[PerkymiteParticipant]

Hi Sue, I do not get onto the site as often as I would like these days. I am very busy with jobs and holidays at the moment (just finished making my prototype bird table/ nesting box and my ?Living and the dead? tour of the UK), shortly I am off to the Rhine/Moselle for a Cruise) .

However, I would like to wish Michael the very best of luck and say how much I admire your great attitude. As Tom would say Upwards and Onwards or is the other way around!!!!

My South African family gave me a great word for this situation, [i]Vasbyte[/i], it means bite hard and I feel it is so appropriate for this decease.

Kindest regards ? vasbyte 😉

David

[PerkymiteParticipant]

You are right Dai, it is expensive £233 for ten days but I have always been a bit of belt and braces man! The last thing I want to leave my family is an expensive medical bill if I run into problems, although I have always joked with my children that I would leave them an "equal share of the debt in my will" I do not actually want to do it:-D

I have just finished my "living and the Dead Tour of England and Scotland" 1200 miles up to Edinburgh and back visiting old friends, many we had not seen for years and it was really great. The "dead" we visited was my Great Great-grandfather (Ashover – Derby), Great-grandfather (Hawick – borders Scotland), Grandfather (Edinburgh) and Father (Wandswoth – London). I took bulbs from my garden and planted them on each grave and left a small plaque commemorating them. Like a North American Indian I have paid homage to my ancestors. Great trip:-)

KIndest regards – Vasbyte

David

[PerkymiteParticipant]

The important thing about holiday insurance is to ENSURE that your illness, and your medical history for that matter, is INCLUDED and not EXCLUDED. I have just met a friend of mine who gaily told me his insurance company had told him there was no extra charge for Bowel Cancer, I said that is not possible and when we checked they had excluded anything to do with his bowels!

We used Citybond. You can only use this company through a Broker, fortunately my wife works at an Insurance Broker. For a 10 day cruise down the Rhine & Moselle (coach there and back ? ugh I hate coaches), starting 12 July, it cost £233 for both my wife and myself. This includes everything, such as my wife?s Asthma and dodgy knees. Do not forget your Wife/Partner(Carer) needs the SAME insurance as yourself – she will need to be flown back as well if needs be.

The other thing I did was to go to my Doctor and ask him to print out a list of past illnesses [u]I should declare[/u]. Several things were on the list I had forgotten about. I now know the medical history I have given the insurance company matches my Doctors records and as such I will not run into the old ?Are but you did not tell us about the slipped disc in 1966!!!?.

Kindest regards ? Vasbyte

David

[PerkymiteParticipant]

Yes, Min originally I was searching for a Ha wick. A Scottish college roared with laughter and put me right Hoik it is.

I would love to take up the offer of tea and bisuits (us pensioners never miss a free bisuit) But time is really tight and I have to be back in London by the 8th, sooorrrry……………

Kindest regards – Vasbyte

David

[PerkymiteParticipant]

Hi Dai, I have been on Bioposponates (glad you spelt that 'cause I could not!!) since Aug 2009. I am Loron which I take every day, at night, you have to have two hours each side of taking Loron with no food, milky drink etc.. Luckly Guinness and Brandy do not come into it 😀 . I have had no side affects whatever from them. I do not think they will help with "old Age" bone pain, might be wrong but Loron has had no affect on mine.

Kindest regards – Vasbyte

David

[PerkymiteParticipant]

16 months already Tom, wow. And, still going "onwards and Upwards" well done. The red wine and cucumbers in my greenhouse must have done some good then:-D 😀

kindest regards – Vasbyte

David

[PerkymiteParticipant]

Hi Carol, Again, sorry not a horse person.

I had my SCT in Dec. I started to have lower back pain about 12 weeks ago. An x-ray confirmed that is was my old, worn hips (which I already knew about) was the problem. I take nothing for them but I am very active, including cycling, and like you I find keeping mobile and active does help. Sitting in a comfortable arm chair watching a night of TV is not a good idea.

As it is not Myeloma related can I suggest your go see your regular Doctor there are some low level pain killers he could prescribe like Tramadol, which I find very good.

Kindest regards ? Vasbyte

David

[PerkymiteParticipant]

The best of luck to you and Peter Min. I do hope it goes well.

kindest regards – Vasbyte

David

[PerkymiteParticipant]

You will get my vote Dai:-)

kindest regards – Vasbyte

David

[PerkymiteParticipant]

You know I feel so lucky when I listern to the problems some of you guys have. I am pain free and can do just about anything I want, with minor limitations.

Kind regards – Vasbyte

David

[PerkymiteParticipant]

Thats is the spirit Dai, just keep bl88dy well going.

Kindest regards – Vasbyte my friend vasbyte.

David

[PerkymiteParticipant]

Hi Nicki,

I am about a month behind Sam, I had my STC early Dec, and I could take your post, alter the names and it would be the same for me, even down to the hair. My mousy brown hair is now black. Mo wants me to grow it a bit on top, I normally keep is short. I think she has got a thing about curly headed men (she has never mentioned it before 😉 ).

When I do too much, like planting 250 Geraniums in my garden in an afternoon, I still get a ?Power Down? PLUS a right dressing (cannot use the correct phrase here >:-( ) down from Mo

Kindest regards ? Vasbyte
David

[PerkymiteParticipant]

I had dogs at the time. I was just about to inject myself when my Collie and Springer came bounding into the kitchen, distracted by the dogs I carried on with the injection but afterwards I just thought I did not have the same amount to inject. I think I accidentally squirted some out without realising it and therefore I only got a small dose. (I was mixing two injections into one to save on the holes in my belly – so you can see it would have made a difference). They test your blood before you do the harvest and you have to be over 13. It went down to 11 the second day but the third day it went to 5. The consultant doing the harvesting said he had never seen the like and he asked whether I had injected myself at all:-( . I was as sick as a parrot I can tell you. The second time I flew through it getting 1.5 mil out the first day.

[PerkymiteParticipant]

We are down to Torquay for the weekend of 3/4th September. If you would like my wife and I to pop in send me your emails address via Private Message or post it here if you feel inclined.

Kindest regards – Vasbyte

David

[PerkymiteParticipant]

Diet, if there were any special health foods that would help I think the "Docs" would have said. I certainly did not get any advice on it.

As for collecting the Stem Cells my first attempt was a dismal failure. I then had to wait about 6 months for a second go. I put my failure down to a mess up on the CSG(?) injections on the last night. Just make sure you do them right if you are self administering them.

all the very best of luck
Kindest regards – Vasbyte
David

[Author]

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