[PerkymiteParticipant]

19 years, wow, never heard of anybody being on these drugs for that long. In fact it was not long ago people on this site were discussing whether you should take then in excess of 2 years.

Like Eve I will be surprised if anybody would be able to help. 🙁 Sorry.

Kindest regards – vasbyte

David

[PerkymiteParticipant]

You are absolutely right. MyelomaUK has run GP awareness programmes, several times I think.

I personally posted one of their diagnoses charts to each of the 36 GP's that work in the Taunton Area in 2010. I recommend that all forum members, If you are mobile and [b][i]up to it do it[/i][/b]. Check out the Surgeries in your area, in the phone directory, telephone each one and find out the names of the Doctors and then drop a copy marked "personal for" to each one into their surgery. It is not a lot of work and it may not help you BUT it will help many, many other people. And, most importantly it will raise Myeloma's profile in the medical profession.

Kindest regards – vasbyte

David

p.s. There is a bonus you might forget all that pain whilst you are dong it:-D

[PerkymiteParticipant]

Welcome Dave, As you have been monitoring us all you will no doubt appreciate we are a friendly bunch on here. Welcome to posting.

If you search for a posting I did whilst undergoing my SCT in Nov/Dec 2010; I called it "Musings from ward 9" it might give you some insight into what you are about to go through.

I look forward to hearing from you again

Kindest regards- vasbyte

David

[PerkymiteParticipant]

Hi Pauline, Welcome to the Forum. As has been said not a place you want to be but here we all are. They are a good bunch and you will find that everybody will do there best to help where they can.

Kindest regards – vasbyte

David

[PerkymiteParticipant]

Go for it Tom, all the best of luck.

(I like the Tom Senior bit – made me chuckle) Do we have a Tom Senior and Tom Junior now I wonder 😀 😀

Kindest regards – vasbyte

David

[PerkymiteParticipant]

Thanks Andy, thanks a bunch:-( . ([i]He says through gritted teeth whilst green with envy)[/i] 😀 😀 .

You have got my vote as well as Helens. Mo and I get about a bit but that is mainly in the UK, one trip to France planned August. I might look at September time for a week or two in Greece, depends on my treatment. We have not been there for many years but we have real good memories of Greece, especially the Islands, of which we visited quite a few. Did you need your letters?

Kindest regards – vasbyte

David

[PerkymiteParticipant]

Hey no problem at all.

I have a similar pattern. Mo has learnt to recognise the signs and she tells me to rest, if I have not realised it already, which can happen. I get groggy, start to feel real tired, slur my speech a little(no Tom that is not the Guinness), not sure what I was doing or going to do just start to feel a little bewildered and very, very tired. Whilst in hospital, in 2009, Mo brought two recliner chairs. They are great I have a large "Throw" and I just hunker down, sleep could be 20 mins. and I am up and going or two hours. Mo just lets me sleep till I wake. My family are switched on to it and if I am visiting it is the same Mo will just say David's (Dad/Granddad) has got to rest and I am packed off to a quite room or bed and that is that. I rely on Mo if she says I need to rest I go rest. You must listening to your body.

Kindest regards – vasbyte

David

In retrospect and looking at Colin's programme I would say try to space things out a bit more. I set a job(jobs) to do most days once I have done that I can sit on my butt, if I want to that is, but I do not try to do too much.

[PerkymiteParticipant]

[u][b][i]CONGRATULATIONS [/i][/b][/u] 😀 On your Anniversary and may you have many, many more.

Kindest regards – vasbyte

David

[PerkymiteParticipant]

Hi Anthony, 17.4 is not high, in fact it is not bad at all. My PP has just jumped up to 17.4 following a relapse from my SCT, it was around 2.3. When I was diagnosed, Jul 2009, it was 33.5 and the Doctor's did not consider this alarming.

Welcome to the club by the way 😀 .

Kindest regards – vasbyte

David

[PerkymiteParticipant]

You will hear lots of "discussions" about fluids. Personally I ignore the "discussions". 😎

The base line is that you should drink between 4 and 6 pints of water every day. I try for 6 pints a day but sometimes when I am visiting friends etc… it is can become difficult so I allow it to slip to 4 pints, BUT, never less.

Hope this helps

Kindest regards – vasbyte

David

[PerkymiteParticipant]

You go for it Eve and have a good time. Try to put MM behind you and enjoy yourself.

Kindest regards – vasbyte

David

[PerkymiteParticipant]

Hi Guys, To qualify for the statement "remission" The consultant has to say it i.e. "You are in remission", otherwise the answer has to be no surely.

Rather hijacked Chris's posting here, sorry Chris. If we want to discus this further perhaps we should set up another posting.

Kindest regards – vasbyte

David

[PerkymiteParticipant]

Well Ali it is nice to know that this has been properly researched 😀 😀

Kindest regards – vasbyte

David

[PerkymiteParticipant]

Yes, See attached photograph. Pity our native Bluebells are being destroyed by the Spanish/Portuguese hybrids, They have no scent!

It is great Slim is getting out, keep up the good work Eve.

Kindest regards – vasbyte

David

[PerkymiteParticipant]

Hi Peter, for 12 months world wide travel insurance that is very good I think.

Kindest regards – vasbyte

David

[Author]

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