Stuart will delete them when he comes in on Monday no doubt.

Kindest reagards – vasbyte

David

Hi Sue, Firstly welcome to the site, not a thing you ever wanted but the people on here are good people and you will get lots of support I am sure. Secondly if you have any questions about Myeloma you have three avenues. One, the site forum, two, the site itself which has bags of UP-TO-DATE information and lastly the Myeloma UK Nurse – her…[Read more]

I can only offer my support Emma.

3 years ago I faced the possibly of becoming a Quadriplegic. When the surgeon came in to discuss the operation I said to him, ?if it all goes tits up don?t bring me around, I am not having my wife wipe my bum?. He just said, ?fair enough? and walked out. The next time I saw him was sitting on the end of…[Read more]

Tom do a search for "Musings from ward 9". I did a post whilst in ward 9 at Musgrove Hospital and I up dated it every day during my SCT. You might find it interesting.

Kindest regards – vasbyte

David

Just a quick welcome Tom, Got to take the wifey in to her "Xmas Lunch with the Girls".

I was diagnosed Jul 09 with a Single Plassewhatsit. It ate the 4th vertebrae in my neck and my head is now held up with internal scaffolding ? brilliant job. I have gone through the Sct, Nov/Dec 2010, and I am now on a plateau at 2.8 pp, I never did go…[Read more]

John, I just curled up at that, my level of humour to a T. It has got me in so much trouble in the past as I expect it did your Dad.

When I was being told I had Advanced Prostate Cancer I said to the Consultant, ?Can you keep me alive until Myeloma kills me?. He answered very seriously, ?Yes, I am sure we can?. It then dawned on him what I…[Read more]

Sorry Charlie I cannot help. I had a PE from a DVT in my leg about a year before I was diagnosed but that is no help to you. Have you tried the Myeloma Nurse?

Kindest regards – Vasbyte

David

There has been much discussion whether it (6 pints of water) includes tea and coffee etc… Some say it does others it does not.

When I was diagnosed in July 2009 I was told in no uncertain terms that it is 6 pints of water a day and that means water and that was by the Consultant! Being an ex military man(and well trained by the wife) I am…[Read more]

And a big APPY birthday to them as well Tom. Mine are now 2 years old.

Kindest regards – vasbyte

David

Yes I think Tom is right Babs, I have never heard of vorinostat.

Kind regards – vasbyte

David

Wonderful news Eve, thanks. I am really so pleased for you both. Photos, photos PLEASE.

KIndest regards – vasbyte

David

Hi Keith, really enjoyed your post. Keep going buddy just keep going.

Kindest Regards – vasbyte

David

Andy, I think Dai has got it just about right!

Keep fighting my friend you just never know what is around the corner. July 2009 I was told in no uncertain terms that I would not make my 50th Wedding Anniversary. I have just had a great weekend with my children and am looking forward to a Ten Pin Bowling and Pizza night with my grandchildren…[Read more]

Hi Helen, My Daughter with my Wife behind her are on the left. I am on the right with my son behind me.

We have just come back from a beech bar, where we had a great curry, and are getting ready to go home tomorrow. I struggled a bit getting up the hill:-) .

A completely different anniversary for us but probably the best anniversary we…[Read more]

Thank you for thinking of us.

Thursday night we had an excellent dinner with 6 of our very close friends, friends that have stood the test of time and been through the ups and downs of life with us.

We are now in a 5 star log cabin, log fires and hot tubs in Porthtowan, just east of St Agnes in Cornwall with our son and daughter and their…[Read more]

Eve there are limits to everything and giving up my Guinness will never be on the agenda 😀 😀 Have a great great trip

Kindesdt regards – Vasbyte

David

You know Debs I am sure Myeloma UK will have been really pleased with your comment "Eve's post made me laugh about the Under 50's site [u]It was set up in the early days before this forum was changed[/u]".

Kindest regards – vasbyte (aged 69 10 months and 22 days)

David

Just thought I would say welcome Karen and the very best of luck with your treatment. As you have found no doubt there are some real nice helpful folk on this site.

Kindest regards – vasbyte

David

Thanks Jean for the heads up.

I am a putrid shade of green with envy. New Zealand is high on our list of places we would like to go but sadly we are not now going to make it unless we win a great deal of money on the lottery 🙁 .

Have a great time the both of you 😎

Kindest regards ? vasbyte

David