Perkymite started the topic Why?. in the forum Off topic 13 years, 6 months ago
Why do supermarkets make the sick walk all the way to the back of the store to get their prescriptions while healthy people can buy cigarettes at the front.
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Why do people order double cheeseburgers, large fries, and a diet coke.
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Why do we…[Read more]
Perkymite replied to the topic Velcade- subcut in the forum Treatment 13 years, 6 months ago
You know Angelina I found your post quite moving (and I do not mean Bowel wise). You are clearly working so hard to support John. I can only wish you the very best.
Velcade is something I have to look forward to apparently, I just hope the Medical Profession has read Dai's post and taken note of Tom's >:-( .
Kindest regards -…[Read more]
Perkymite replied to the topic Anticipation in the forum Newcomers 13 years, 6 months ago
Welcome (?) Anne
Just go with the flow Anne, one day at a time, and make sure you both enjoy that day. I am nearer your Husbands (Name?) age at 68. I was diagnosed in July 2009, with a major tumour in my neck. I have worked out, from various symptoms, I have had Myeloma since 2007. I have had a Stem Cell Transplant.
Watch out for the…[Read more]
Perkymite replied to the topic Would just like a bit of advice about my mum please. in the forum General 13 years, 6 months ago
"Power Failures" that is right on the button as a description for the tiredness 🙂 .
"Power Surges" would be a good descripton of the affects of Dex I think as well.
I have just come back from a very enjoyable couple of days with my Daughter, visiting the Zoo with my youngest Grandchild and then Sports day for another one. By Nine last…[Read more]
Perkymite replied to the topic Whasssaatttt???? in the forum General 13 years, 6 months ago
Great, great news Dia. That is absolutely incredible, Velcade, if it works for you, seems amazing stuff.
I lost my three chest hairs at the first dose of Chemo and despite assurances from my Consultant they have not come back. I look for them every day but not a glimmer, bo ho :'-( . I did think of asking Bridget to knitting me a ?chest…[Read more]
Perkymite started the topic Great News. in the forum General 13 years, 6 months ago
I HAVE NOT GOT BOWL CANCER!!!!!!!:-D The Consultant was happy to inform me at my last appointment on the 6th May. Now there is a blessing.
Seriously though, my appointment went very well holding onto my 2.0g/L PP level, in fact it has gone down ever so slightly .2. HB stands at 12.3, WBC at 6.7 and Pit (anyone know what this is it is…[Read more]
Perkymite replied to the topic My brave husband Kevin has finally lost his battle with myeloma in the forum General 13 years, 6 months ago
My Dear Susan I was so sorry to hear of Kevin?s death.
Kevin came across to me through this site as one of the "Good Guys" and therefore I know he will be missed by all. Use the memories of the many good times you had to get through this dark time. Dig out a memory of him rolling with laughter and fix on it, I am sure you will find he is…[Read more]
Perkymite replied to the topic SCT in the forum Treatment 13 years, 7 months ago
I am pleased that everything went well with your SCT David. Onwards and upwards from now on as Tom would say.
Kindest regards
David
Perkymite replied to the topic Devastated in the forum General 13 years, 7 months ago
Dear Steve, No, I am not sitting here waiting to ?pop my clogs? so to speak.
My guide is the letters PP. That stands for Paraprotien I know but it also stands for Practical and Positive. And, I can assure you, I am very Practical and very Positive. That comes out in many different ways, for instance the practical side of me says,?I have…[Read more]
Perkymite replied to the topic Its Official I am Weird!! in the forum General 13 years, 7 months ago
Weird, "YES" that is it, I just knew there was something different about you Bridget >:-) .
Kindest Regards
David
Perkymite replied to the topic Update on Dad in the forum Treatment 13 years, 7 months ago
I am so pleased that he had such a peacefull end. It is the way I am sure that we would all wish to go.
Take care now and look in occasionally if you have the time, we will all be more that pleased to see you.
May your god walk with you.
Kindest regards
David
Perkymite started the topic you just got to laugh at this. in the forum Off topic 13 years, 7 months ago
Sit back and turn up the sound. 😀 >:-)
Perkymite replied to the topic ***Happy Birthday Bridget*** in the forum Off topic 13 years, 7 months ago
A belated HAPPY 😀 BIRTHDAY young lady.
Kindest regards
David
Perkymite replied to the topic Velcade and me and possibly how… in the forum General 13 years, 7 months ago
🙂 The best of luck Dai, I believe the answer will be, "yes, but in England we are always 5 years behind!!!".
Kindest regards
David
Perkymite replied to the topic Facial rash following stem cell transplant in the forum Side-effects 13 years, 7 months ago
If he is taking aciclovar then it is unlikley to be Shingles. I would agree with Min.
We all look forward to you finding the answer.
Kindest regards
David
Perkymite replied to the topic Facial rash following stem cell transplant in the forum Side-effects 13 years, 7 months ago
Shingles? Is taking anti-viral tablets?
Kindest regards
David
Perkymite replied to the topic For The people facing older birthdays in the forum Off topic 13 years, 7 months ago
Hi Gill, Yes I agree it is nice to post in the "off topic". I think it makes to the site more interesting and human. 🙂
Off to Teignmouth today, my family live in that area. we are gong to have a formal family photograph taken (before Dad/Granddad pops his clogs I think – he he 😀 )
Kindest regards
David
Perkymite replied to the topic For The people facing older birthdays in the forum Off topic 13 years, 7 months ago
Hey, now that made me really smile. I was going to show the wife but she just might recognise me so I thought better of it!!!!
Kindest regards
David
Perkymite replied to the topic From Devastaion to Elation in the forum General 13 years, 7 months ago
Great news Gill, Tell Stephen to go for it and never mind the bl88dy torpedoes he he 😀 .
Kindest regards
David
Perkymite replied to the topic CTD/RT Side Effects in the forum Side-effects 13 years, 7 months ago
Hi Clara I am pleased that I have managed to help your Dad.
I know your Dad hopes to get back to work but can I suggest you go and see the Macmillan Nurse at your local hospital and consult her about claiming benefits. They are the experts I can assure you.
Kindest regards
David