Yes, that sounds like a stem Cell Transplant. The leaching as you describe is probably the collection of stem cells which are forced out of the bone marrow and then collected. You will find many posts on here about SCT. Dai is the lad you want I think he has light chain Myeloma. You will find that Myeloma is a very individual decease even…[Read more]

Hi Ray, Welcome to our Group 🙂 .

Is Autograph Bone Marrow Transfer Treatment the posh name for a Stem Cell Transplant? SCT whilst not routine I do not think they would be classed as ?new?. Where are you being treated?

Kind regards ? vasbyte

David

Helen, can I suggest that you do what I did and that is to go to your Doctor and ask him to print out your surgery medical record. it is a one line document per problem i.e. broke a leg and date. So it is not a mind blowing list of ailments. Then get him to cross through those items you do not have to inform the insurance company off, normally…[Read more]

Hi Dai, I have been following your post and am saddened by your turn of events. Vasbyte my friend vasbyte.

I had my 3 monthly an appointment recently, 28 the Dec, and the Consultant said ?you are in remission? however when she gave me my PP reading it was now 2.4, but and this seems to be crucial bit the rest of my blood measurement had gone…[Read more]

My understanding is that 3 consecutive increases in PP is a sign that the remission is over and the cancer is starting to rebuild.

I am not at that stage yet so cannot comment on the pain angle. Although at my last appointment I reported that I had some pain in my neck and it was not the wife. My consultant, after studying my blood results…[Read more]

Yes Elizellen that is the one.

Kindest regards – vasbyte

David

Hi Bridget, I have my fingers crossed for you.

Kindest regards ? Vasbyte (as hard as you can LOL)

David

Great News Eve, Go for the Cruise, set your mind that you are going to do it and go, go, go. We have just booked a flight to Alicanti, Spain for a week in Apr/May. It is Mo's Brother's 80th Birthday.

Kindest regards – Vasbyte

David

Hi Nicola Just wanted to say how I admire what you are doing for your Dad, it cannot be pleasant, my very best wishes for you and him.

Like most Myeloma sufferers I have had constipation and therefore can empathise with your Dad. I really on lots of roughage in my diet, I have never eaten so much greens and fruit.

My kindest regards ?…[Read more]

Hi Kay, Sorry to hear your SCT did not work as well as it might have. I have PN in my feet; I call it "spongy foot" because that is what it feels like. I don't get any pain with it, it is just there. I have had this from around Jan 10, I am not sure now when it started exactly!

Kindest regards – Vasbyte

David

Firstly Welcome (?) to our group and the forum, not a group you no doubt wished to join but here we all are.

I am 1 year post SCT now and I am leading a near normal life. I get tired sometimes in the afternoon, when I just sit down in my reclining chair and have a kip>:-) However, I am not really sure whether it is old age, I am 69, or…[Read more]

My Dear Michelle, I wish I could give you a set of easy answers that would solve all your problems but, alas, I cannot.

I lost my 19 year old son in a car accident, he was on his own and he died almost instantly at the scene one bleak October night. If he had to die how I wished he could have lived just for an hour until my wife and I could…[Read more]

Hi Chris, I have been away at my Daughters for the Christmas period and have just found your posts. As I have said it was a pity we could not have met at the Beacon Centre this morning, however if you want to meet for a chat Mo and I will be more than happy.

Your feelings, emotions and perhaps anger at your situation are about par for the…[Read more]

Hi Chris, unfortunately I did not read your post until I had returned from the Beacon Centre. If you want to meet and have a chat Mo and I would be more than happy.

Kindest regards ? vasbyte

David

Welcome (?) to the group Lynda. I suffer from Myeloma and my wife is the career however I just would like to wish you and Pete well, I am sure you will not only learn a great deal about Myeloma from this site but you will meet some really nice people.

Kindest regards – vasbyte

David

Hi Wendy, I have not corresponded on this discussion because it is way out of my league and knowledge.

The only information I had was that in Little Rock, Arkansas there is a hospital that specializes in this type treatment. Apparently the story is the founder of Wal-Mart, the big American Supermarket that bought ASDA, had Myeloma and he had…[Read more]