Hi Vicky, My most sincere condolences for your loss. I know how you feel, 26 years ago my 19 year old son died. It took me 18 months to speak his name without crying. You feel the world should stop or something but it just carries on. It is hard, real hard when you lose someone you love.

Your Mum will need you more now than she has ever…[Read more]

Best of luck Collin, and Chris in Ward 9, They are a great bunch in there, the Ward Sister has been on the cancer ward I think for some 21 years, unless I got it wrong which would not surprise me.

If you get problems with your throat, I did, no matter how many mouth rinses I took, I can suggest: Complan mixed into a milk shake, Ice cream and…[Read more]

Hi Kerry, Welcome (?) to the site nobody really want s to be, but, we are glad we have the site and the friends and support it develops.

The real big problem with Myeloma is that in every human being it is different same basic characteristics but just about everybody reacts differently. So giving advice or encouragement can become a bit of a…[Read more]

It really is a strange old decease and that is for sure. But glad you are feeling on the up.

Kindest regards ? vasbyte

David

We all understand what you are going through so do not worry about "getting it off your chest" so to speak, all of us here are here because we want to help each other.

kindest regards – Vasbyte

David.

Hi Vicky, We are in a similar position in that Mo and I have been married 50 years, or will be in November this year. I am suffering with Myeloma and my original prognosis was 2-3 years in 2009. I did not expect to reach my 50th and have been planning for my demise for the last couple of years.

One of the biggest problems for my Mo will be…[Read more]

Yeah, yeah, yeah so you been ill, now tell me again why you have not been posting 😉

Great to see you back Dia we all missed your posts. Keep fighting buddy.

Kindest regards – vasbyte

David

Dear Rachel, please accept my most sincere condolences. In the short time I have known Paul he came across as a real nice guy. I will miss his posts.

Kindest Regards ? vasbyte

David

Actually Helen we are going to do something completely different. Our anniversary for the last 49 years has always been about Mo and Me. The norm would be to book an expensive exotic holiday, usually in the Indian Ocean or South China Sea area and off we would disappear, returning suitably bronzed.

This year we decided after much…[Read more]

Hi Helen, Lovely to hear off your trip I do hope the infection clears up for you. One of the comments in my Consultants follow up letter from my recent appointment said ?no infections yet? as if she was expecting some! It is the start of the flu season, my injection is 3rd November, which is not a good time for us all so I am keeping my…[Read more]

Hi Peter, I lost all my bodily hair accept my eyebrows :-S . Have no idea why not the eyebrows. Both times 🙁

Originally I, like most men over 65, had a swollen prostate and I was being monitored in 2008/9. Then Myeloma reared its ugly head and as my prognosis at the time was 2-3 years max, sale by date being July 2012, we kind of…[Read more]

Hair Hair I could not agree more – sorry could not resist it.

I am on my second lot of hair now. My hair has been very thin all my life so I was quite surprised when people noticed when I lost my first lot. I now have my hair back again although I notice it has not come back under my armpits this time nor has the five hairs I had on my…[Read more]

Well done Andy, Just keep bl—y well going Myeloma does not like that at all:-D

kindest regards – VASBYTE

David

Hi Kerry, a belated welcome to the site.

Tom is right your best chance for info on this is our Myeloma Nurse. I have been on the site since 2009 and cannot remember anybody actually suffering from Osteonecrosis.

Did your Mother have smouldering myeloma for some years that went to full blown Myeloma or has she actually had Myeloma for 14…[Read more]

Hi Mike, I always hesitate about using the word welcome because none of us want to be here really, but you know what I mean I am sure, so welcome to the Club;-)

You will find bags of information on this site have a good look around and the really good thing is it is up to date. Most of the stats and info you will read on the net are at best…[Read more]

I loved your Waffle as you put it, like Tom and the others it brought a tear to my eye. I feel, through you, I have shared Stephen?s journey, one we will all have to make at some point, and I thank you for that.

My faith allows me to believe of an existence after death and in my world Stephen is looking down at you now and I am sure he is…[Read more]

Hi Eve, better late than never as they say! Well done to both of you I will envy your trip to New Zealand, always on our agenda but never got there.

That is good news about Dia Tom, thanks

kindest regards – Vasbyte.

David

Sorry Tina, just joking about the shorts and sandals etc… Although I will be using the Shirt my Daughter bought for me.

My wife and I talk generally about the funeral arrangements but she does not like to get into the nitty gritty which my Son/Daughter will handle.

However building my own coffin has opened up everybody?s minds to what is…[Read more]

My instructions to my wife Tina are:

I will be dressed in a very colourful silk shirt that my daughter bought me some years ago. I feel really comfortable in it.

I am vertically challenged, ok I am a short guy 5ft 7 1/2 inches, well now I am considered short but in my youth I was average height which was 5?7?, but there you go. I like…[Read more]