Perkymite replied to the topic Bloody bras and rib pain! in the forum Side-effects 13 years, 9 months ago
Hi Ladies, You know my wife has always taken off her bra every night for as far as I can remember! In the good old days it used ……….. are well too much information here I think.
Keep the liberation movement alive is what I say
Kindest regards
David
Perkymite replied to the topic Hello New Arrival To MM Club in the forum Newcomers 13 years, 9 months ago
Hi Henry,
Welcome (?) to our little band!
No doubt you will but my advice is NOT to bother searching the internet for a magic bullet. I have read all the blogs about Cucumber, Cumin, Red Wine standing on your head whilst singing the Red Flag 😀 etc.. etc.. IF there was a magic bullet we would all have found it years ago ? sorry to be frank…[Read more]
Perkymite replied to the topic Looking for information in the forum General 13 years, 9 months ago
Hi Ruth,
Welcome (?) to our little band! The advice about NOT searching the internet for answers is very good advice. IF there was a magic bullet out there loads of sufferers would have found it years ago ? sorry to be frank but there is not one. There are only two sites you need to visit one is the MacMillan site and the other is this one.…[Read more]
Perkymite replied to the topic Proscribed antibiotics after SCT in the forum Treatment 13 years, 9 months ago
Hi Min, I think the reply you will get will reflect the individual nature of this decease and of course the individual nature of human beings. We are all basically the same but, apart from twins, do you ever see two people alike – rarely.
I am lucky you might say I have a Consultant who I have total confidence in. I do not try to tell him…[Read more]
Perkymite started the topic Anyone know where Lyon airport is?. in the forum Off topic 13 years, 9 months ago
So you think you are good at Geography? Click on the link below or copy and paste into your browser and follow the instructions. (It is perfectly safe and virus free)
http://www.lufthansa-vp.com/vp1/play.html
Warning it can become addictive!:-D
Perkymite replied to the topic Hello everyone in the forum Newcomers 13 years, 9 months ago
Hi Jon,
The South African branch of my family gave me a good South African saying to use when things get a little tough. [i][b]Vasbyte[/b][/i] it means bite hard. I use it all the time now it has so much meaning in it if you think about it.
Kindest regards, vasbyte
David
Perkymite replied to the topic Hello everyone in the forum Newcomers 13 years, 9 months ago
Hi Jon, welcome (?) to the group.
I like you need it out in the open. I hate the whispered words said in a corner that you can just catch out of the corner of your eye. My wife and I have discussed my Myeloma down to where I want to die! Not that I intend to die for a few more years you understand. To support this openness I send a Medical…[Read more]
Perkymite started the topic Cycling Group anyone?. in the forum Off topic 13 years, 9 months ago
I was thinking of starting a cycling group up. Here is me on my new bike.
Perkymite replied to the topic 10 week check up since STC in the forum General 13 years, 9 months ago
Hi Shirls, I was allowed to "mix with the human race" to use my Consultants words after the 6 weeks period. However I had, and still have for that matter, the same restrictions as yourself; avoid crowded places, people who have colds etc… . It has almost become habit now that I look around for people sniffing or coughing at the supermarket…[Read more]
Perkymite replied to the topic RE: Starting a discussion… in the forum Newcomers 13 years, 9 months ago
Hi Annie, Welcome(?) to our little group.
I cannot help you specifically but thought I would just say hallo. You will find the forum very helpful and there are some great people on it. Look forward to your postings.
Kindest regards
David
Perkymite started the topic Proscribed antibiotics after SCT. in the forum Treatment 13 years, 9 months ago
Hi Min you were curious about the antibiotics I have been proscribed after my SCT. I thought I would start a separate thread for it just in case it got into a long discussion!
I have been proscribed Septrin, which turns out to be Co-Trimoxazole, as a PCP prophylaxis to quote my Doctors letter. It is all Greek to me, may be correct here…[Read more]
Perkymite replied to the topic 10 week check up since STC in the forum General 13 years, 9 months ago
Hi Dave, Welcome(?) to the forum.
If you want to keep in touch you will always be able to reach me on this site, I am a permanent fixture. I have to keep a check on the site to ensure the girls all behave themselves, they can get so unruly sometimes 😀 .
I was diagnosed on the 11th July 2009, collapsed 4th vertebrae in my neck ? pp level…[Read more]
Perkymite replied to the topic 10 week check up since STC in the forum General 13 years, 9 months ago
Thanks Girls for your encouragement.
I would be on Cloud Nine if my PP had gone to zero Bridget but only on cloud 8 for pps at 2.2. I set high standards for my body to achieve.>:-)
Kindest regards
David
Perkymite replied to the topic myeloma X1 trial in the forum General 13 years, 9 months ago
Thanks for the heads up Bridget on whether the pill boxes are suitable for Revlimid etc… I will check that with the Pharmacist if/when I get to that stage.
Thanks also for the offer of the Publisher chart Gill, however I am just no good with charts and tick boxes. I take the pill forget to tick the box then cannot remember whether I took the…[Read more]
Perkymite started the topic 10 week check up since STC. in the forum General 13 years, 9 months ago
Hi gang, I had my 4 week check up today it is now 10 weeks since my Stem Cell Transplant.
All my bloods are going in the right direction and I am doing really well according to my Consultant. My paraprotien has not gone to ZERO which is a bit of a disappointment but they have reached a plateau at around 2.2. I feel in the best of health…[Read more]
Perkymite replied to the topic myeloma X1 trial in the forum General 13 years, 9 months ago
Hi Eve, I assume you are referring to a chart to ensure you take your pills in the correct order and time. I use a Pill wallet I purchased in Boots, it only does one week but I find that is ok. Every Monday I pop all my pills into their little slots for use that week. I find it a great help, I have a terrible memory and sometimes I did not…[Read more]
Perkymite replied to the topic Keep your fingers crossed for me please. in the forum Carers 13 years, 9 months ago
Hi Andrew, welcome to our little group 🙂 Are you a carer or a sufferer?
kindest regards
David
Perkymite replied to the topic myeloma X1 trial in the forum General 13 years, 9 months ago
Sorry I cannot help. I am sure I have heard mention of Myeloma XI trial before so perhaps someone might have some infor on it.
Kindest regards
David
Perkymite started the topic knowing when to shut up!. in the forum Off topic 13 years, 9 months ago
see attached picture!
Perkymite replied to the topic Side Effects in the forum Side-effects 13 years, 9 months ago
I believe the sweats are a side effect of the CDT treatment. I also had them when on CDT and just after CDT. One minute I would be sweating next freezing cold, my poor old wife suffered from me throwing off the duvet or alternatively had this Ice block trying to cuddle up! I think the cold spells were worse. At the time I ended up wearing…[Read more]