Perkymite replied to the topic New and confused in the forum Under 50s 12 years, 11 months ago
Hi Gary & Hara, Welcome (?) to the club. For me the key is talking about it when people want to talk about it and not allowing the "elephant in the room" scenario. I do get a little down some days, not so much depression just that I just do not feel my normal happy self.
I found your post very interesting Hara, 10 years remission well done.…[Read more]
Perkymite replied to the topic update on Henry in the forum General 12 years, 11 months ago
Sounds great well done to the both of you – now relaxe and have a very happy Christmas and New Year.
kindest Regards Vasbyte
David
Perkymite replied to the topic relative of myeloma sufferer in the forum Newcomers 12 years, 11 months ago
I am pleased you have an outcome that suits everybody. My very best wishes to him.
Kindest regards – vasbyte
David
Perkymite replied to the topic Memory loss in the forum Treatment 12 years, 11 months ago
I know exactly what you mean Eve. I have had hearing problems since leaving the forces, in any group it is very trying. I cannot concentrate on what everybody is saying and miss a lot of what is said. Nowadays I try to grasp the core of what is being said and then just nod and smile. I get fed up with keep asking people what they have said,…[Read more]
Perkymite replied to the topic The future looks Great for us….(N.I.C.E. permitting !) in the forum General 12 years, 11 months ago
Yes, very interesting they were certainly upbeat about the drugs being presented and no doubt part of the progression in finding "treatment" if not a "Cure".
Thanks and a Merry Christmas and a safe new year.
Kindest regards – vasbyte
David
Perkymite replied to the topic Memory loss in the forum Treatment 12 years, 11 months ago
Great Min, I think you are right. hey ho and away we go………
kindest regards – Vasbyte
David
Perkymite replied to the topic Memory loss in the forum Treatment 12 years, 11 months ago
Last night I determined I would remember what happened. And I remembered I did go to the pharmacy to collect my prescription on Thursday and was told that it would be ready Friday – I then forgot to collect it. So I am pleased that I managed to sort that out in my mind.
However, I went to collect my scripts today to be told the Surgery had…[Read more]
Perkymite started the topic Memory loss. in the forum Treatment 12 years, 11 months ago
Hi, it is now 3:50 a.m. and I am sitting here typing 🙁 I woke up at 2:30 and realised I could not remember what I did with the prescription I am thought I collected on Thursday. I am supposed to take anti-biotic this morning but I will have run out if I cannot find them >:-(
Whether I actually collected them I am now not sure. It is not…[Read more]
Perkymite replied to the topic Chest Infection in the forum Side-effects 12 years, 11 months ago
Hi Keith, Both my wife and I had the chesty cough after the flu jab and I have heard of several others who have had the same 🙁 .
I hope it clears up soon for you, kindest regards – Vasbyte
David
Perkymite replied to the topic worried sick in the forum General 12 years, 11 months ago
Human beings are such strange things, so diverse. I am totally up front about my illness with anyone who wants to talk about it, including strangers in the waiting room of life, so to speak. My wife would really rather not know I think. When I explain to her what is going on with me I always add the line, "I have to tell you this it may be…[Read more]
Perkymite replied to the topic Interesting in the forum General 12 years, 11 months ago
Thanks for the kind words Eve, and of course you are right. I have a wonderful caring Son and Daughter and they have tried to reassure me that they will look after their Mum I am not to worry. And, Mo is a strong willed lady but I still shed the odd tear when I think of her waking up alone. Whether I am shedding that tear for me I do wonder…[Read more]
Perkymite replied to the topic Interesting in the forum General 12 years, 11 months ago
How interesting Eve, I was in the Army for 17 years, 15 of them in the parachute Brigade. I was invalid out in 1978. I took the same attitude to Slim on my diagnosis. My biggest regret is that I will not be there for my wife when she needs me in the furture, and that thought makes me weep everytime.
Kindest reagrds – Vasbyte
David
Perkymite replied to the topic Interesting in the forum General 12 years, 11 months ago
yes, very interesting. I am the first Male, in my family, to live past 55 in three generations that includes uncles. As far as I can ascertain, and you can never be sure about the diagnosis of death years ago, my brother, who died at 52 was the first to die of a cancer. My other brothers died of a Brain clot, 55, and Tuberculosis,19.
As…[Read more]
Perkymite replied to the topic TABLETOP SALE & COFFEE MORNING FOR MMUK in the forum General 12 years, 11 months ago
That is really quite an incredible amount to raise at a coffee morning, well done.
Kindest reagrds – Vasbyte
David
Perkymite replied to the topic SCT – Tips and tricks! in the forum Treatment 12 years, 11 months ago
If I remember correctly mine were down for at least 7 days, I cannot remember exactly how long but I know the Nurses voted me the most boring patient on the ward – because nothing was happening:-D
kindest regards – ~Vasbyte
David
Perkymite replied to the topic There is tough and there is tough in the forum End of Life and Grief 12 years, 11 months ago
Actually Tom, I did originally offer my body for research but the Consultant said it would not be suitable and would I please ensure I was taken off the donor register 😀 😀 😀
Nobody wants me boo hooo 🙁
Kindest reagards – Vasbyte
David
Perkymite replied to the topic SCT – Tips and tricks! in the forum Treatment 12 years, 11 months ago
Hi Vicki,
Do not forget it is [b]Complan[/b] not ordinary milk shakes, this will build his body up you might need to get it proscribed by the hospital although I think you can buy it at Boots.
If he can eat a Penguin his throat cannot be too bad at this stage. The bad taste is par for the course all of his taste buds have been…[Read more]
Perkymite replied to the topic SCT – Tips and tricks! in the forum Treatment 12 years, 11 months ago
Hi, I had my SCT 11/12 months ago. I had a bad throat and everything tasted foul after my Stem Cells were returned and I could not eat.
The Tai cleaning lady came up with a suggestion for me. Complan made with full cream milk, add a small jelly and two scoops of ice cream plus, if you can take it, a banana or mandarin orange. Wisk the lot up…[Read more]
Perkymite replied to the topic There is tough and there is tough in the forum End of Life and Grief 12 years, 12 months ago
Min, that sounds realy great. I loved the touch with the flower.
At one time of course it was perfectly normal to lay the body out on the dinning room table, but things have moved on and now it is a Chapel of Rest at the FDs. Progress, I do not know. To each his own.
kindest regards – vasbyte
David
Perkymite replied to the topic There is tough and there is tough in the forum End of Life and Grief 12 years, 12 months ago
We cremated Marilyn on Friday. I took a major part in coordinating the Funeral, the family were simply to distraught.
Marilyn was not a church going Christian, however, she did have some belief however small and as the local vicar said, ?99% Christians do not now go to church but that does not mean they are not entitled to a Christian…[Read more]