Hi Tom & Min, It is in bits in my workshop at the moment Tom but I am going to start final assembly soon. I am not in any rush because I feel great at the moment, I have my 3 month Myeloma appointment this Friday. My Son and Daughter are finalising the pictures we are going to put on the coffin, we have selected 6 at the moment and need two…[Read more]

Just what you need Andy, I had a great week in Menorca. Whereabouts are you in Greece?

Kindest regards – Vasbyte

David

Dear Min that is totally incredible I am sure Peter would be so proud of you I know I am! Have a great time.

Kindest regards ?vasbyte

David

I do not know whether I have my wires crossed here because I am way behind on the posts, I have been so busy lately. I had my one and only SCT in Nov/Dec 2010 and I have not had any maintenance drugs since then, just Loron for the Dee Old Bones. Probably not relevant but there you go!

Kindest regards ? vasbyte

David

I am on loron and have been since July 2009. I recently had a problem with one of my teeth and I was told that for an extraction I must stop taking loron for 1 month and could not start it for 2 months. As it happened the dentist managed to fill it in and all has been ok ever since.

Kinde regards – vasbyte

David

Thanks Gill for letting us know about Stephen?s final moments.

I have said to my wife and family that I do not want to be drugged up to the eyeballs when my time comes, pain relief is one thing but total mental oblivion is quite another. Stephen clearly looked Death straight in the eye with two fingers raised, good on him.

I wish you…[Read more]

Dear Gill, I am so so sorry for your loss. Your post brought tear to my eyes. Stephen will rest in a pain free peace.

My love and thoughts are with you

David

Hi Andy, Sorry to hear that you cannot go down the Allo route. There is a train of thought that it is overrated anyway and the pure drug route gives more remission – I have not got a clue I leave all that up to the experts:-D .

Enjoy the Lakes Mo and I had a great walking holiday there many, many years ago. The weather was terrible but we…[Read more]

You are not "ignorant" my friend.

I have a South African branch to my family and four years ago when I was originally diagnosed with Myeloma, and things looked real bleak, one of my Nieces sent me an Africans word to hang onto "Vasbyte". Its literal translation is grit your teeth. But she informed me that in South Africa it is used more to…[Read more]

My impression is that Myeloma is undetectable in the initial stages unless you are lucky enough to have a really switched on Doctor!

My MM was diagnosed after it ate the 4th vertebrae in my neck, however the Consultant, after studying my medical records, said that she thought I had had it for at two years. Two huge clues which were missed…[Read more]

Hi all, Thanks for all the support Guys and Gals, I will say it again "you are a bunch of diamonds".

Peter, I was told that they are two separate trains going down adjacent tracks and as such treatment should not overlap. The question of course is which one will hit the buffers first Having said that they are apparently just starting to use…[Read more]

Hi Charlotte, Sorry to have missed your post earlier but I have been busy lately and have just come back from a nice week in Menorca with my Grand children.

Firstly I recommended that you do not go surfing the web for info and cures. All the information you want is on this excellent site. Have a look at the personal stories. Most Stats…[Read more]

Hi all, Thanks all for the support and good wishes you are a real bag of diamonds.

I will let you know how I get on with the MRI Scan although I am not expecting the results until Fri 7th Sep.

You are right Tom, Onwards and Upwards vasbyting all the damm way!

Kindest regards ? vasbyte

David

Hi all, Many thanks for the good wishes.

It did not come as a surprise though. When I was being diagnosed with MM 3years ago I had to have 2 cat scans in quick succession. At the time there was a major row between the consultant radiologist and the haematology consultant about the number of scans I was havingin a short period of time. This…[Read more]

My heart goes out to you Gill. Fix your mind on the good times.

Kindest regards ? vasbyte

David

Dear, Dear Gill, I missed your original post, I have been very busy the last month and I only pop in and out on the forum at the moment. The rest of the gang have said everything better than I could say it is great to see them rally to your support, support you richly deserve.

I wish you and Stephen the very best and I sincerely hope the…[Read more]

Your post Eve has brightened up my early morning, it now being 2.17 a.m. You tell Slim to keep going the way he is and he will be alright. I agree with everybody else book the holiday 😎

Kindest regards – vasbyte

David