Perkymite replied to the topic Franks appointment in the forum General 13 years, 7 months ago
Hi Jean that all sound very promising. Loved the image of Frank and the Consultant going at it hammer and tongs! I am the total opposite to Frank if the Consultant says I have grown a third leg I ask about trouser material:-S
I had my SCT at 68 and my general fitness was a big decider in allowing it to go ahead and apart from a very bad…[Read more]
Perkymite replied to the topic Devastated in the forum General 13 years, 7 months ago
Chin Up Gill, it has taken me a while to post on this, I do find it hard. Like Stephen I am on my last year – if they are right of course and they are not!
I have been putting my affairs in order for the last 18 months; I have even redesigned my family grave and am in the process of ordering my headstone, any expense I can resolve now means…[Read more]
Perkymite started the topic Easter. in the forum Off topic 13 years, 7 months ago
Happy Easter!
Kindest Regards
David
Perkymite replied to the topic All going to Plan in the forum Treatment 13 years, 7 months ago
Dexatude – I know exactly where you are coming from Keith:-D 😀
kindest regards
David
Perkymite started the topic for the older generation?. in the forum Off topic 13 years, 7 months ago
this is very funny
Perkymite replied to the topic GCSF in the forum Side-effects 13 years, 7 months ago
Hi Sarah, When I took GCSF prior to my STC I got a lot of bone pain, in my chest and lower back. I applied a hot water bottle and it helped a lot.
Kindest regards
David
Perkymite replied to the topic CTD/RT Side Effects in the forum Side-effects 13 years, 7 months ago
Yes Jo, I was given that during my SCT when I could not swallow due to a very swollen throat.
Strawberry Complan, Strawberry Jelly, Vanilla Ice Cream and a fruit Orange, banana etc…) all whisked up into a giant milk shake. The nice thing was I could just sip it through a couple of straws, lived on them for several days.
Kindest…[Read more]
Perkymite replied to the topic All going to Plan in the forum Treatment 13 years, 7 months ago
Hi Keith, Lucky you, I have only one SCT planned in my treatment and I have had that:-/ . It took me two goes and I only then just got enough stem cells. I counted myself lucky however, the guy in the next bed was given the thumbs down for Stems Cells so barring him for an SCT altogether 🙁
I am sure it will all go well, chin up you…[Read more]
Perkymite replied to the topic CTD/RT Side Effects in the forum Side-effects 13 years, 7 months ago
It is amazing what we have to put ourselves through 🙂 Like everybody else I have had them all. I am now 3 months post SCT on an MM Plateau of below 3. I still suffer from the odd cold spells, normally when I am getting tired. And, I still get the odd itchy spot although that I think is due to the anti-biotitic I take every Saturday and…[Read more]
Perkymite replied to the topic SCT in the forum Treatment 13 years, 7 months ago
Yes, I did the same Tom. Naked as plucked chicken except for my eyebrows and eyelashes 😀 😀
I am pleased you are doing so well Tom, must have been the cucumbers and red wine!!!
Kindest regards
David
Perkymite started the topic animals can do it why can't humans?. in the forum Off topic 13 years, 7 months ago
Now we all could take a lesson from this.
http://5thworld.com/Paradigm/Postings/!Wisdom/OrangutanAndHound.html
you might have to copy and paste into your browser.
kindest regards
David
Perkymite replied to the topic Can low protein levels turn to Myeloma? in the forum General 13 years, 7 months ago
My understanding is that most Oncologists/Haematologists would have enough experience to recognise "lesions" in an x-ray, certainly my consultant did not wait for a report he had my x-rays up on his screen straight away and gave me the ?good news? there and then, which was my hips were clear and it was 17 years of Army wear and tear giving me the…[Read more]
Perkymite replied to the topic Update on Dad in the forum Treatment 13 years, 7 months ago
Hi Girls, No, you are not forgotten and it is so pleasing and kind that you thought to update us on your Dad. I wish him well on his final journey.
He will leave a family to be proud of I am sure. I know I draw great strength and support for my family and from your previous postings he will be doing the same at this time.
May his God…[Read more]
Perkymite started the topic registering to post. in the forum Off topic 13 years, 7 months ago
I noted the instruction to register in order to post on the Website. Is it the way I am reading it or should it be "IN ORDER etc…"
[b]Please register on the website [i]on order [/i]to post messages in the discussion forum[/b]
cheers
David
Perkymite replied to the topic 30 year engagement in the forum Off topic 13 years, 7 months ago
Congratulations Eve.
kindest regards
David
Perkymite replied to the topic SCT in the forum Treatment 13 years, 7 months ago
Yes, it will all come out, mine did. I had my SCT in early December and have just got all my hair back now, it started returning about 2 weeks ago.
kindest regards
David
Perkymite replied to the topic Quick update on kev in the forum Newcomers 13 years, 7 months ago
Hi Liz, Constipation and dehydration two of the dangers of SCT. Dehydration is very dangerous and that is why, quite rightly, they are not letting him home. 6 pints of water a day has got to be the target! I have dropped tea and coffee now and just fill my Guinness pint glass up and keep on going throughout the day and evening.
Like Kev…[Read more]
Perkymite replied to the topic Can I have a moan in the forum Carers 13 years, 7 months ago
The Cancer Centre (Beacon Centre) at Musgrove Park Hospital, Taunton had only just opened when I was diagnosed, Jul 2009. My first 3/4 appointments were always late. The first one was a stunning 4 hours wait, apparently they could not find my hospital records eventually they told me and I told them where I knew them to be!!! Communication,…[Read more]
Perkymite replied to the topic Hi All update on mum and me in the forum Off topic 13 years, 7 months ago
Great to hear that your Mum is doing well. I wish you well on your run, 26 miles is not that far, I can do it in no time in my car 😀
Kindest regards
David
Perkymite replied to the topic PP levels in the forum General 13 years, 7 months ago
Best of luck Dia. 🙂
Kindest Regards
David