You have done fantastically well Tom, must be the Red Wine and Cucumbers;-) Keep going buddy you are an inspiration to us all.

Kindest regards ? Vasbyte

David

My sincere condolences Gina, I wish you and your family well.

Kindest regards ? vasbyte

David

Hi Min, We were in the Maldives just before the Tsunamai on Sun Island. We were celbrating our wedding annivesary, November. Great Place every body should go there once if they can, mind you the last time we went the place was overun by Russians and if you thought the Germans were rude you have not seen anything:-D .

Kindest regards -…[Read more]

Keep Strong Chelle I know it is hard. I have the Myeloma in our family but my wife is great she is a real brick and keeps me on the straight and narrow path we have to walk. Facing this "thing" without her would have been a nightmare and so I know how important you are to Phil.

Kindest reagards – Vasbyte

David

I am not an "Ah Humbug" man and I do enjoy Christmas but the magic went somwhat when I discovered last year that my wife buys my Christmas present and it is not delivered by Father Christmas:-S 😀 😀

Kindest Regards – Vasbyte

David

Hi Amelie, I am assuming you are referring to the Paraprotien number and if that is the case 5 is not that high, mine went up to 33!. Lately I note people referring to a Bone Myeloma measurement that is in percentages and again 5% would not appear to be high.

Every time I have talked to my Consultant about my Paraprotien measurement I have…[Read more]

Hi Dave, Welcome (?) to our little group. Myeloma affects everybody differently so you cannot set out any rules or firm guide lines. Everybody goes roughly alone the same path but that is about it. The good thing is that the group here has a wide experience of Myeloma and somebody will have been there before you. You sound as if you have…[Read more]

That is interesting I had a DVT and a following PE about 3 years ago. As it happened I had to go to a chiropodist some months later and she comented on my very dry feet and ankles.

Kindest regards – vasbyte

David

Yes, it is about 6 days if my memory serves me right. 0.5 is the go home point for neutrophils I believe but do not forget the rest of the blood measurements have to be correct as well such as White Blood Cell count.

It is a difficult time; I know what you and your mum are going through, having been there and bought the t shirt myself. Just…[Read more]

Hi Helen, Sorry for the late reply my wife and I have been at Mousehole, Cornwall for the last two days celebrating our 49th wedding anniversary, a real nice trip.

I was diagnosed with Myeloma when I broke my neck getting out of bed, yes literally. Fortunately, although I was a fit as a fiddle, I knew something was serious wrong and I just…[Read more]

Taunton, Somerset (and NO I drink Guinness not Cider;-) ). I am being treated at the Beacon Centre Musgrove Park Hospital.

Kindest regards – vasbyte

David

Thanks Helen, so my Tumour was in fact a Plasmacytoma. The Consultant informed me that after looking at my medical records I had had undiagnosed Myeloma for at least two years, hence the 2/3 year prognosis. We live and learn. Or at least we hope we do :-/

Kindest regards

David

Congratulations and thanks for the pictures. The very best of luck to you both.

Kindest regards

David

Keep strong Roz. I am sure it will all work out for you in the end.

Kindest reagards – vasbyte

David

What is the difference between a Plasmacytoma and a Tumour.

I had a large tumour which ate the 4th vertebrae in my neck. The following skeletal survery showed no other tumours or lesions. None of the Consultants has ever mentioned the word Plasmacytoma when discussing my tumour.

Kindest regards ? vasbyte

David

What is Lyrica?

Kindest reagards – Vasbyte

David

Hi Dave, Welcome to the site. I would not worry about the SCT I had one 11 months ago, I am 68, and I coped all right. I am not saying it is a walk in the park, like Tom, because people all react differently to it, so be wary and ask lots of questions when you get near the date to arm yourself.

kindest regards – vasbyte

David

Hi Eve, Actually the number 4 bus is the one we use to go into town sometimes. However, I actually use the term ?if the No4 bus does not get me first? as a euphemism for all the things you can die of, not including Myeloma, which I think would fill a No 4 bus easily!!!! I think euphemism is the right word?

Kindest regards ? vasbyte

David

found it, was a plumbing term used to refer to a tap that turns off water supply 😀 😀