[PerkymiteParticipant]

Hi all, Thanks all for the support and good wishes you are a real bag of diamonds.

I will let you know how I get on with the MRI Scan although I am not expecting the results until Fri 7th Sep.

You are right Tom, Onwards and Upwards vasbyting all the damm way!

Kindest regards ? vasbyte

David

[PerkymiteParticipant]

Hi all, Many thanks for the good wishes.

It did not come as a surprise though. When I was being diagnosed with MM 3years ago I had to have 2 cat scans in quick succession. At the time there was a major row between the consultant radiologist and the haematology consultant about the number of scans I was havingin a short period of time. This was whilst I was laying on the machine. The end of the argument was that if they did not find out what was going on I was going to die then so it was the Devil or the Deep blue! So in a way I have half been expecting some other form of cancer to rear its ugly head.

The treatment seems to have got off to a poor start. Luckily I joined the Prostate Cancer UK site. The plan was to start Hormone treatment today which is tablet form and this paves the way for more aggressive treatment via an injection later. The idea is to stop production of Testosterone. If the injection is given to early it raises the testosterone level and rapidly increases the development of the cancer. The surgery has arranged for the injection 5 days after the start of the tablets. I was warned by guys on the Prostrate UK site that this is wrong and it needs to be 10 to 15 days AFTER starting taking the tablets!!!!!!!!!!!!!!!!!!!!!!!!!!!! I will be telephoning my designated nurse on Tuesday to check it all out.

The magic bullet you talk of Tom is salt grain size radioactive pellets that are put into the Prostate gland to kill the cancer. I am unfortunately way past that treatment.

Kind regards ? vasbyte

David

[PerkymiteParticipant]

My heart goes out to you Gill. Fix your mind on the good times.

Kindest regards ? vasbyte

David

[PerkymiteParticipant]

Dear, Dear Gill, I missed your original post, I have been very busy the last month and I only pop in and out on the forum at the moment. The rest of the gang have said everything better than I could say it is great to see them rally to your support, support you richly deserve.

I wish you and Stephen the very best and I sincerely hope the radiotherapy works. I will be thinking of you and Stephen and I just hope we can all help you now.

Kindest regards Gill – VASBYTE.

David

[PerkymiteParticipant]

Your post Eve has brightened up my early morning, it now being 2.17 a.m. You tell Slim to keep going the way he is and he will be alright. I agree with everybody else book the holiday 😎

Kindest regards – vasbyte

David

[PerkymiteParticipant]

Well I hope they sort you out Dia. It must be really debilitating.

I am having one of my rare, nowadays anyway, sleepless nights; I had a kip early on this afternoon which is unusual for me nowadays as I am always so busy. So I think that is the culprit.

Anyway, chin up buddy I am sure you can beat this, you have everything else that has been thrown at you.

Kindest regards ? VASBYTE

David

[PerkymiteParticipant]

Hi Chris, I could not agree with you more, the facilities and Staff at the Beacon Centre are first class.

I wish you the very best of luck with your Harvest, I had to have two goes at it. At the first I only got something like 1.4 mil although I cannot remember the number exactly. I managed to get 2.4, in total, from the second harvest. I had to wait 3 months for my bone marrow to rebuild to do the second harvest which of course delayed my final SCT. 2.4 mil was enough for one SCT, because of age a second SCT for me is apparently not an option.

Kindest regards ? vasbyte

David

[PerkymiteParticipant]

Welcome Michele.

Your good news is good to hear and being positive is definitely the right attitude. Since my diagnosis in Jul 2009 my wife and I have taken the absolute maximum out of every hour, it sounds as if you are doing the same.

I look forward to hearing more from you. Got to go I am helping sorting out all the "Junk" we have stored in the loft over the years! The word "Junk" is my word not the wife's by the way – 😀

Kindest regards ? vasbyte

David

[PerkymiteParticipant]

Hi Charlie, I have only just picked up on this thread, I drop in and read the post nowadays but I am so busy I never seem to have time to settle down and reply:-) However something Eve said made me think I should comment.

[i]Lets start with transport,you can get financial help,also you do not say your age,but [b]you will be entitled to attendance Allowance (AA) [/b]and a Blue Badge,you wife might be entitled to carers allowance that is means tested.So try not to worry about the financial side,your life is more important[/i].

You are not [u]entitled to AA [/u]just because you have Myeloma, Indeed many Myeloma suferers do not get AA. Provided you fulfil the criteria set out in a long and detailed form you might get it. If you are applying I would suggest you seek help from a MacMillan nurse in filling in the form.

Best of luck

Kindest regards ? vasbyte

David

I just thought I had better clarify that before everybody starts wondering why they are not getting it.

[PerkymiteParticipant]

All the very best of luck to you Paul. I have the feeling you will fly through it and we all, know doubt, will look forward to your updates.

Kindest Regards – Vasbyte

David

[PerkymiteParticipant]

Hi Trish, I had my SCT in Dec 2010 and I have not had any re-vaccinations, not even for travel abroad.

As a point of interest I was told to be wary of animals in general and not to touch them. Not sure how long this quarantine was meant to go on for but even now as a rule I do not touch stray animals.

Kindest regards ? vasbyte

David

[PerkymiteParticipant]

Best of luck Andy with the latest treatment.

Kindest regards – vasbyte

David

[PerkymiteParticipant]

Hi Amelie, Nice to hear from you again. I wish John the best of luck for his 2nd SCT.

Kindest regards – Vasbyte

David

[PerkymiteParticipant]

Keep going buddy just keep going.

I took up Tom's idea of using 6 x 500ml bottles. I fill them up every morning, then I can see where I am with fluid intake, also it silently nags you to "get them down".

Kindest regards – vasbyte

David

[PerkymiteParticipant]

We are blessed with seven Grandchildren, now ranging from 8 years to 18. Every now and again I see a mannerism, voice inflection or attitude that I recognise as my own or my wife?s and I know that a little piece of us has passed on to our grandchildren. It has been so rewarding watching them grow up. Enjoy!

Kindest regards ? Vasbyte

David

[Author]

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