I am going across to the hospital for a Blood Transfusion this morning. My HB has dropped below 10.

I think they were going to leave it for awhile originally but I have a trip planned to London, this Sunday for one week, I am going to see War Horse, a boat trip on the Thames and the London Eye before dropping in on my Sister for her Birthday.…[Read more]

I wish Keith the best of luck and my thoughts will be with him.

May his God walk beside him now.

Kindest regards – vasbyte

David

Well Hi there Richard and welcome to the forum.

I was diagnosed in July 2009. Like you I have had the SCT etc… but it gave me 2 1/2 years remission and I am just starting Velcade, in fact this is my first week. How long were you on Velcade before they switched you to Revlimid?

I am going in for a blood transfusion tomorrow, my first,…[Read more]

Spot on OFF TOPIC 😀 😀

Kindest Regards – Vasbyte

David

Welcome Ann, you will meet lots of good people here. I was diagnosed in July 2009. Had my STC in No 2010. MM has now reared its ugly head again and I have just started on 2nd line treatment Velcade with Dex. Apart from the odd bouts of bone pain, which can floor me, I am going well.

I wish you all the best of luck.

Pete : are you our…[Read more]

Hi Sue, I have just started taking Velcade and Dex so am way behind you I am afraid. However, have you actually read the information that comes with the medicines. A lot of people just read the instructions on the Script or Box.

I was busy taking my medicines the other day, I had not been to the toilet for a couple of days so decided to add…[Read more]

That is truly a lovely post Tanya. It was great that you could be beside him as he took his final breaths in this world.

May your God walk with you at this sad time.

My kindest regards – vasbyte

David
x

My Dear Tanya, I have tried very hard to answer your posting since you posted but I find these post so hard to reply to.

I hope Your Dad's end is peaceful and you manage to be by his bedside, that is all any of use can really wish for.

I like you believe in "something else" Nearly all religion's preach of one God and I have always believed…[Read more]

Some really good sound advice there Mary. My wife went completely OT but I bless her for it. I even had my own food that nobody else was allowed to touch, butter, jams, bread etc… Everybody got vetted regarding colds in the last two weeks and all had to use the hand jel. All talked to me with a good two paces between us and nobody could…[Read more]

Hi Jean, I start on the 15th April.

You should defiantly go for Subcut (injection under the skin). My Consultant told me there is a major drop in side affects if Velcade is given this way.

If I am up to it I will post on the 15th under this heading and let you know what happened and how I got on.

Kindest regards – vasbyte

David

Hi Helen, No I did not tell her I had even planted them she was so puzzled to see this bulbs popping up in the lawn. I felt a little white lie was justified there. Next time I will plant them with a lot more care and slug protection 😎

Kindest regards – vasbyte

David

Sorry Tom >:-( it must have been me! I have just spent two weeks on ABs having a bad infection in the right lung. Very, very painful.

I thought I was in the clear first time for a long time I actually did not have any pain at all, not even a little niggle. Then two days ago bent down to pull out some washing from the washing machine and…[Read more]

Hi Dai, Sorry to hear you are having a tough time of it. I am just starting (Monday) Velcade + Dex as my second line treatment so I am a long way behind you I think.

However, I have total empathy with you on the Consultants reading up your notes before an appointment. The random Consultant system is used at Musgrove Park Taunton and I feel…[Read more]

My wife works in an insurance brokers, retired now so does not do any selling or advising – not allowed by FSA rules. However we have always used City Bond but we have never had to make a claim!

The reason I write is to give you a piece of advice I was given early on by an Insurance underwriter. And, that was :

[i]Before filling in an…[Read more]

Hey, Well done Andy – great news next count pp's =2 😀

Kindest regards – vasbyte

David

Hi Maureen, I hope they get Ian's treatment going soon.

YOU must take proper rest otherwise you will be no good to man nor beast. Eve's suggestion is right. I tell Mo(my wifey and carer) I am feeling tired and then all 'phones come off and I rest for an hour or two hours sometimes. If Mo is out she knows I will put the 'phones back on when…[Read more]

Hi Nikki, I wish your Dad the best of luck on his transplant. Make sure he takes anti infection procedures very very seriously when he comes out of hospital. Be ruthless about it for at least 3 months.

Kindest regards – vasbyte

David

My journey so far with myeloma has been.

Broke my neck getting out of bed July 2009. Diagnosed MM Aug 2009.

Put on CDT (I did get some PN mainly in the feet ? spongy foot I called it)

Had real problems getting enough Stem Cells for a SCT but finally got 2 mill ?just ? in Oct 2010

Had my SCT in Nov 2010 ? Out just in time for Christmas…[Read more]