Perkymite replied to the topic Bendamustine Here We Go in the forum Treatment 12 years ago
Keep going buddy just keep bl88dy well going. I wish you all the luck in the world
Kindest regards – vasbyte
David
Perkymite replied to the topic Joining the party in the forum Newcomers 12 years ago
Welcome Stewart, You will find all you seek and more on this site, some real nice people and good sound advice. The one thing to bear in mind is that Myeloma is a very individual decease so whilst we are all going down the same road it is a very broad road.
Kindest regards ? vasbyte
David
Perkymite replied to the topic Cardiff Information Day in the forum General 12 years ago
Hi Ange, I would have liked to have gone to that one, I always planned to go to one in the South West but have never made any of them yet. 24th is my wedding anniversary so do not think the wife would wear that 😀 So enjoy the day and if they unveil a cure please let us all know;-)
Kindest regards – vasbyte
David
Perkymite replied to the topic STRESS in the forum Carers 12 years ago
Hi Eve, I could not agree more with Dia. If you can do it take some time out for yourself where you can just "chill? or us older people would say "relax" for at least two consecutive days, seven would be better but you may not have that luxury!
Kindest regards – Vasbyte
David
Perkymite replied to the topic Oh – Oh it's back in the forum General 12 years ago
Hi Carol, Sorry to hear your bad news. I again have no experience of PAD not even sure what it is! However I suspect I may be heading down your route, or the route next to it, shortly so please keep us informed of how you go.
Kindest regards – vasbyte
David
Perkymite replied to the topic Bleeding Gums in the forum Side-effects 12 years ago
Nope, I have not had bleeding gums in the past three years. I have had dental treatment, a loose filling was replaced, and my usual inpections at which they always "prick" the gums and I have had no prolbems.
Personally I would side with Dia in this.
kindest regards – vasbyte (although not to hard in your case;-) )
David
Perkymite replied to the topic hospital again….. in the forum Under 50s 12 years ago
My PP level was 55 when diagnosed in July 2009. I had major surgery on my neck and 13 doses of radiotherapy. My sct was in Nov/Dec 2010. Luckily, I have not suffered any major bone pain which I think supports the fact that Myeloma is a very individual decease. I wish you and Melvin the very best of luck, I think the key is to get those…[Read more]
Perkymite replied to the topic It is all supposed to be OK now in the forum End of Life and Grief 12 years ago
I know where you are all coming from, when I lost my Son, aged 19, in a car accident I just felt the world should stop spinning but it did not it just carried on. All that has been said by everybody here is so true. It took me 18 months to be able speak my late Sons name – Robert. That was 26 years ago now and I still put flowers on his grave…[Read more]
Perkymite replied to the topic Record Low Bloods in the forum Side-effects 12 years ago
What a bummmer Keith.
Recently I had to chose between Radiotherapy which could "cure" my Advanced Prostate Cancer but could severely interfere with my bowels and everything else down there or Hormone Treatment where I could grow breasts and suffer hot sweats, amongst other unpleasant side effects, which would put the cancer on hold for 2…[Read more]
Perkymite replied to the topic Good News! in the forum General 12 years ago
Hey, What GREAT news – that is wonderful I am so please for you, just keep on going 😀 😎 😀
Kindest regards – vasbyte
David
Perkymite replied to the topic Waiting in the forum End of Life and Grief 12 years ago
Dear Sue
I am sorry to hear that Michael is coming to the end of his road. I am even sorrier that it was broken to you in an apparently brutal manner. Please do not feel you have to apologize for your posts you have absolutely no reason too. We are here for you.
Enjoy each other while you still have the chance.
My kindest regards ?…[Read more]
Perkymite replied to the topic Releasing stress in the forum Off topic 12 years ago
Some really good replies on your topic Mary, reading them I think the thing that shines through is that ?Stress? is as individual as Myeloma.
My wife and I will have been married 50 years come Nov 24th and in those 50 years we, like you all, have had our ups and downs, nobody?s life is all milk and honey. We have had some pretty disastrous…[Read more]
Perkymite replied to the topic Infections in the forum Side-effects 12 years ago
Hi Nettie, we seem to have the same ?brand? of Myeloma. Unfortunately my GP did not pick up the symptoms just kept giving me more ?creams and potions?.
Following my SCT my PP dropped to 2.4 never zero. That was Dec/Jan 2010. I was told at the time the SCT would only probably last for 18 months so I am past my Sale by Date so to speak!…[Read more]
Perkymite replied to the topic Colin SCT starting, here goes!!! 🙂 in the forum Treatment 12 years ago
Can I just add my best wishes to everybody else?s posts, Colin I am sure he will fly through it.
A word of caution when he comes out [u]it is not over[/u], you must be fastidious about avoiding any infection for at least 12 weeks. Go over the top on it ? better safe than sorry!
Kindest regards ? vasbyte
David
Perkymite replied to the topic Newbies in the forum Newcomers 12 years ago
A warm Welcome Gill.
The others have giving good advice, especially about not surfing the net for answers. This site and MacMillan have all the UP-TO-DATE information you will ever need.
I was diagnosed in Jul 2009 at the ripe old age of 69. I have had my Stem Cell Transfer and I am fit and well but I still suffer from cold feet, not just…[Read more]
Perkymite replied to the topic Infections in the forum Side-effects 12 years ago
Decided not to bother with the PP check and instead wait for my appointment on the 21st December. By the time give the blood and then wait for the results another 7 to 10 days and then try to sort it out with the hospital it is not worth it.
The infection is clearing up nicely – Timovate cream works well.
I have no noticeable bone pain…[Read more]
Perkymite started the topic Infections. in the forum Side-effects 12 years, 1 month ago
Hi all,
In the cover letter to my Doctor, after my last appointment at the hospital for Myeloma, there was a statement "no infections as yet". When I read it I was thinking of chest infections such as colds and the like.
This week I suddenly developed a urinary tract infection ? like thrush. I was instantly reminded of the series of…[Read more]
Perkymite replied to the topic Velcade and Cold Feet in the forum Side-effects 12 years, 1 month ago
I got PN when I was on my original CDT treatment in 2009. I call it "sponge feet? because that is what it feels like. I also suffer from very cold hands and feet, and they are cold as opposed to being hot but feeling cold.
My sponge feet have got marginally better in that I have got so used to them that it is no longer even mentioned, the…[Read more]
Perkymite replied to the topic A BIG Hello in the forum Newcomers 12 years, 1 month ago
Hi Amanda and Bob, just a quick welcome(?). I have been here since 2009 when I was diagnosed with Myeloma G, the bog standard one. It is just not the forum that is so great here the site itself has so much UP-TO-DATE useful information on it.
look forward to seeing you on the forum but now I must go play World of Tanks with my…[Read more]
Perkymite replied to the topic Traipsing (Not Tripping) Down The Aisle in the forum Off topic 12 years, 1 month ago
Have a great day Dai, you deserve it buddy.
Kindest regards – vadbyte
David