I am so pleased for you, I know you like my wife, will feel all the responsibility now but the Consultant?s anger should give you one very, very big clue to the course you should steer.

Be absolutely bloody minded about possible infections. Make sure everything is spotless use detol ? germ killer type cleaners etc? Do not allow anybody who…[Read more]

Hi Eve, I would be staggered by that reply as well.

In Taunton we generally do not see the same Consultant consecutively i.e. twice in a row, unless the Consultant has specifically asked to see you. I consider it a terrible system, sometimes I feel I am on factory roller feed table. I am going along to the inevitable end and my card is…[Read more]

I am getting a little confused; you guys are way ahead of me when it comes to treatments. I have my next appointment with a Consultant on Friday 5th. At my last last consultation I was told all being well I would probably move on to Velcade with Dex.

I have been getting a fair amount of bone pain and am taking Tramadol and Paracetamol for…[Read more]

I have been taking Bisphosphonates in the shape of Loron since July 2009, two tablets every night. When I first started taking Loron I was told I would be on it for 2 years max because the risk of ONJ was high after this point. It turned out that the 2 year dead line was because nobody had carried out any clinical trials with people taking the…[Read more]

That, Peter, is really excellent news. Well done. 😎

Kindest regards ? vasbyte

David

Getting back on topic 😀 😀

When I was originally diagnosed in July 2009 I asked for a prognosis. I specifically said I did not want any bull sh*t I had things I must do for my wife and I want to know what time I realistically had left. What is more I wanted only useful time, time I could do things in and not time spent in a stupor.…[Read more]

You are right Ted about communication. I noted that, if a little surprised, the Haematologist consultant asked me what went on at the radiotherapy consultation. I had expected him to know! He did not disagree with the course I had taken but on the other hand he did not say he agreed, which is slightly odd looking back on it. I think I will…[Read more]

Hi Norma, Welcome to the forum; it is a funny old place not a place you want to be but on the other hand you can meet some real nice people and make some good friends. I wish you well on your appointment Monday.

I think it is going to be a long night for me again. I have just come off Tramadol, which makes you sleep for the world, and I…[Read more]

This is an interesting debate – thanks Ted. I have MMG and had the usual treatments ending in a SCT in Dec 2010. My MM is now relapsing and subject to the results of a full body MRI scan I am moving onto second line treatment, Velcade and Dex (oh Happy Days). The appointment to decide this is in 3 weeks time to the day.

6 months ago I was…[Read more]

A trip to Greece wow 😎 can I come in the luggage. I also love the Lakes, did some walking there many years ago ? not a Wainwright mind you!

That all sounds great to me Andy, considering your start point and the journey you have had.

All the very best on your holidays ? enjoy them.

Kindest regards ? vasbyte – David

Hi Tina, Have you got back your taste buds?

The plan most seem to use is to go for very small portions of your favourite food on small plates and then gradually increase the quantitiy of food.

I got my taste buds back on Christmas Day after my SCT in Nov/Dec 2010. But I did not have a great desire to eat. Unfortunately I cannot remember…[Read more]

I think Frank's attitude to infection is dead right. You cannot and I stress CANNOT be too careful for at least the first 3 months after a SCT.

Give him my best wishes for a safe and successful journey.

Kindest regards – vasbyte

David

Silly little child?s game really 😀 I always say that when I lose, my wife says!

The object is to pinch and punch (lightly off course – unless you have just had a row – he he) your partner on the first of the month before she/he does it to you. It can be anytime after midnight on the last day of the month. You have to say at the time "Pinch…[Read more]

Well spotted Tina. I jast loove an idit buton:-D

Kindest regards – vasbte

David

p.s. We have been married 50 years and I cannot remember ever not playing Pinch Punch. It has helped get us back together on many occasions!

That is great news Ozzy. One hell of a drop 48 to 10 😀 😀 . You seemed to have settled down well to Velcade – none of the dreaded PN ?

Kind regards – vasbyte

David

A lot of people get confused between a terminal illness and disability. You can have a terminal illness and not be disabled and of course vies versa.

To qualify for Attendance Allowance you need to be a Pensioner. i.e. over 65. Disability Living Allowance is for those of working age.

Put quite simply to qualify you MUST NEED someone to…[Read more]

Hi Guys and Gals, Thanks for the support and advice very welcome.

Yes, Eve, I very much intend to see my flowers bloom. I have just received the first batch of Plug Plants, 340 Red Geraniums ? I now have to pot them on which is always a tedious job. The garden will look the same as last year; I tried to persuade the better half to go for…[Read more]

Hi Eve, The hosptial is 500 yards from me so going in is not a problem. How many doses of Velcade did Slim have?

Yes, your are right "[i]no live myeloma cells in marrow[/i]" is a lovely phrase.:-D

kindest regards – vasbyte

David