Must say I enjoy your posts Nigel.

I am not on any treatment at the moment, leaving aside anti-pills for everything, my next appointment with destiny being on the 6th May. I feel great and I am getting loads of jobs done around the house that I know in the future I will not be able to do.

Best of luck with your next round, although I have a…[Read more]

Hi Edo, If you can tackle the food problem I feel it might help him with his other problems.

How about a Complan drink made up with milk, ice cream, jelly and a fruit (I used banana or mandarins). I had this drink in hospital after my SCT I just could not eat anything and even water tasted foul. You can get different flavoured drinks and mix…[Read more]

Dia, I really enjoyed listening to your music, thanks.

I read your explanation of the lyrics, after I had heard the song, the more I read the text as you sang I had the feeling this was in some way about your Myeloma. This I should hasten to add is not any form of critic (I am as musical as a rusty bed) just the way I heard the words of the…[Read more]

Hi Keith, hang on in there buddy, you sounded pretty down in your last posting, "[i]making long term plans, and what a fool am I[/i]" . Not so.

I did not get into remission after SCT, I am on a Plateau so I am told so I might well be joining you all pretty soon on the Revlidimid/velcade whatever bus! So just keep going all of you, you guys…[Read more]

I think the reason we, as a nation, are lousy at languages is that our language is generally accepted as THE [u]world[/u] language.

I am at present researching Insurance for a trip to the Rhine/Moselle area in July. I will post the results

Kindest Regards

David

p.s. For all dog lovers. My sister's dog Chester, a Leonburger, has just…[Read more]

It is nearly 8 months since we buried our Border Collie, Guinness – he was black and white and had a good head on him – 15 1/2 years of great friendship.

I kept him alive too long because I could not bear to lose him, he suffered in the last month because of my selfishness, something I will always regret. I called the vet three times and three…[Read more]

Grit you teeth Yes, my South African family sent me a word to use [b][i]Vasbyte[/i][/b] it means bite hard. a loverly word I often use it 😀

Great Min, now get out and enjoy yourself. 😀 Or just lay in bed in the morning – what ever!

Kindest regards

David

Yes, the Skeletal Survey is perfectly normal; firstly indicates where any Myeloma sites are located but also gives them a "bench Mark" to check further skeletal surveys/X-Rays against.

The fact that they did not carry out any further examination, such as MRI scan, after the X-Ray indicates that they could not see any lesions on his bones which…[Read more]

Hi Ruth,
You have not mentioned an MRI Scan, cat scan or even an X-Ray, most myeloma sufferers get at least an X-Ray looking for lesions in the bones. As example of this at my last appointment I reported I had lower back pain and I had an X-Ray within the hour! Lower back appears to be a favourite spot of Myeloma.

If I had a temperature…[Read more]

Hi Sarah,
If your Mum is going to use a Laptop can I suggest you set up a Hotmail account. My hospital had a free wireless connection but its? Firewall would not allow me to ?send? email. You can get around this by using a Browser Mail application. I picked G Mail (part of Goggle) which was very easy to set up and use. I would recommend…[Read more]

Have you got access to my medical notes Min? 😀

Hi Andy,

I do not want to dampen your enthusiasm but generally the pp level goes down quite quickly at the beginning of CDT treatment then it tails off, the last little bits being difficult to kill off.

I did read somewhere that they used to treat, irradiate I think, the Stem Cells used in transplants but found that it did not make a lot of…[Read more]

Hi Andy, firstly welcome(?) to our merry band.

I am 68 diagnosed in July 2009, PP level 39. Before I had my SCT, in December, I was absolutely convinced it was the way to go but doubts have begun to creep in and my personal jury is out on it. I did not have the problems of pain and movement that some seem to have with this disease, I was…[Read more]

A good piece of advice I had was from the Ward Sister when I had my SCT. Listen to your body it will tell you when it is tired she said, and when it does YOU ARE DAMM WELL TIRED ? REST and do not be a bl***y hero! 😀 Advice I always follow.

Kindest regards

David

Hi Amelie,

From what my consultant said Blood PP and Bone Marrow measurements are two distinct and separate measurements. They use Bone Marrow measurement early on to confirm the type of MM but after that, in my type IgG, they do not need to take Bone Marrow again, unless something dramatic happened where they thought my myeloma type had…[Read more]

Nice to hear from you again Sarah glad everything is going so well for you.

Kindest regards

David

Hi Clara,

Your Dad has clearly the right mental attitude to tackle this disease, ?Damm the Torpedoes?, is dead right. I wish him and you the very best of luck. He will know when he cannot go to work but until then I would give him every encouragement to try.

I look forward to further posts on his progress.

Kindest regards

David

Hi Only Me or should we address you as Only You:-),

The general medical consensus at the moment I understand is that there is no hereditary link. My Consultant said no link when asked.

Although having said that there has been at least two, I think, cases on this web site of father/mother and offspring getting the decease so I suspect the…[Read more]