I was only on Velcade for a couple of months, I got PN quite badly and was pulled off so cannot really add anything constructive. I would tend to agree with Tom. However, why not mention Rivilimide to your Consultant, I understand it is the third line treatment, I am on it, and you have to have relapsed on Velcade I think but it is worth a…[Read more]

Carol, she is not adorable she is absolutely gorgeous.

We never did get to Australia and New Zealand. We do not have relatives out there so although we would liked to have gone there was never a great urge to visit.

We are planning a small trip to Greece this year if things remain stable, we just want to sit in the sun (well shade for me) at…[Read more]

My Doctor actually suggested Rivaroxaban to me as an alternative but it was vetoed by the Consultant. The consultant said that it was to do with internal bleeding. If you had an internal bleed Clexane could be treated easily but Rivaroxsaban could not.

hope this helps

Kindest regards – vasbyte

David.

Well Mauritius has a nice Hospital in the centre of the Island, or they did in 1997 when we went there, if you need it.

Are you sure you are covered and Myeloma is INCLUDED not excluded?

Have a great trip.

kindest regards – vasbyte

David

Hi Eva, Sorry, catching up on posts. Sorry to hear of Slim’s predicament.

Why did Slim have to come of the Revlimide? Did he get to the maintenance leval ?

Kindest regards – Vasbyte

David

That sounds excellent Helen and I will definitely give them a go when I look for my Spanish insurance. I think the excess are very reasonable. When I first started down this path, 2009, I was getting that sort of quote but as things have progressed and I have added another incurable cancer to my collection it is just getting a little harder for…[Read more]

OK one last quick reply then off to bed you go and down to work I go.

You are right my brothers family live in Jo’burg. My Son and his SA Fiance, with my Son’s two children are in SA at the moment. They had a major family reunion the other night and are cementing connections to the SA family which is so so good.

This is our second trip to…[Read more]

Hi Helen, I am supposed to be doing my Family tree but as I took Dex today I will be awake all night so will have plenty of time to catch up.

Holidays are important to us all and a great moral lifter which we sometimes need. I am a great admirer of Andy and his trips. We are in the processes of planning one trip to Spain this year. Other…[Read more]

Hi Helen, I read you post with great interest.

My wife has worked in Insurance for over 30 years, She has all the qualifications but now at nearly 70 just does the processing for a local company. She tried to retire but they would not let her, in the nicest possible way, and she does 10 hours, of her choosing each week. they need to keep her…[Read more]

Thanks Ladies, Yes, it makes sense to me anyway. At the moment I am doing well I see. I will have to start getting used to using these measurements I think.

Many thanks for the help.

Kindest regards – vasbyte

David

Hi Hilitli,

I am sorry to hear about your Mum, it sounds as if she has really gone through the mill. I can only give you my experience with Velcade. I relapsed and was given Velcade as the next (2nd line) treatment. Unfortunately it did not suit me at all and I had very bad PN in my legs so after 3 doses I was taken off I am now on Revlimide…[Read more]

Hi Andy, I built my own computer for my 60 birthday it was a great machine and served me well for many years then I got sold some duff RAM and it burnt up the motherboard. My children bought me a new laptop a Dell Studio 1745. It is a good machine and I have used that ever since. Last week I put in 8 Meg Ram (was 4) and a new SSD drive and…[Read more]

Hi Andy, My Doctor wanted me to go on to Rivaroxaban but the consultant said no for some reason. So I am on the old clexane, I am going to take it up with him on the 21st Feb, my next consultation. 700 injections Wow.

I think the trick with Clexane is to keep the needle still whilst injecting and inject slowly but steadily. Do not wipe the…[Read more]

I haven’t volunteered for a BMB 😉 The last time I asked about a BMB I was rather given the impression that the hospital does not really believe in them and tends to stick to Blood measurements. We shall see what happens at the next consultation.

kindest regards – vasbyte

David

I am still struggling to find out how this forum actually works? I am replying to a post that I received but I cannot find it on the postings!

Anyway, Hi Carol, thanks for your post. I have been on this forum since Jul 2009 and you are the first Taunton person I have run into, I go to Musgrove. Yes, I was given advice to watch out for DVTs…[Read more]

Hi Eve, never had a private email I will open it when the wife is not about :-)). Actually my Doc mentioned RIVAROXABAN and he wrote to my Consultant about it.

Mistakes are to test the edit system – Which Worked – YIPEEE

kindest regards – vasbyte

David

Hy guys and gals, or are we all now just guys?

Had an exciting weekend spending many hours waiting in my local hospital. I have a DVT just above the right knee and am now on Clexane injections, indefinitely I am told by the Pharmacist ! They are now consulting the Hematology dept to find out if will affect my treatment with Revlimide. Anybody got…[Read more]