[PerkymiteParticipant]

Hi Jeffery,

I was on ZoMorth for some time when I had a great deal of bone pain some time back. Zomorth is very addictive I found, and when I cam off it I went through “Cold Turkey” withdrawal. I had all you had plus I felt like death warmed up. I would lay in bed sweating madly but feel very very cold. I had ants under my skin crawling all over me. I lost all my drive and had no will to do anything. It lasted about a week, maybe less if I remember correctly, but I stuck at it and would not take it. To help I would take 5 mil of Oramorth, one in the morning and one does at might. I then stopped that. Fortunately my bone pain had gone.

kind regards – vasbyte

David

[PerkymiteParticipant]

Some good news the Skin Cancer is only a mild form and they have taken some samples (ouch) and I now await a date to have them removed.

Kindest regards – vasbyte

David

[PerkymiteParticipant]

Hi Anthony, I only did 3 months on Velcade by which time I was getting bad PN. I was taken of Velcade and put on Revlimid. I have never been in remission since I started down the MM path, after SCT I got down to 2.9 pp However after 3 months on Revlimid I hit “excellent Remission”, my consultants words not mine, with uncountable PPs i.e. ZERO.

kindest regards – vasbyte

David

[PerkymiteParticipant]

Hi John, It is very bewildering when you first start down the MM path. I started on the path of 5 years ago so do not give up. Carol has given some good advice and information. I was 66 when first diagnosed and had a transplant at 67. I have always kept my self fit and active and this counted a great deal in the decision to let me have a SCT.

kind regards – vasbyte

David

[PerkymiteParticipant]

I am on my 10th cycle of Revlimid and have been taken off treatment for a month whilst I underwent a Prostate operation and had a couple of teeth out. I expect to go back on treatment at the end of Aug. In the grand scheme of things, I was informed, this should not make a lot of difference. I go in Friday to see my Consultant and it will be interested to hear the results of my blood test for the skipped month.

Kindest regards – vasbyte

David

[PerkymiteParticipant]

Op was not a success I am afraid. However not a complete failure yet. They had to put the Catheter back in and in 3 weeks they will take it out again and I will “try to live without it” if I cannot it means a permanent Catheter for me!!!

kind regards – Vasbyte

David

[PerkymiteParticipant]

Thanks all for the kind posts. Yes, they are thinking of cutting out some more of my head. My appointment is later this month when they will decide what to do.

From January it has been a really troublesome year. July/August has been a real problem month of one thing after another. Biopsy on my head, Two teeth extracted, Operation to core out my Prostate, and a further operation to remove nasty growths from my head all within about 4 weeks. If I make 2015 I will remember 2014 as the year of pain and problems.

But, as Tom would say onward and Upwards. And, I have really had to VASBYTE!

Kindest regards Vasxbyte, Vasbyte

David

[PerkymiteParticipant]

Not to well Andy I now have skin Cancer to add to my list of cancers! I have an appointment with them at the end of the month when they are gong to cut a slice out of my head!!!! Not going to be much left of me at this rate.

MY teeth extraction, on the 27th, proved a real tough one they could not get the top one out and had to cut it in 4 and extract each root separately. I was in the chair for over 40 minuets while they pushed and pulled (and grunted). The bottom one just jumped out. However the good news is that I did not get a lot of pain afterwards which was surprising. The jaw seems to be healing up nicely. I have an appointment with the Max Fill unit on the 22nd to check it.

Going to try to get some seep now as well.

Kindest regards- vasbyte

David

[PerkymiteParticipant]

Yep signed.

David

[PerkymiteParticipant]

I did well on Rev and Dex going to “excellent” Remission withing a couple of months. I have been off it for nearly a month now whilst I await my Prostate Operation, which is today. I expect to go back on it at the end of the month, I think I see the consultant on the 22nd. The only problem I have with it is the cycle of Constipation and loose bowels.

I am having a Dex night Andy without any dex!!!!!! Just cannot sleep. I get these nights occasionally.

Kindest regards – vasbyte
David

[PerkymiteParticipant]

Best of Luck Karen I hope all is well.

Kind regards Vasbyte

David

[PerkymiteParticipant]

I would not say they are “ignored”. however most of us have our own problems to solve and our own fund raising.

Well done for your work keep it up.

Kind regards – ~Vasbyte

David

[PerkymiteParticipant]

Glad you are still going well Tom. I had bad PN with Velcade. They just took me off it and I went straight onto Revlimide which I have found much better with minimum side affects. Plus it took me in to remission which I had not managed to achieve since I started in 2009.

Kindest regards – vasbyte

David

[PerkymiteParticipant]

You are absolutely right Eve.

Anyway, I have already met God, he was the RSM of the 1st Parachute Regiment, and he told me several times, when I was a young Sergeant, exactly what he was going to do with several bits of my body when he had finished with me. Said at 500 decibels 2 inches from my right ear, whilst I stood frozen to the spot So I think I might just be safer in hell!!!!

As Mo said, Eve, when we had the news, “How many times can you die?”

Kindest regards – vasbyte

David

[PerkymiteParticipant]

You may be right there Richard: I repent, I repent. I repent!

We do not mention those days Don, although over 59 years ago my wife of 52 years reads this forum!!!! (p.s. yes they were great days shhh).

I repent, I repent. I repent

I have not heard that said Maureen. The Cancer is on my head and the first thing they asked was whether I was an ex Soldier. Apparently it is a very common thing amongst ex forces personnel who went, as I did, to hot climes in the Middle and Far East in the early 60s. Also when they were trying to find out what had eaten the fourth vertebrae in my neck in 2009 I had to have more than the recommended number of scans and I was told then it might cause secondary cancers later on. So in a way I have been expecting something like this.

I repent, I repent. I repent

Kindest regards – vasbyte

David

I repent, I repent. I repent I repent, I repent. I repent I repent, I repent. I repent I repent, I repent. I repent I repent, I repent. I repent I repent, I repent. I repent I repent, I repent. I repent

[Author]

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