Perkymite replied to the topic Proper Fed Up Mark III in the forum Side-effects 12 years, 4 months ago
Well I hope they sort you out Dia. It must be really debilitating.
I am having one of my rare, nowadays anyway, sleepless nights; I had a kip early on this afternoon which is unusual for me nowadays as I am always so busy. So I think that is the culprit.
Anyway, chin up buddy I am sure you can beat this, you have everything else that…[Read more]
Perkymite replied to the topic My first Stem Cell Collection Tomorrow! in the forum Treatment 12 years, 4 months ago
Hi Chris, I could not agree with you more, the facilities and Staff at the Beacon Centre are first class.
I wish you the very best of luck with your Harvest, I had to have two goes at it. At the first I only got something like 1.4 mil although I cannot remember the number exactly. I managed to get 2.4, in total, from the second harvest. I…[Read more]
Perkymite replied to the topic Another Club Member! in the forum Newcomers 12 years, 4 months ago
Welcome Michele.
Your good news is good to hear and being positive is definitely the right attitude. Since my diagnosis in Jul 2009 my wife and I have taken the absolute maximum out of every hour, it sounds as if you are doing the same.
I look forward to hearing more from you. Got to go I am helping sorting out all the "Junk" we have…[Read more]
Perkymite replied to the topic Just Diagnosed in the forum Newcomers 12 years, 4 months ago
Hi Charlie, I have only just picked up on this thread, I drop in and read the post nowadays but I am so busy I never seem to have time to settle down and reply:-) However something Eve said made me think I should comment.
[i]Lets start with transport,you can get financial help,also you do not say your age,but [b]you will be entitled to…[Read more]
Perkymite replied to the topic Stem Cell Harvest & SCT in the forum Treatment 12 years, 4 months ago
All the very best of luck to you Paul. I have the feeling you will fly through it and we all, know doubt, will look forward to your updates.
Kindest Regards – Vasbyte
David
Perkymite replied to the topic Vaccinations in the forum General 12 years, 4 months ago
Hi Trish, I had my SCT in Dec 2010 and I have not had any re-vaccinations, not even for travel abroad.
As a point of interest I was told to be wary of animals in general and not to touch them. Not sure how long this quarantine was meant to go on for but even now as a rule I do not touch stray animals.
Kindest regards ? vasbyte
David
Perkymite replied to the topic Radiotherapy in the forum Treatment 12 years, 4 months ago
Best of luck Andy with the latest treatment.
Kindest regards – vasbyte
David
Perkymite replied to the topic John's 2nd sct in the forum General 12 years, 4 months ago
Hi Amelie, Nice to hear from you again. I wish John the best of luck for his 2nd SCT.
Kindest regards – Vasbyte
David
Perkymite replied to the topic Lastest News in the forum General 12 years, 4 months ago
Keep going buddy just keep going.
I took up Tom's idea of using 6 x 500ml bottles. I fill them up every morning, then I can see where I am with fluid intake, also it silently nags you to "get them down".
Kindest regards – vasbyte
David
Perkymite replied to the topic A little bit of good news! in the forum Off topic 12 years, 4 months ago
We are blessed with seven Grandchildren, now ranging from 8 years to 18. Every now and again I see a mannerism, voice inflection or attitude that I recognise as my own or my wife?s and I know that a little piece of us has passed on to our grandchildren. It has been so rewarding watching them grow up. Enjoy!
Kindest regards ? Vasbyte
David
Perkymite replied to the topic Wish Me Luck as I have in the forum Off topic 12 years, 4 months ago
Best of luck Tom. Not a show I watch but I will when you are on 😉
kindest regards – vasbyte
David
Perkymite replied to the topic 50th wedding anniversary in the forum Off topic 12 years, 4 months ago
That is a good idea Helen but I do not think I will have the time to sort it all out. Just about every month we are away somewhere, this month is the Scilly Isle next month Minorca and so on. But I might adapt it somehow.
Kindest regards – vasbyte
David
Perkymite replied to the topic 50th wedding anniversary in the forum Off topic 12 years, 4 months ago
Thanks for the suggestions Girls. Nothing from the Boys but ahh well!
We actually renewed our vows on our 35th. I wanted to do it on our 25th but the wife is not a romantic like me 🙁
However, for our 35th I add a holiday in Singapore, Seychelles and Mauritius. We had the four original bridesmaids; they could not get into their dresses…[Read more]
Perkymite replied to the topic The Answers in the forum General 12 years, 4 months ago
Keep going Andy, I just have this feeling that you are going to crack it my friend.
Kindest regards – Vasbyte
David
Perkymite started the topic 50th wedding anniversary. in the forum Off topic 12 years, 4 months ago
Hi all, I am looking for ideas for my 50th wedding anniversary in November. Any suggestions would be welcome, no matter how wild they are 😀
Kindest regards – vasbyte
David
Perkymite replied to the topic Maybe a Good Idea??? in the forum Off topic 12 years, 4 months ago
It is a very good idea and in fact I had the Myeloma UK diary but it fell by the wayside I am afriad. I do wish I had the ability to keep a diary. I have tried many times in my life but I am just not "clerical". Give me a hammer and screwdriver and I am ok but a pen makes me shudder.
Kindest regards – vasbyte
David
Perkymite replied to the topic Bridget… 10:30am today and beyond in the forum End of Life and Grief 12 years, 4 months ago
I would really love to join you Dai but I have a funeral to attend in Barnstaple and I shall be getting ready or making my way there then.
Bridget was a lovely lady and I am pleased I met her. She always had a kind word and sound friendly advice. You could almost feel the smile in her posts. Love to you Bridget I am sure you are in God?s…[Read more]
Perkymite replied to the topic Question time in the forum General 12 years, 4 months ago
Dia has hit the important questions I think. However it depends on how hard you want to bite the bullet.
I insisted, and I mean insisted, on a Prognosis right from the very start. "If all goes well 2 to 3 years" I was told in July 2009. The question I would be asking is what treatments are now available to me and what is the prognosis if…[Read more]
Perkymite replied to the topic Some good news in the forum General 12 years, 4 months ago
Hi Mavis, Just picked up your good news, WONDERFUL. I never reached Zero pp it must be lovely feeling. I cannot help with withdrawal systems from CDT I did not have any that I can recollect at all.
Keep strong now and enjoy yourself.
Kindest regards – Vasbyte
David
Perkymite replied to the topic Holiday Insurance in the forum Off topic 12 years, 5 months ago
I might try that instead of Citybond, sounds more up to date.
Thanks
Kindest regards – vasbyte
David