I just love his attitude- a great example 😀 😀

Kindest regards

David

Hi Gill, Yes, maybe, but the thing I was trying to impress upon Mark is that it is not quite the end of the road for his dad 🙂 , a picture is worth a thousand words.

I expect most of us can show impressive bits of hardware 😉 . The really incredible thing is that neither I nor my friends can get over that my next works perfectly, just…[Read more]

Well done Mark that is the spirit.

For your interest I had a large tumour on my neck – it ate my fourth vertebrae ? and I broke my neck getting out of bed on the 11th July 2009. They screwed in posts and pillars as you will see from the attached x-ray. Now when somebody says to me ?You have got a brass neck? I can say ?No, it's titanium?.…[Read more]

The flow of information is interesting. After each appointment the Consultant writes to my GP informing him what is happening and the latest blood readings etc… I get a copy of that letter.

Kindest regards

David

Absolutly brilliant. 😀 😀

Kindest regards

David

Perky mite translates in my mind to – happy little insect or cheerful small person!

I used to play Age of Empires on the internet and I played under that name, why I picked it I am not really sure. I am now regarded as small 5'7 1/2, (I was 5'7 1/4 but when they fixed my neck they found they had increased my height by ¼ inch ? this is true…[Read more]

OK, I forced myself to read the articles in the Dailey Mail Online , please do not tell my friends, under the banner "it will be character building", just joking of course.

I thought the Myeloma story was very moving.

Kindest regards

Yes Tracey, I had never heard of Myeloma. In "Waking the dead? one of the characters had been diagnosed with Myeloma. Hey, perhaps we are becoming the ?In? cancer to have!!!!!!
Kindest regards

David

Hi Ozzy and welcome(?) to the site.

As has been said before this is a very, very individual disease. But if it helps I had my SCT in early December. I left hospital on the 15th December, after a full three weeks of treatment. My taste buds returned on 25th December and I was able to enjoy my Christmas dinner and a pint of Guinness. I was…[Read more]

That is wonderful, wonderful news I could not be more pleased for you. I hope you are going to still keep in touch now you are Myeloma "clean" 😀 .

Kindest regards

David

Hi Ian, glad to hear you are still bombing along. In general discussion with my Consultant he expressed the opinion that the effects of treatment get weaker as time goes on. This would in fact fit the pattern you have been given.

Kindest regards

David

Thanks for that Min, I never did have the eye for detail:-D

I am getting slightly confused here. Velcade is not Revlimide under a diferent name is it?

If it is not what advantage does Velcade have, just a cheaper treatment than Revlimide or somewhay better?

kindest regards

David

Great, just up my street 😀

David

Ahh Dai, You just ruined my week, so sorry to hear the bad news. I thought you were in the clear and up and running. It must be devastating for you, having been given a possible 5 to 8 years.

I did not make remission ? plateaued I am told ? so I am not really expecting too long before I have to go to the next phase. I am just praying for…[Read more]

😀 😀

[u][i][b]Kindest regards[/b][/i][/u]

David

That is interesting Mari. Did I read your positng correctly, that Steve's PP level was 17 prior to SCT. Can you remember what his pp level was when he did the Stem Cell Harvest?

kindest regards

David

When I broke my neck my PP level was 39, that was its highest point. Now I have had my SCT my last reading was 2.2. The lowest reading I have ever had was 1.8 two months prior to my SCT.

I was told early on in my diagnosis that most people would have a 1.5 pp rating – the difference being the PP is not active, I think, but I do not…[Read more]

Thanks Bridget:-D

I am sure one of our members did have an ALLO transplant, and it was not that long ago, unfortunately I cannot remember who it was. Sorry not very helpful but I will keep my brain churning over, it might come to me.

Kindest regards
David