Perkymite replied to the topic What is stem cell transplant really like? in the forum Under 50s 12 years, 9 months ago
You sound good to go Penny – Vasbyte.
Kindest regards
David
Perkymite replied to the topic What is stem cell transplant really like? in the forum Under 50s 12 years, 9 months ago
Hi Penny, Firstly Welcome(?) to our site. As you say bags of information on here and the good news is it is all up to date.
You will hear this many times I am afraid but Myeloma is a very individual decease and it attacks everybody slightly differently and of course your health, fitness etc.. all come into the equation of what happens. None of…[Read more]
Perkymite replied to the topic HERE WE GO AGAIN !! in the forum Treatment 12 years, 9 months ago
That is tough news Bridget. Keep going young lady you WILL beat it.
Kindest regards – Vasbyte
David
Perkymite replied to the topic Dia – you OK in the forum General 12 years, 9 months ago
As usual Bridget has taken the words right out of my mouth, I am sure she is right.
I get all sorts of aches and pains left side of chest then it is the right then it moves to my neck ? opps sorry that is the wife ? but you know what I mean. I put them all down to the way I sleep or doing too much and like Tom says a simple stretch out to…[Read more]
Perkymite replied to the topic New person to the group in the forum General 12 years, 9 months ago
Welcome Terry, My you have been through the mill. You will find some good support and understanding on this site and there is plenty of good information, but best of all there are some real nice people:-D
Kindest reagards – Vasbyte
David
Perkymite started the topic Dia – you OK. in the forum General 12 years, 9 months ago
I have not seen a post from you for awile Buddy – you OK?
Kindest regards – vasbyte
David
Perkymite replied to the topic NIGHT CRAMPS in the forum General 12 years, 9 months ago
Just after I had my SCT, Dec 09, I had night cramps a lot now it is just the occasional cramp in my legs at night.
I do suffer from very cold legs at night and if I stick one out from under the duvet I am in trouble, hence the reason I am sitting at my computer at this hour 🙁 .
Kindest regards vasbyte
David
Perkymite replied to the topic For Tom – not for the sensitive! in the forum Off topic 12 years, 9 months ago
Good for you. I love the ability to "edit", WHAT Trade jazz?:-D 😀 😉
Kindest regards – vasbyte
David
Perkymite replied to the topic For Tom – not for the sensitive! in the forum Off topic 12 years, 9 months ago
It is the river Teign, they live in Shaldon by Teignmouth.
The wood is all ex fencing material and as such has all been " presure treated" so it should last for a good long time. Which, as I have no intention of going soon, is a real good thing 😉
Perkymite replied to the topic For Tom – not for the sensitive! in the forum Off topic 12 years, 9 months ago
I am still thinking about music.
The only tune I have settled on is Red Sails in the Sunset by Acker Bilk (for those to young to remember him he is a Trad (thanks Scott) Jazz musician). I am hoping to have this played as I am lowered into my grave.
I like all music, but not a great music collector, from operas to Bop so I am trying to…[Read more]
Perkymite replied to the topic For Tom – not for the sensitive! in the forum Off topic 12 years, 9 months ago
Planning for that is well advanced, seriously. As is the remodelling of my son's grave with mine into one double plot with a new kerb set and headstones. 😎
Perkymite replied to the topic For Tom – not for the sensitive! in the forum Off topic 12 years, 9 months ago
It would only accept 5 photos so here are the next 4.
Perkymite started the topic For Tom – not for the sensitive!. in the forum Off topic 12 years, 9 months ago
Tom I mentioned some time ago I had decided to make my own coffin from some old fencing wood my Son-In-Law had left over and you commented that you would like to see some photographs. The first batches are attached.
I am at the first assembly stage, which is really a check stage to make sure it fits together before my Grandchildren decorate…[Read more]
Perkymite replied to the topic EGFR in the forum General 12 years, 9 months ago
Yes, thanks for that information.
Kindest regards – vasbyte
David
Perkymite started the topic EGFR. in the forum General 12 years, 9 months ago
I get a copy of the letter that goes from my Hospital Consultant to my Doctor after every appointment. Normally just repeating what was said and discussed at my last appointment. It also gives all the Blood measurements which is what I am generally interested in. This time it gave a figure for EGFR! I have never seen this quoted before at all…[Read more]
Perkymite replied to the topic Travel insurance in the forum General 12 years, 9 months ago
Hi Jet, I use a company called Citybond.co.uk. I do not say they are the cheapest but my wife works at an Insurance Broker and they seem to think they are good plus she gets a staff discount.
Kindest regards – vasbyte
David
Perkymite replied to the topic Stem cells collected in the forum Treatment 12 years, 10 months ago
I am sorry to go one better, there is always somebody and it happens to be me this time:-D
My stem Cell Collection took six days, two goes of three days each, 5-6 hours per day so shall we say 36 hours>:-) . And, then, I only harvested enough for one SCT 🙁 .
Kindest regards – Vasbyte
David
Perkymite replied to the topic Stem cells collected in the forum Treatment 12 years, 10 months ago
Hi Sarah, It sounds as if Henry is doing well, keep it up. Several people have posted links before so I see no harm in you doing so as well. Please thank your daughter for me the money raised is so so important.
Kindest regards – Vasbyte
David
Perkymite replied to the topic My GP asked if I'd heard of myeloma in the forum Newcomers 12 years, 10 months ago
Well I for one find "your prattling on" amusing so just you put down what you want. Best of luck with all your test.
kindest regards – vasbyte
David
Perkymite replied to the topic Travel insurance in the forum General 12 years, 10 months ago
That is a very good point Peter.