I find the best way to find a post is to click on the users name e.g., Gaye, KWilson, or my own if I am looking for one of my posts, there it lists all the posts that that person has done, 10 per page.

This site I think is at a half way (?) stage it is not as good as some forums I have been on but it is clearly moving there. A better search…[Read more]

Hey Kevin, welcome back I was beginning to think you had left us, but I suppose the good times had to end >:-)

Kindest Regards

David

Hi Christopher, I give my blood sample at my surgery about four days before my hospital appointment. As others have said it does mean that you have all the data to discus at your appointment, which I very much prefer.

Kindest regards
David

Enjoyed your blog. You seem to be the other end of the spectrum with regard to Dex.

I had bags of energy on it but had to give up any thought of sleep the night I took the tablets, normally Fridays.

Cannot say I noticed a weight problem although I note several of the ladies complain of putting it on. At the moment, having just…[Read more]

Hi Norman, Read my "Musings from ward 9". It is on page three of the Treatments section. It wil give you a good idea of the basic process and I am sure will answer most if not all you questions.
Best of luck

Kindest regards

David

Welcome to our merry band Christopher.

8 years is excellent to hear. You are right about the 24 courses and then it is supplied free of charge to the NHS.

I had/have Thalidomide induced PN in my feet, I call it "spongy foot" because that is what it feels like. I say had/have because there is no doubt in my mind that it has eased over…[Read more]

I am getting slightly confused here, can you help me out Gaye! I thought RT, Radiotherapy, was used to kill off tumours and the like, how do they use it in the treatment of a fractured bone?

Sorry if I am being a bit of numpty:-S
Kindest regards

David

Well done in getting your redundancy.

I was one of those idiots who always said I was never going to stop working! How wrong and stupid I was. I did work until I was 65 and only stopped because the Taxman made it unprofitable to continue! But boy am I pleased he did so I have never been so happy.

My only regret is that this disease is…[Read more]

Hi Em and Tanya, Welcome to our little, but very active, group.

I know it is a very worrying time at the present and it is all so new to you but you have come to the right place for help, support and good advice. Take time to have a good look around the site it has lots of correct and up to date information which will take some of the fear…[Read more]

Well done Shirls, just keep going 🙂 .

Gill talking about her dog's KC name of Courageous Cutey reminded me of my late Collies, Guinness, KC name ?Doubtful Russell?.

Guinness came from a long line of show dogs, indeed he had a KC winner for a granddaddy I believe. However, he was wall eyed (one blue and one brown) and very big for a…[Read more]

Hi Kay, I am pleased everything is back to normal that is as normal as it can be of course. Are you back on the Allopurinol?

I am taking a drug called co-Trimoxazole; I take 2 twice a day on Saturday and Sunday. They are an anti-biotic. I was warned they might have some serious side effects but so far alls I have had is a series of small…[Read more]

Hi Angie,
Welcome to our little group. They try to get the measure of cancer, Paraprotien, down until if it is not detectable it is in a plateau phase i.e. stable at a low figure, below 5 seems to be the norm. They will also seek to ensure that your Mum's other blood measurements are in good shape too such as platelets. This being ok she…[Read more]

Hi Keith, I generally type my "missives" in Microsoft Office Word then copy and paste. This site does not have a spell checker and I cannot live without one!
Kindest regards
David

Hi Webb Team/Admin,

Just a thought could you expand the Personal Profile section to include a small "who are you" section. I note that a member has started the "Who are you" posting again and it would be nice to have that sort of information in the profile so you could look it up when reading a post.
Kindest regards

David

Actually, that is a very, very good idea Mavis. 😛

Kindest regards

David

yes – it did brighten my day:-D
cheers

David

Yes Amelie, that is what a very experienced Consultant said to me. The Paraprotien level norm for most people is between 0 and 5. And, I still believe that to be the case. It is just where does the Bone Marrow measurement fit into all of this!

At my last appointment I asked if I would be required to give a Bone Marrow sample and my…[Read more]