Thanks for the info Bridget,I will give that a shot.Hope you enjoying the lovely sunshine.Just for your info on the Benefits issues i managed to claim Employment support allowance so i have entered the system!!!thanks for the support.
    Love outdoors Paul
    PS Rachel and I off to Scotland next week to small Island called Cumbrae for 4 nights…cant wait.8-)

    #92297

    OutdoorsPaul
    Participant

    Hi Eve
    Unsure if I have read your e-mail right but here goes.I have received my letter for SCT.The process explained to me is as follows.
    I had tests for heart,lungs and CT and MRI and only one still to do is a dental check.That should be fine as i go often.
    My cyclo priming is on 14th May with harvest due 23rd/24th/25th May at St James Leeds (jimmy's)
    My travel time is not as far as yours maybe 40 miles round trips,seems they should try to do as many tests on one trip for you guys as possible.
    stay positive and keep in touch.
    love paul

    #92285

    OutdoorsPaul
    Participant

    Hi Eve
    Fantastic news on slims move towards SCT, may the sun keep shining on your corner of Kent:-)
    cheers Paul

    #104410

    OutdoorsPaul
    Participant

    Dai
    I am currently on the PADs route and taking Dex.Week 1 of my cycle i take Dex over 4 days,which is 40mg per day.
    I get the hiccups,upper body weight stomach/chest/neck.I also get some hot sweats at night and my pillow can be wet.So dehydration could be an issue but I drink between 2-3 pints of fluids a day.
    I do feel "wired" when on Dex and I think it does effect the thought process I.E feeling "mentally foggy".
    Paul

    #107516

    OutdoorsPaul
    Participant

    Dear Michelle
    If I could give you a big hug i would!..I am so sorry to hear about Phil passing away.I can only echo the words of others and say remember all those goods times you had together.
    Lets keep in touch
    Paul XX

    #98975

    OutdoorsPaul
    Participant

    Hi Andy
    Just been catching up on posts,great news that you are home,enjoy some home cooked food.
    take care
    Paul:-)

    #104385

    OutdoorsPaul
    Participant

    Hello David
    Are you on Dex? a side effect of Dex can be hiccups (i get them)I have found that metaclopramide (anti sickness tab)helps to ease or stop them.
    otherwise hope you are well and enjoying spring weather.
    cheers Paul

    #99005

    OutdoorsPaul
    Participant

    Dai
    Just scanning through posts and its good to see your early indications are that the meds are working.
    enjoy the spring weather
    cheers Paul

Viewing 15 posts - 46 through 60 (of 107 total)