Are you or your wife ex forces by any chance. You can get a lot of help via SSAFA and the RBL.

If you need more information let me know.

Kindest reagards – vasbyte

David

A really interesting post, thanks, I expect the path that lies ahead for me although I am not sure what treatment is available at our Cancer Centre yet.

Injections; I do not know how relevant it is but the nurse told me to try to keep a clean entry and exit of the needle when doing my anti DVT injections i.e push it in, inject and then pull…[Read more]

At 68 I am long past Menopause male or otherwise and anyway I had the snip in 1972!

I had my SCT in Dec 09 and for a small period, say a month (?) after this I did get night sweats but they have long since past. The only time I sweat now is after one of my morning walks when I come back drenched:-D >:-) . Then I get into my lovely shower and…[Read more]

Actually, Dai, I got it from South Africa and changed the Rand to Pounds; it is a small old world nowadays.

Kindest regards ? Vasbyte

David

What an excellent post Dai, well done to all who have entered the debate.

I "believe? as a layman I am getting excellent treatment, but, I often wonder if I would have the same "belief" if I was a Doctor, specializing in cancers of the blood, suffering from Myeloma! I doubt I will really ever answer that.

We have a purpose built cancer…[Read more]

Hey come you two, I was enjoying the dialoge do not get upity now LOL 😀

Kindest reagrds – vasbyte

David

Stick with it Mari, I will have to face your situation sometime in the future and whilst I can understand your concern there are other courses of treatment that will in fact ?give you more time?.

Keep us informed please we will always be here for you and Steve.

Kindest regards ? Vasbyte

David

Dai I am so so please for you. Have a LONNNNNNNNNNNNNNNNNNNNG remision but most of all enjoy your pill free time.

Kindest regards – Vasabyte

David

You just keep going Shirl as we all know you will.

Kindest regards – vasbyte (big time)

David

Thanks everybody.

There is some resonance in what you say Dai in that I only had the neck tumour. When they did my skeletal survey they could not find any other bone lesions.

I will have to ask at my next consultation ? drat I am going to have to wait 3 months now! 😀 😀

Had to stop my daily walk I have picked up the chest infection…[Read more]

Hi Etta, Welcome (?) to our little band, I say little it seems to be expanding this year. I was diagnosed in Jul 2009 and to this date I do not know what stage I am at. As Bridget says some Doctors think modern medicines have made it outdated.

I look forward to sharing your journey.

Kindest reagrds – vasbyte

David

Welcome to the site Terry, reading your post I feel a bit of a fraud!!

But then I look at the xray of the titanium in my neck holding up my head he he. Even Doctors are amazed that I have got so much movement back. I was diagnosed in Jul 09 and broke my neck getting out of bed. I had a massive tumour which ate the 4th vertebrae for…[Read more]

Hi Ted, Happy to help.

SCT is Stem Cell Transfer. Basically, and there are variations on treatment, they give you Chemotherapy to try to get the paraprotien cells as low as possible. They then take Stem Cells from your bone marrow in a Auto SCT, or from a donor in an Allo SCT. Having got the Stem Cells you then go into hospital and have a…[Read more]

Sorry to hear the bad news Gill but I am with Dai on this, what he says does makes a lot of sense.

I have been living with the Sword of Damocles, like us all I suppose, and I have now passed my first ?Sale by Date? (July 1010). I feel good and have just been given 3 months clearance before my next appointment. So do not give up just ?Damm…[Read more]

Great news Jet, you do whatever keeps you strong.

Kindest regards – Vasbyte

David

I think it is a good idea and I am sure the Myeloma Team will take your request onboard.

Glad you are back with us Min.

Enjoy your holiday

Kindest regards – Vasbyte

David

Hi Carol, You are right about "grit your Teeth". My South African family told me of an Africans word, Vasbyte, I use it all the time now to remind myself if any doubts start to creep in that I am not going to live forever 😀 😀 . It means Bite Hard in the sense of english grit your teeth and get going.

Kindest regards – Vasbyte

David