[PerkymiteParticipant]

I do not think anybody will, it is not a “big” cancer and the research required would, I suspect, take up a lot of cash.

Kindest regards -Vasbyt

David

[PerkymiteParticipant]

Well done young man (I love using that phrase he he) With your attitude I can see another three years stretching out before you.

Keep going buddy

kindest regards – vasbyte

David

[PerkymiteParticipant]

Signed number 3076.

[PerkymiteParticipant]

The garden has taken a hit this year Helen. I have reduced the borders and lawned most of it in. We just have three medium size planting ares two of which I have filled with perennials (I love penstemmons). My lovely hedge has gone, replaced by a very smart solid wood and lattice work fence. To be honest I am preparing things for Mo.

That Insurance quote sounds great, if I can get out of these woods I am in at present I might look them up and try to surprise MO with a holiday,who knows!

kindest regards – vasbyte

David

Great Pics well done Andy, I could almost feel myself there.

[PerkymiteParticipant]

???????????????????????????????////

[PerkymiteParticipant]

I always use Tesco pitted prunes and Laxido I have 5 pitted prunes with my cerial and take the Laxido mid day well clear of any medicine I am taking.

kindest regards – vasbyte

David

[PerkymiteParticipant]

What a lovely place to get stuck.

I do not want to “count chickens” etc.. but it looks like my op yesterday was a success. Both kidneys are now draining well and the blood is starting to clear from both,which the Nurse tells me is a good sign this early after the op.

What makes a forum good, in my mind, is light harted banter that lifts the spirit. You keep on posting I very much enjoy reading about your travels. A photo’ would be great too!

kindest regards – Vasbyte

David

[PerkymiteParticipant]

You two guys are getting up my nose!

I am sitting here, in my hospital bed, having just had my Kidney’s drained and ” stents” put in too keep my pee ways open and you two are off enjoying yourselves – HAVE YOU NO HEART. Wasn’t just one day lousy with bad food, warm larger and ice sheets blowing in from the north. :-))))

Well done kindest regards – vasbyte

David

p.s. still in MM full remission. Skin cancer very mild. BUT, Prostate is a real sod at moment.

[PerkymiteParticipant]

Hi Chuck, Sorry to hear you are going through it. I lost my neck vertebrae in 2009 to this decease. I was pulled of Velcade because of bad side affects namely PN. Went onto Revlimid and never looked back.

kindest regards – vasbyte

David

[PerkymiteParticipant]

Hi Ian, Been off line for awhile but today I picked up yours post. When I started out on the Myelomer trail July 2009 I was told to drink plenty of waster – 6 Pints a day were were recommended. I have been trying to do that every since. I do not always hit my “quouter” for one reason or another but I would say my minimum is 3 pints.

I wold get drinking the water my friend.

kindest regards – vasbyte

David

[PerkymiteParticipant]

Hi Eve, I was gutted to read the posts regarding Slim’s demise. Through you we all got to know him well. I will think of you tomorrow when I go to my Son’s grave.

Please, please do not leave us.

My love and best wishes go out to you – Vasbyte

David

[PerkymiteParticipant]

Hi Peter, I picked up “Spongy Foot” as I called it whilst going through my SCT in 2009/10. It then started to get a lot worse when I went onto Velcade. I only had three doses of Velcade before PN started to get worse. I still have a numbness in my right side calf muscle but it has not go any worse so I ignore it.

I, like most MM sufferers I think, have metalwork. Mine is in my neck. I broke my neck getting out of bed, MM had eaten my 4th vertebrae. My head is held up by a wonderful piece of internal scaffolding. If you imaging scaffolding around a church tower you will get the picture. However I stll have full movement and most people would not know. But like you I am still active , I am 71, however I do find nowadays I start to tire quicker.

kind regards – vasbyte

David

[PerkymiteParticipant]

Sorry to hear Rev has stopped for you I hope you have better luck on the next treatment whatever it is.

I only started on Rev in Nov 2013 and it has taken me into complete remission at the moment. They have pulled me off of it , 2 months ago now, whilst they try to sort out Prostate Cancer and a Skin cancer. My blood test Friday last was still good but they want to get me back on it by the end of Sep.

Kind regards – vasbyte

David

[PerkymiteParticipant]

Hi Stu, I like your attitude – just the right one to have when dealing with MM. I have had Myeloma since 2009, when I was 67, and it is only this year that I actually got into full remission so keep your positive attitude because you will find it a bumpy old ride with lots of ups and downs.

MM affects everybody differently but we have similarities in treatment and the affects of treatment. So if you have a question do not be afraid to ask

Dexamethasone is a steroid and it might give you boosts of energy, I can climb Mount Everest after taking it, and sleepless nights but watch out for the lows, grumpy – short tempered – unreasonable – argumentative and negative attitude, which generally follow the highs.

Best of luck with your treatment.

kind regards – Vasbyte

David

[PerkymiteParticipant]

Hi Eve, I loved your post. Not unexpected from such a strong person as yourself.

My family know of my wishes when I die. I am at the moment discussing my funeral service with my local vicar. I want to make it an opportunity to ask people to help each other. My granddaughter will read the parable of the Good Samaritan for example.

I will never win the lottery but I have been lucky in life itself. And as I face death my only regret is that I wanted to nurse my wife when she faces death and that will not be the case.

We enjoy every moment we can and we are well supported by our children and friends we are truly lucky.

However, can I assure you that I intend to live as long as I can – the fight goes on!!!!

Kindest regards – Vasbyte

David

[Author]

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