Perkymite replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers 12 years, 5 months ago
Hi Ann, see my post under "Off Topic". Hope it helps
Kindest regards – vasbyte
David
Perkymite started the topic Holiday Insurance. in the forum Off topic 12 years, 5 months ago
Hi Ann, I just picked up your post asking about holiday insurance. To go to Spain, in May, cost £250 for both Mo and me. However my wife works at an Insurance Broker so she had staff discount, plus, I am not under any treatment at the moment. This was for 7 days and the insurance was bomb proof.
My only criteria are that Mo should not be…[Read more]
Perkymite replied to the topic Back home in the forum General 12 years, 5 months ago
You sound like Mo and me, we "enjoy" no matter what the weather! Just keep going I am sure you will get there, just keep bl**dy well going.
kindest reagards – vasbyte
David
Perkymite replied to the topic Good News X Two in the forum General 12 years, 5 months ago
Just great news Tom, great news. You just had to go one better didn?t you FOUR months instead of my THREE. Drink the red wine and eat the cucumbers.
kindest regards – vasbtye
David
P.S. When did the "young Bride" become the "old Women" or have I missed something?
Perkymite replied to the topic And yet another 3 months! in the forum General 12 years, 5 months ago
Hi Mari, 11th July Scilly Isle. As I am cleared to travel for that and our trip to Minoca in August I can now sort out the Insurance again 😎
You are right Keith I wil not neglect the water. I am just going to try to get my blood appointment at 9:00 a.m. I would normally have drunk only one pint by then.
Kindest Regards – Vasabyte
David
Perkymite started the topic And yet another 3 months!. in the forum General 12 years, 5 months ago
Hi Guys and Gals, Happy to report my 3 month check up at the Beacon Centre Taunton went well. Bloods all ok. My pp was up slightly to 2.8 from 2.4 but as the rest of the blood measurements are all normal it is not a problem. Next check end of September.
Interesting point I was talking to the Registrar, you always get more information from a…[Read more]
Perkymite replied to the topic Cyclophosphamide in the forum Side-effects 12 years, 5 months ago
3 pp, that is good news Tina keep it up.
Yes, the loo is a problem for all of us I suspect. When I go anywhere my first concern is public toilets or the nearest Cafe or Pub!
Kindest regards – vasbyte
David
Perkymite replied to the topic Second SCT in the forum Treatment 12 years, 5 months ago
Best of luck to you both, I am sure everything will be ok. Now is the time to Vasbyte 🙂
Kindest regards
David
Perkymite replied to the topic New myeloma suffer – would like to meet other suffers in the forum Under 50s 12 years, 5 months ago
Hi Primrose, welcome to the site.
Kindest reagrds – vasbyte
David
Perkymite replied to the topic Thrush?? in the forum Side-effects 12 years, 5 months ago
I think you are right there Dia. I treat drinking the 3 ltrs a day as a separate issue from other fluids, almost like taking pills if you get what I mean.
Kindest regards ? vasbyte
David
p.s. I meant to add that I had Thrush ( a persistent urinary infection) prior to diagnosis. It is in fact one of the symptoms of Myeloma. I have not…[Read more]
Perkymite replied to the topic Rev/Dex Has Started in the forum Treatment 12 years, 5 months ago
Hi Keith, the holiday sounded good! Best of luck with the new treatment.
Kindest reagrds – vasbyte
David
Perkymite replied to the topic Channel 4 Documentary in the forum Treatment 12 years, 5 months ago
the email address does not work!
The following message to <enquiry@loveproductions.co.uk> was undeliverable.
The reason for the problem:
5.1.0 – Unknown address error 554-'Service unavailable; Client host [out1.ip04ir2.opaltelecom.net] blocked using Barracuda Reputation;…[Read more]
Perkymite replied to the topic I am newly diagnosed with Myeloma in the forum Newcomers 12 years, 5 months ago
Welcome Judd, This is a great site and you will find all the information you need to take you on your journey, which will have its ups and downs. Have a good look around the site. Also there is a Myeloma UK nurse on call, free to call.
I have had Myeloma since June/July 2009. My neck broke getting out of bed and that was the first symptom I…[Read more]
Perkymite replied to the topic SCT Colin in the forum Treatment 12 years, 5 months ago
Hi Vicki, Have a look at my "Musings from Ward 9". Click on Treatment, scroll down to the bottom and click on page 3, you should find it on there.
Kindest reagards
David
Perkymite replied to the topic Brocho – Bridget Rochfort in the forum General 12 years, 5 months ago
Dear Siobahn,
What can I say that others have not already said, we are all so sad at your news. She was a good friend to me and I shall always remember her with affection.
My deepest sympathy
David
Perkymite replied to the topic failed allo in the forum Treatment 12 years, 5 months ago
Hallo Ian, I had a very similar operation in 2009. I have full movement of my neck and most people do not realise my head is held up by titanium 😀 rods. I broke my neck getting out of beds! All the very best of luck with your treatment.
Kindest regards – Vasbyte
David
Perkymite replied to the topic Bridget in the forum Off topic 12 years, 5 months ago
That news makes me so sad. She was always a great support to everybody on here.
David
Perkymite replied to the topic Stem Cell Mobilisation & Collection in the forum Treatment 12 years, 5 months ago
Hi Stephen, I really happy that you found my Musings from ward 9 helpfull. I am "still standing" and feel well.
The very best of luck to you
Kindest regards – Vaasbyte
David
(aka Perkymite – (which is my gaming name in World of Tanks and Age of Empires Online,games I consider brain exercises 😀 )
Perkymite replied to the topic stem cell collection failed in the forum General 12 years, 5 months ago
Hi Sue, My first SCH failed, 2009)and I had to go around again. I then got enough for one transplant which I had in 2010. Sorry I cannot remember the name of the drug they used to promote etem cell growth. Keep strong.
Kindest regards – vasbyte
David
Perkymite replied to the topic 3;20 Am wide-awake blues… in the forum Treatment 12 years, 5 months ago
OK you bunch I award you Honorary membership of the illustrious order of "Night Owls".
The Night Owls were formed in Sri Lanka in 1997. We met in The Eden Hotel bar. Germans, Dutch and British and we seemed to spend most of the night, and I do mean night not evening, in the Bar together – having to be thrown out in the very early hours, in…[Read more]